#WorldMEday
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broadwaybabyto.bsky.social
You can’t “try harder” your way out of disability

You can’t “healthy diet” your way out of disability

Many conditions are completely debilitating & the people suffering from them end up disappeared

Non disabled people can’t face the reality of chronic illness, so they choose not too

#WorldMEDay
May 12, 2025 at 8:48 PM
vladvexler.bsky.social
Millions of people suffer with the devastating and often dismissed condition, ME. #worldMEday
www.youtube.com/watch?v=sKkp...
World ME Day - millions of us are suffering
YouTube video by Vlad's ME Diary
www.youtube.com
May 12, 2025 at 8:27 PM
haridraws.bsky.social
I’m too exhausted to talk about my illness often, but for
#worldMEday I wanted to reshare the comics from the time of year I do talk about it
haridraws.bsky.social Hari Conner @haridraws.bsky.social · Feb 8
Diary comics thread for hourly comics day ✏️ intro/9am
#hourlycomicday #MEcfs #ChronicIllness
graphic reads ‘hourly comics day disability diaries’ with a drawing of me (white nonbinary guy w black facial scruff & short green hair) lying in bed looking shattered. Lower text reads ‘hello. I make comics, and—‘ “This year’s my 10 year anniversary of chronic illness (ME/CFS)” - a small cartoon of me with a balloon going ‘wow!!’ then ‘…wait.’ In an inset past year’s comic, I’m going ‘hopefully later I’ll be well enough to draw a little!’ but end up lying still in bed all day - ‘alas’. “*8 years of my illness being “moderate to severe” = mostly bedbound, unable to walk down the street or prepare a meal without collapsing.” “I’ve been making a day of hourly comics every February since I first got ill” (some pics of many years worth of hourlies,w ith me waking up feeling exhausted, too ill to sit up) “It can be hard, but it means a lot to share the reality of my daily life honestly and to hear from others in the same boat. So here’s Hourly comics day 2026” - a small baloon now reads ‘still here!’ next to the same drawing as the first, me now waking up. 9am - “good morning my body feels like it’s been run over by a train’
May 12, 2026 at 10:03 PM
solveme.bsky.social
Incredible! Big thank you to @tinayesenofski.bsky.social @phillyphile215.bsky.social & @pecoconnect.bsky.social
for helping to raise awareness of #MECFS in Philadelphia for #WorldMEDay! #UnitedForME
phillyphile215.bsky.social PhillyPhile215 @phillyphile215.bsky.social · May 12
Philly Philly representin’ again this International ME Awareness Day, thanks to @tinayesenofski.bsky.social @solveme.bsky.social and @pecoconnect.bsky.social 👏👏👏 Scrolling atop the Philly skyline May 11-13th! #LightUpForMECFS #MEAwarenessDay2026 #InternationalMEAwarenessDay #MEcfs
May 12, 2026 at 2:02 AM
tessamunt.bsky.social
So delighted that all 72 LibDem MPs signed this letter to @rthonwesstreeting.bsky.social @ashleydaltonmp.bsky.social asking the govt to back the ME/CFS Delivery Plan with the resources it deserves. May this be a huge encouragement to the ME community and the start of meaningful change. #WorldMEDay
May 8, 2025 at 4:32 PM
leahmcelrath.bsky.social
I live with Myalgic Encephalomyelitis (aka “Chronic Fatigue Sydrome”) and a host of related disorders.

We say #MillionsMissing because the conditions are so debilitating that they cause us to have to drop out of our lives.

Sending 💜 on #WorldMEday to all those who suffer. You are not alone.
meactnet.bsky.social #MEAction Network @meactnet.bsky.social · May 12
We showed up in front the U.S. Department of Health and Human Services today, joined by Dr. Stephanie Haridopolos, Principal Deputy Assistant Secretary for Health - Policy and Chief of Staff/Senior Advisor to Office of the Surgeon General.

#MillionsMissing #FrailAndFurious #WorldMEday
3 photos from #MillionsMissing at HHS. Text: '#MEAction at HHS. High-level HHS executive Dr. Stephanie Haridopolos joined us!' Photos top right: A Black man and woman in red tees and red masks face the camera. Man is standing and woman in wheelchair. Middle left: A group of people are sitting and standing outside beside signs. Bottom right: A line of people sitting on the ground and in wheelchairs and standing are in front of signs and cots outdoors.
May 13, 2026 at 1:18 AM
emilyesfraser.bsky.social
If you’re not affected by ME, I challenge you to look through the hashtags this #MEAwarenessDay & choose one post to share on behalf of the #MillionsMissing. We desperately need healthy allies to get angry for us & advocate for research & social support 💙
#MECFS
#WorldMEDay
#GreatestMEdicalScandal
jameslsutter.bsky.social James L. Sutter @jameslsutter.bsky.social · May 12
The thing about ME/CFS patients is that it's definitionally difficult for them to advocate for themselves. They just... vanish from society.

Which is why it's up to the rest of us to spread the word. To learn more or donate to research, some good orgs are:

www.omf.ngo

batemanhornecenter.org
May 12, 2026 at 5:33 PM
itsmepz.bsky.social
#MillionsMissing
#pwME
#MyalgicEncephalomyelitis
#MEcfs
#WorldMEDay
#MEAwarenessDay
I miss listening I miss seeing I miss working I miss walking I miss dancing I miss thinking I miss feeling I miss myself I have ME/CFS (Berlin Buyers Club)
May 12, 2024 at 5:09 AM
diatoma.bsky.social
#MEAwareness #MillionsMissing #DisabilitySOS #WorldMEDay #GreatestMEdicalScandal
Stellar call ✨
emilyesfraser.bsky.social emily fraser 🌿🐌✨ @emilyesfraser.bsky.social · May 11
TLDR: This is an SOS. If you don’t have capacity to read this whole thread, please skip ahead to ***WAYS YOU CAN HELP*** Please pick at least one! 🙏🏻💙

#MEAwareness
#MillionsMissing
#DisabilitySOS
#WorldMEDay
#GreatestMEdicalScandal #MyalgicEncephalomyelitis
#MECFS
#LongCovid
Self portrait of me (39 year old ww with wavy dark hair wearing sweatpants & a blue robe) seated in bed with my chi mix on my lap. I’m holding a sign that says Fuck M.E. in white all-caps over black Fuck M.E. in white all-caps over black
May 11, 2025 at 7:16 PM
kirsties.bsky.social
Please sign and share. This institution has far too much sway over a biomedical condition and is listening to the wrong people.
Please help @longcovidadvoc.com make a difference on #WorldMEDay #MEAwarenessDay
longcovidadvoc.com Long Covid Advocacy @longcovidadvoc.com · May 12
🩵On #MEAwarenessDay we are sending an open letter to @rcpsych.bsky.social calling for alignment with current evidence.

Supported by 20 organisations. +35 advocates, clinicians & academics!

In democratic spirit we are offering a public sign-on opportunity 🔗👇️
#RCPsychIC #Garner
A letter from Long Covid Advocacy to the Royal College of Psychiatrists and President Elect Prof Subodh Dave discusses integrating patient experience into ME care and highlights concerns about psychiatric-led approaches. #mecfs #meawareness #RCPsychIC #pwME A letter from Long Covid Advocacy to the Royal College of Psychiatrists and President Elect Prof Subodh Dave discusses integrating patient experience into ME care and highlights concerns about psychiatric-led approaches. A letter from Long Covid Advocacy to the Royal College of Psychiatrists and President Elect Prof Subodh Dave discusses integrating patient experience into ME care and highlights concerns about psychiatric-led approaches.
May 12, 2026 at 9:43 AM
diatoma.bsky.social
3/9 We've been using our very precious, very limited energy to raise our voices about #GreatestMEdicalScandal for decades. #MECFS #MillionsMissing #ExposeMENow #WorldMEDay #MEAwareness #StillSickStillFighting
@hankgreen.bsky.social @johngreensbluesky.bsky.social
🧵
3. Slide that reads "People with ME have been advocating for better treatment and research investment for DECADES. Now millions more are joining us through Long Covid. " Followed by hashtags in blue: #MyalgicEncephalomyelitis #MECFS #MEAwareness #MEAwarenessMonth #MillionsMissing #WorldMEDay #ThereForME #DoYouSeeMENow #ExposeMENow #MEKills #NowYouSeeMENowYouDont #GlobalVoiceForME #StillSickStillFighting #GoBlueForMECFS #BlueSundayForME #UniteToFight2024 #LongCovid #PEM #IACC
November 18, 2024 at 6:03 AM
alisonebennett.bsky.social
Proud to sign this letter ahead of #WorldMEDay
tessamunt.bsky.social Tessa Munt MP 🔶 @tessamunt.bsky.social · May 8
So delighted that all 72 LibDem MPs signed this letter to @rthonwesstreeting.bsky.social @ashleydaltonmp.bsky.social asking the govt to back the ME/CFS Delivery Plan with the resources it deserves. May this be a huge encouragement to the ME community and the start of meaningful change. #WorldMEDay
May 9, 2025 at 6:55 PM
tessamunt.bsky.social
I’m so aware that #WorldMEDay is painful for many, bringing home how tough it is to have #ME, and the seeming lack of progress.

Please be reassured that many of us in Parliament do care, and are working at bringing about meaningful change. Change is inevitably slow, but I’m really encouraged.
May 12, 2026 at 6:25 PM
medocspsytheras.bsky.social
Wir haben uns im April 2025 gegründet und sind schon so viele. Plakat für die @liegenddemo@bsky.social in HH.
#Liegenddemo2025
#MECFS
#LongCovid
#PostVac
#Unversorgtseit1969
#MillionsMissing
#MissingDoctors
#MissingTherapists
#MECFSAwareness
#LongCovidAwareness
#PostVacAwareness
#WorldMEDay
Demo-Plakat mit 27 Namen von erkrankten Ärzt*innen und Psychotherapeut*innen
May 10, 2025 at 6:38 AM
emilyesfraser.bsky.social
#MEAwareness
#MillionsMissing
#DisabilitySOS
#WorldMEDay
#GreatestMEdicalScandal

@meactnet.bsky.social
@thesicktimes.bsky.social
@berlin-buyers-club.bsky.social
@notjustfatigue.bsky.social
@johnvsjonvsme.bsky.social
@openmedf.bsky.social
@patientled.bsky.social
@polybiorf.bsky.social

8/
Follow & share people with M.E.’s stories to help us break out of the echo chamber: #MEAwareness #MillionsMissing #DisabilitySOS #WorldMEDay #GreatestMEdicalScandal #MyalgicEncephalomyelitis #MECFS #LongCovid Follow these patient-led/approved groups: @meactnet @worldmealliance @thesicktimes @berlin_buyers_club @notjustfatigue @johnvsjonvsme @openmedf @patientled @polybio.rf
May 11, 2025 at 7:26 PM
violetta.bsky.social
#MEcfs hat über 200 Symptome.

Dazu kommen noch Symptome von Komorbitäten.

Sehr viele oder sehr schwere Symptome sind niemals psychosomatisch, psychosomatisch hätte man von vornherein bei #MEcfs ausschließen können.

#MEAwarenessDay

#WorldMEDay
Baum mit sehr vielen MEcfs - Symptomen.
May 12, 2025 at 8:59 PM
actionforme.bsky.social
🚨 Major funding secured for Sequence ME & Long Covid, a DecodeME project.

On #WorldMEDay, we’re thrilled to share that the study has received £4.75 million from the UK government, signalling a transformative step towards uncovering the biological roots of ME/CFS and Long Covid.
May 12, 2026 at 7:28 AM
valebodi.bsky.social
We see you.

We hear you.

We fight with you.

We fight for you!

#ME/CFS #PAIS #LongCOVID #MillionsMissing #WorldMEDay #MEAwarenessDay #LiegendDemo
May 12, 2025 at 11:46 PM
longcoviduk.bsky.social
Many p/w #LongCovid are developing #MECFS. On #WorldMEDay we stand in solidarity with the #MECFS community and thank them for their continued guidance and support.

#ExposeMENow
#ExposeLongCovid
#MEAwarenessDay
#MillionsMissing
Image with blue background and blue hearts, with black stripe and blue hearts across the centre. Our Long Covid Support logo is in the upper right hand corner. Text says #WorldMEDay #MEAwarenessDay We stand in solidarity with the Myalgic Encephalomyelitis community and thank them for their continued guidance and support
May 12, 2024 at 8:24 AM
emec.bsky.social
On #WorldMEDay we send strength and courage to everyone living with #MECFS. We honour the memory of those we have lost and remain committed to transforming this tragedy into renewed determination to advocate for everyone living with this debilitating disease.
Collage of photos of blue forget-me-nots, the symbol of the disease ME/CFS.
May 12, 2026 at 3:13 AM
medocspsytheras.bsky.social
Die meisten von uns sind aus unseren Leben verschwunden.

Plakat für die @LiegendDemo in Stuttgart.
#Liegenddemo2025
#MECFS
#PostCovid #LongCovid #PostVac
#Unversorgtseit1969
#MillionsMissing
#MissingDoctors
#MissingTherapists
#MECFSAwareness
#LongCovidAwareness
#PostVacAwareness
#WorldMEDay
Demoplakat mit Namensliste
May 10, 2025 at 2:03 PM
violetta.bsky.social
Vor über 30 Jahren gab es im AVK ein Stockwerk extra für AIDS - Patienten.

#MEcfs wurde 1969 von der WHO klassifiziert und es gibt in 🇩🇪 immer noch kein Krankenhaus, dass sich auf #MEcfs - Patienten eingerichtet hätte!

#MEAwarenessDay

#WorldMEDay

Auf der ganzen Welt nur vereinzelte

...
May 12, 2025 at 1:25 PM
meactnet.bsky.social
#MillionsMissing #TeachMETreatME #WorldMEDay See post below!
eha.sh e. hashman @eha.sh · May 12
I wrote about being sick for International ME/CFS Awareness Day. It was difficult to write; I hope you find it meaningful. hashman.ca/me-cfs/ #MECFSAwarenessDay #MECFS
I am very sick
In October 2022, I was diagnosed with ME/CFS. In February of last year, it got a lot worse.
hashman.ca
May 12, 2024 at 11:24 PM
actionforme.bsky.social
📢 Today is #WorldMEDay

ME is a seriously disabling condition impacting at least 67 million people worldwide. Medical education is lacking in most countries and patients are regularly denied the care they deserve.
May 12, 2026 at 11:23 AM
davidetc.bsky.social
This book, Awakened, was so satisfying to listen to. And it’s a truly stunning achievement besides. #MECFS #MEawareness #WorldMEDay #pwME #booksky
tinywriterlaura.bsky.social Laura Elliott @tinywriterlaura.bsky.social · May 12
I wasn’t going to post for #WorldMEDay as it often feels like screaming into the void, but i decided i’d talk about my experience with ME and the inspiration for my debut novel, Awakened, which was published in June last year
Picture of the grey book Awakened by Laura Elliott, featuring a creepy raven with a blue eye bearing the Tower of London on its back on the cover. Above it there’s a stylised ripped page with the text: Awakened is a raw and unflinching dystopian horror story. Laura Elliott has crafted a deft fever dream and a deeply brilliant meditation on the very real terrors of capitalism, productivity, exploitation and healthcare. Fuelled by nightmares, this book is sure to leave you just as sleepless as me’ - Lucy rose, author of The Lamb
May 12, 2026 at 7:50 PM