Please take care in the heat & stay hydrated💧🚿🚰🧃
Also very common to have your inner thermostat not working as it should with ME/CFS & Sjøgren which I also have
#summer #hot #heat #weather #warm #hydrate #heatsensitivity #fibromyalgia #chronicillness #invisibleillness #pain #chronicpain #takecare
Also very common to have your inner thermostat not working as it should with ME/CFS & Sjøgren which I also have
#summer #hot #heat #weather #warm #hydrate #heatsensitivity #fibromyalgia #chronicillness #invisibleillness #pain #chronicpain #takecare
July 15, 2026 at 4:27 PM
Please take care in the heat & stay hydrated💧🚿🚰🧃
Also very common to have your inner thermostat not working as it should with ME/CFS & Sjøgren which I also have
#summer #hot #heat #weather #warm #hydrate #heatsensitivity #fibromyalgia #chronicillness #invisibleillness #pain #chronicpain #takecare
Also very common to have your inner thermostat not working as it should with ME/CFS & Sjøgren which I also have
#summer #hot #heat #weather #warm #hydrate #heatsensitivity #fibromyalgia #chronicillness #invisibleillness #pain #chronicpain #takecare
My dogs are enjoying the aircon we put in last week for the one room I’ll be staying in until the weather cools down #MS #heatsensitivity #globalwarming
June 22, 2026 at 7:01 PM
My dogs are enjoying the aircon we put in last week for the one room I’ll be staying in until the weather cools down #MS #heatsensitivity #globalwarming
A reminder for *everyone* on how to cope with sudden hot weather conditions, not just those with chronic illnesses!
Personally, I'll be in a darkened room for the week. Appointment for Friday, cancelled
#Heatwave #HeatSensitivity
Personally, I'll be in a darkened room for the week. Appointment for Friday, cancelled
#Heatwave #HeatSensitivity
June 22, 2026 at 4:51 PM
A reminder for *everyone* on how to cope with sudden hot weather conditions, not just those with chronic illnesses!
Personally, I'll be in a darkened room for the week. Appointment for Friday, cancelled
#Heatwave #HeatSensitivity
Personally, I'll be in a darkened room for the week. Appointment for Friday, cancelled
#Heatwave #HeatSensitivity
With MS, temperature management is not a small detail.
Protecting the nervous system from heat can reduce symptom worsening and improve daily stability.
More education at livewithms.com
#LiveWithMS #MSAwareness #HeatSensitivity #MSManagement
Protecting the nervous system from heat can reduce symptom worsening and improve daily stability.
More education at livewithms.com
#LiveWithMS #MSAwareness #HeatSensitivity #MSManagement
March 13, 2026 at 1:31 PM
With MS, temperature management is not a small detail.
Protecting the nervous system from heat can reduce symptom worsening and improve daily stability.
More education at livewithms.com
#LiveWithMS #MSAwareness #HeatSensitivity #MSManagement
Protecting the nervous system from heat can reduce symptom worsening and improve daily stability.
More education at livewithms.com
#LiveWithMS #MSAwareness #HeatSensitivity #MSManagement
6/
Cooling strategies can make a real difference in daily function.
More education at livewithms.com
#LiveWithMS #MSAwareness #HeatSensitivity #MultipleSclerosis
Cooling strategies can make a real difference in daily function.
More education at livewithms.com
#LiveWithMS #MSAwareness #HeatSensitivity #MultipleSclerosis
March 13, 2026 at 11:31 AM
6/
Cooling strategies can make a real difference in daily function.
More education at livewithms.com
#LiveWithMS #MSAwareness #HeatSensitivity #MultipleSclerosis
Cooling strategies can make a real difference in daily function.
More education at livewithms.com
#LiveWithMS #MSAwareness #HeatSensitivity #MultipleSclerosis
Understanding triggers is part of managing MS.
Learn more at livewithms.com
#MSFacts #MSAwarenessMonth #HeatSensitivity #MultipleSclerosis #LiveWithMS
Learn more at livewithms.com
#MSFacts #MSAwarenessMonth #HeatSensitivity #MultipleSclerosis #LiveWithMS
March 5, 2026 at 10:31 PM
Understanding triggers is part of managing MS.
Learn more at livewithms.com
#MSFacts #MSAwarenessMonth #HeatSensitivity #MultipleSclerosis #LiveWithMS
Learn more at livewithms.com
#MSFacts #MSAwarenessMonth #HeatSensitivity #MultipleSclerosis #LiveWithMS
Learn more grounded MS education at livewithms.com.
#MultipleSclerosis #MSAwareness #UhthoffsPhenomenon #HeatSensitivity #InvisibleIllness #ChronicIllness #MSCommunity #LiveWithMS
#MultipleSclerosis #MSAwareness #UhthoffsPhenomenon #HeatSensitivity #InvisibleIllness #ChronicIllness #MSCommunity #LiveWithMS
March 2, 2026 at 1:32 AM
Learn more grounded MS education at livewithms.com.
#MultipleSclerosis #MSAwareness #UhthoffsPhenomenon #HeatSensitivity #InvisibleIllness #ChronicIllness #MSCommunity #LiveWithMS
#MultipleSclerosis #MSAwareness #UhthoffsPhenomenon #HeatSensitivity #InvisibleIllness #ChronicIllness #MSCommunity #LiveWithMS
Cooling strategies aren’t optional for many people with MS — they’re part of symptom management.
Learn more about living well with MS at livewithms.com
#LiveWithMS #MSFacts #HeatSensitivity #MultipleSclerosis #InvisibleSymptoms #ChronicIllnessAwareness
Learn more about living well with MS at livewithms.com
#LiveWithMS #MSFacts #HeatSensitivity #MultipleSclerosis #InvisibleSymptoms #ChronicIllnessAwareness
February 17, 2026 at 10:31 PM
Cooling strategies aren’t optional for many people with MS — they’re part of symptom management.
Learn more about living well with MS at livewithms.com
#LiveWithMS #MSFacts #HeatSensitivity #MultipleSclerosis #InvisibleSymptoms #ChronicIllnessAwareness
Learn more about living well with MS at livewithms.com
#LiveWithMS #MSFacts #HeatSensitivity #MultipleSclerosis #InvisibleSymptoms #ChronicIllnessAwareness
2/2: For more info on night sweats, visit: https://meassociation.org.uk/medical-matters/items/night-sweats/
#MECFS #pwME #TemperatureChanges #HeatSensitivity
#MECFS #pwME #TemperatureChanges #HeatSensitivity
Night sweats - The ME Association
Yes, night sweats, sometimes quite profuse, do sometimes occur in […]
meassociation.org.uk
September 17, 2025 at 10:30 AM
2/2: For more info on night sweats, visit: https://meassociation.org.uk/medical-matters/items/night-sweats/
#MECFS #pwME #TemperatureChanges #HeatSensitivity
#MECFS #pwME #TemperatureChanges #HeatSensitivity
1/2: T is for Temperature dysregulation (thermoregulation).
For more information of issues with temperature in ME/CFS, visit: https://meassociation.org.uk/medical-matters/items/temperature-regulation-me-cfs/
#MECFS #pwME #TemperatureChanges #HeatSensitivity
For more information of issues with temperature in ME/CFS, visit: https://meassociation.org.uk/medical-matters/items/temperature-regulation-me-cfs/
#MECFS #pwME #TemperatureChanges #HeatSensitivity
September 17, 2025 at 10:30 AM
1/2: T is for Temperature dysregulation (thermoregulation).
For more information of issues with temperature in ME/CFS, visit: https://meassociation.org.uk/medical-matters/items/temperature-regulation-me-cfs/
#MECFS #pwME #TemperatureChanges #HeatSensitivity
For more information of issues with temperature in ME/CFS, visit: https://meassociation.org.uk/medical-matters/items/temperature-regulation-me-cfs/
#MECFS #pwME #TemperatureChanges #HeatSensitivity
Music therapy has the potential to significantly reduce psychosocial fatigue and heat sensitivity for those with MS, according to clinical trial findings. Explore how: https://bit.ly/4nR84Ch
#LivingWithMS #ChronicFatigue #HeatSensitivity #MusicTherapy
#LivingWithMS #ChronicFatigue #HeatSensitivity #MusicTherapy
July 18, 2025 at 9:13 PM
Music therapy has the potential to significantly reduce psychosocial fatigue and heat sensitivity for those with MS, according to clinical trial findings. Explore how: https://bit.ly/4nR84Ch
#LivingWithMS #ChronicFatigue #HeatSensitivity #MusicTherapy
#LivingWithMS #ChronicFatigue #HeatSensitivity #MusicTherapy
BTW: I’ve been under house arrest in the AC again due to the heat/humidity combo which — thanks to MS — makes me sick. The “feels like” heat index is miserable, even here on Cape Cod. At home, it’s even worse. #multiplesclerosis #heatsensitivity #capecod
July 16, 2025 at 9:04 PM
BTW: I’ve been under house arrest in the AC again due to the heat/humidity combo which — thanks to MS — makes me sick. The “feels like” heat index is miserable, even here on Cape Cod. At home, it’s even worse. #multiplesclerosis #heatsensitivity #capecod
As a child and teen, Desiree used to spend a lot of time outdoors — before she was so sensitive to heat. Now she reflects fondly on such memories while staying close to the A/C.
Read her reflections on this tough part of MS: https://bit.ly/4nNARHS
#MSAndHeat #MSSymptoms #HeatSensitivity #Uhthoffs
Read her reflections on this tough part of MS: https://bit.ly/4nNARHS
#MSAndHeat #MSSymptoms #HeatSensitivity #Uhthoffs
July 14, 2025 at 5:33 PM
As a child and teen, Desiree used to spend a lot of time outdoors — before she was so sensitive to heat. Now she reflects fondly on such memories while staying close to the A/C.
Read her reflections on this tough part of MS: https://bit.ly/4nNARHS
#MSAndHeat #MSSymptoms #HeatSensitivity #Uhthoffs
Read her reflections on this tough part of MS: https://bit.ly/4nNARHS
#MSAndHeat #MSSymptoms #HeatSensitivity #Uhthoffs
💫 Science meets Spirituality
When temperatures rise, your nervous system activates and blood flow increases.
Energetically, excess heat can scatter your spirit energy. Your meditation struggles are REAL! 🧠 🔥
Grab the podcast in the thread below👇
#ScienceAndSpirit #HeatSensitivity
When temperatures rise, your nervous system activates and blood flow increases.
Energetically, excess heat can scatter your spirit energy. Your meditation struggles are REAL! 🧠 🔥
Grab the podcast in the thread below👇
#ScienceAndSpirit #HeatSensitivity
July 6, 2025 at 12:32 PM
💫 Science meets Spirituality
When temperatures rise, your nervous system activates and blood flow increases.
Energetically, excess heat can scatter your spirit energy. Your meditation struggles are REAL! 🧠 🔥
Grab the podcast in the thread below👇
#ScienceAndSpirit #HeatSensitivity
When temperatures rise, your nervous system activates and blood flow increases.
Energetically, excess heat can scatter your spirit energy. Your meditation struggles are REAL! 🧠 🔥
Grab the podcast in the thread below👇
#ScienceAndSpirit #HeatSensitivity
Stay cool in the heat 👇
With thanks to Burning Nights CRPS
#CRPS #ME #Fibromyalgia #HeatSensitivity
www.burningnightscrps.org/support/news...
With thanks to Burning Nights CRPS
#CRPS #ME #Fibromyalgia #HeatSensitivity
www.burningnightscrps.org/support/news...
How To Keep Cool In The Heat Living With Chronic Illness
Our Top 6 Tips On How To Keep Cool During Hot Weather When You Live With A Chronic Illness.
www.burningnightscrps.org
July 2, 2025 at 10:04 AM
Stay cool in the heat 👇
With thanks to Burning Nights CRPS
#CRPS #ME #Fibromyalgia #HeatSensitivity
www.burningnightscrps.org/support/news...
With thanks to Burning Nights CRPS
#CRPS #ME #Fibromyalgia #HeatSensitivity
www.burningnightscrps.org/support/news...
The heat isn’t just uncomfortable, it’s disabling when your nervous system’s already fried.
🔥 Dysautonomia + Long COVID =
🧠 Brain fog
💓 Heart racing
💦 Sweat chaos
🪫 Energy crash
Stay cool. Rest. You’re not imagining it.
#LongCovid #MECFS #HeatSensitivity #POTS
🔥 Dysautonomia + Long COVID =
🧠 Brain fog
💓 Heart racing
💦 Sweat chaos
🪫 Energy crash
Stay cool. Rest. You’re not imagining it.
#LongCovid #MECFS #HeatSensitivity #POTS
July 1, 2025 at 3:01 PM
The heat isn’t just uncomfortable, it’s disabling when your nervous system’s already fried.
🔥 Dysautonomia + Long COVID =
🧠 Brain fog
💓 Heart racing
💦 Sweat chaos
🪫 Energy crash
Stay cool. Rest. You’re not imagining it.
#LongCovid #MECFS #HeatSensitivity #POTS
🔥 Dysautonomia + Long COVID =
🧠 Brain fog
💓 Heart racing
💦 Sweat chaos
🪫 Energy crash
Stay cool. Rest. You’re not imagining it.
#LongCovid #MECFS #HeatSensitivity #POTS
A cloudy, 70-degree, briskly-windy #beach day is glorious on the heels of a heatwave. #multiplesclerosis #heatsensitivity #capecod
www.tiktok.com/t/ZP8rpFwW3/
www.tiktok.com/t/ZP8rpFwW3/
That #heatwave couldn’t end soon enough. This #MS-er was jonesing to go to the #beach! #multiplesclerosis #capecod #heatdome #heatsensitivity
TikTok video by Meredith O'Brien
www.tiktok.com
June 26, 2025 at 4:25 PM
A cloudy, 70-degree, briskly-windy #beach day is glorious on the heels of a heatwave. #multiplesclerosis #heatsensitivity #capecod
www.tiktok.com/t/ZP8rpFwW3/
www.tiktok.com/t/ZP8rpFwW3/
msmartinecom.wordpress.com/2025/06/23/t... #MultipleSclerosis #Uhtoffs #HeatSensitivity #Blog #Moan #AirConditioningPlease #ItGetsWarmInIrelandSometimes
The Heat! The Humidity! It Continues!
There has been no escape from the warm humidity, day or night & I’ve come so close to a standstill I’m starting to go backwards, like a Twin Otter in Reese thrust as it pushes back! All MS symp…
msmartinecom.wordpress.com
June 23, 2025 at 7:10 PM
Heat + Long COVID? Not just discomfort. it’s vascular.
Damaged vessels can’t regulate pressure. Blood pools, brain fogs, you wilt.
It’s not just the sun. It’s your endothelium.
#LongCovid #HeatSensitivity #POTS #VascularDamage #heatwave
Longcovidjourney.com
Damaged vessels can’t regulate pressure. Blood pools, brain fogs, you wilt.
It’s not just the sun. It’s your endothelium.
#LongCovid #HeatSensitivity #POTS #VascularDamage #heatwave
Longcovidjourney.com
June 21, 2025 at 1:46 PM
Heat + Long COVID? Not just discomfort. it’s vascular.
Damaged vessels can’t regulate pressure. Blood pools, brain fogs, you wilt.
It’s not just the sun. It’s your endothelium.
#LongCovid #HeatSensitivity #POTS #VascularDamage #heatwave
Longcovidjourney.com
Damaged vessels can’t regulate pressure. Blood pools, brain fogs, you wilt.
It’s not just the sun. It’s your endothelium.
#LongCovid #HeatSensitivity #POTS #VascularDamage #heatwave
Longcovidjourney.com
Beat MS Heat with Smart Fabrics! 🌡️👕
Struggling with temperature sensitivity from MS? Discover the best cooling fabrics to stay comfy & manage symptoms effectively!
#MSAwareness #CoolingFabrics #MultipleSclerosis #HeatSensitivity #MSComfort #HealthTips
Cool Fabric Tips for Better MS Temperature Control
Cool fabric tips for better MS temperature control. Learn about the best cooling fabrics for multiple sclerosis and how to incorporate them into your lifestyle.
www.medixlife.com
April 20, 2025 at 11:19 PM
Beat MS Heat with Smart Fabrics! 🌡️👕
Struggling with temperature sensitivity from MS? Discover the best cooling fabrics to stay comfy & manage symptoms effectively!
#MSAwareness #CoolingFabrics #MultipleSclerosis #HeatSensitivity #MSComfort #HealthTips
Reusable cooling packs = heat relief! youtu.be/oXYPGNKpREM?...
via
@YouTube
#CRPSAwareness #StayCool #PainReliefTips #ChronicPain #SelfCareTips #InstantRelief #ReusablePacks #StayPrepared #HeatSensitivity #FlareUpHelp #WellnessTips #ChronicIllnessSupport #HeatRelief #CoolAndCalm
via
@YouTube
#CRPSAwareness #StayCool #PainReliefTips #ChronicPain #SelfCareTips #InstantRelief #ReusablePacks #StayPrepared #HeatSensitivity #FlareUpHelp #WellnessTips #ChronicIllnessSupport #HeatRelief #CoolAndCalm
Reusable cooling packs = heat relief!
YouTube video by Billy & Me
youtu.be
January 6, 2025 at 6:39 PM
Reusable cooling packs = heat relief! youtu.be/oXYPGNKpREM?...
via
@YouTube
#CRPSAwareness #StayCool #PainReliefTips #ChronicPain #SelfCareTips #InstantRelief #ReusablePacks #StayPrepared #HeatSensitivity #FlareUpHelp #WellnessTips #ChronicIllnessSupport #HeatRelief #CoolAndCalm
via
@YouTube
#CRPSAwareness #StayCool #PainReliefTips #ChronicPain #SelfCareTips #InstantRelief #ReusablePacks #StayPrepared #HeatSensitivity #FlareUpHelp #WellnessTips #ChronicIllnessSupport #HeatRelief #CoolAndCalm