#hypermobilitySyndrome
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cgmanley.bsky.social
Tried myofasciao release today, as part of my ongoing #chronicPain management and, friends, bliss. I don’t know if it’ll work long-term, but the short-term effects already has me signing up for next month. #hypermobilitySyndrome
February 4, 2025 at 8:55 PM
leohblooms.bsky.social
I had a steroid shot in my left knee yesterday. Bone-on-bone situation in there. Two hours of sleep last night, not tired, but amped +weird! Got my angry lupus rash +intense headache since last night.

#hypermobilityspectrumdisorder #hypermobilitysyndrome #heds #steroidshots #lupus #osteoarthritis
January 15, 2025 at 7:02 PM
thezebraalliance.bsky.social
Do you live with a Hypermobility Syndrome?
DYK: There are 6 (known) Types of Hypermobility Syndromes. Ehlers-Danlos Syndromes and Hypermobility Spectrum Disorders are two.

#hypermobility #hypermobilitysyndrome #HSD #hEDS #EDS #ehlersdanlossyndrome #sticklersyndrome #marfan #osteogenesisimperfecta
The HMSA | The Hypermobility Syndromes Association
The hypermobility syndromes association (HMSA) provides support and information for everyone with a hypermobility syndrome as well as health and social care professionals who support them.
www.hypermobility.org
March 20, 2026 at 2:56 AM
tomkindlon.bsky.social
#Worcester , #Massachusetts

Study of interplay of cellular landscapes and the role of oxidative stress in various conditions

www.umassmed.edu/slusslab/rec...

#MEcfs #hEDS #HypermobilitySyndrome #Orthostaticintolerance #POTS #LongCOVID #Fibromyalgia #ChronicLyme
#GulfWarIllness

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October 10, 2024 at 11:14 AM
sarokel.bsky.social
Hypermobility hands and knees adjustment to lessen the hyperextension in the elbows

Planning on doing one of these a week. If there are any exercises you would like adjustments for let me know
SamKellyFitness on TikTok
Hypermobility and exercise 1 #samkellyfitnesshypermobility1 #hypermobility #hypotonia #hyperextension #hypermobilityspectrumdisorder #hypermobilitysyndrome #hypermobileehlersdanlossyndrome #persona...
vm.tiktok.com
August 14, 2023 at 5:04 PM
faewylde.bsky.social
Is this cold killing any other chronic illness warriors? The lowest it got today was 25°. Every single joint in my body feels like it's going to shatter into a spray of blood, bone, and marrow. 😭 And I have SO much to do this weekend. #chronicillness #fibromyalgia #hypermobilitysyndrome
December 12, 2025 at 11:32 PM
montelwilliams.bsky.social
NEWS You Might Have Missed
@hypermobilityspectumdisorder
@hypermobilitymd
@thetracyrodriguez
@jeannie_di
#hypermobilityspectrumdisorder #hypermobility #hypermobilitysyndrome #mmj #mmjpatient #education #health #well #wellness #healthandwellnessjourney #care
March 24, 2025 at 12:07 PM
cavalcadewhimsy.bsky.social
"why do you need a diagnosis when there's nothing you can do about it?" my GP re hypermobility back in 2015. OMFG #chronicWTF #hypermobilitysyndrome
June 14, 2026 at 9:56 PM
meactmaryland.bsky.social
Episode 3: Joint Hypermobility/EDS in Pediatric ME/CFS
tinyurl.com/RoweTranscri...

#hypermobility #Ehlersdanlossyndrome #HypermobilitySyndrome
Transcript ep3: Joint Hypermobility & EDS in Pediatric ME/CFS
tinyurl.com
June 7, 2025 at 9:29 AM
sarahouston.bsky.social
Privileged yesterday to chair a hugely interesting awareness raising and planning event on long term health conditions and dance at the National Archives #hypermobilitysyndrome #EDS #longcovid #CombinationDance
Two rows of people posing for photo with a table at the side with coloured paper and writing
May 3, 2025 at 8:40 AM
seraphrdm.bsky.social
Part 1 of a mini manga about Tsukiya's hypermobility. Poor Kakashi doesn't quite understand his child's joints are actually Not Normal.

#Naruto #FanFiction #FanArt #Art #HypermobilitySyndrome
Reading right to left: Panel 1: Tsukiya is upside down and hanging off the couch with their legs crossed but lying flat against the couch. They're thinking "Man, this makes my back feel better" Panel 2: Kakashi entering the room with a book in his hand and he goes to say, "Little Moon, do you want to do any trai—" Panel 3: Kakashi's eyes widen and he says "What the f—" Panel 4: Kakashi exclaims, "How the HELL is that comfortable?!" while Tsukiya rolls slightly to the side to look at him. They say, "It just is. You should try it, Dad!" Panel 5: Kakashi scratches the back of his head and says, "Uh, I'm not sure, Tsukiya. I kinda prefer my joints not dislocated."
March 26, 2024 at 4:21 PM
tomkindlon.bsky.social
2/
#Worcester , MA

From the MassME newsletter

Study of interplay of cellular landscapes and the role of oxidative stress in various conditions

www.umassmed.edu/slusslab/rec...

#MEcfs #hEDS #HypermobilitySyndrome #Orthostaticintolerance #POTS #LongCOVID #Fibromyalgia #ChronicLyme
#GulfWarIllness
RECLAIM Initiative at the Sluss Lab: Researching Chronic Condition Linkages And Integrative Mechanisms At the Sluss Lab at UMass Chan Medical School, the RECLAIM initiative is focused on exploring the underlying mechanisms of understudied chronic conditions. As part of RECLAIM, Dr. Sluss is investigating how oxidative stress influences chronic conditions such as Ehlers-Danlos Syndrome (EDS), ME/CFS, and other infection-associated chronic conditions and illnesses (IACCIs.) Dr. Sluss, an expert in oxidative stress, also has lived experience with seeing the devastation and multi-morbid nature of these diseases, having a child with ME/CFS, hypermobile EDS, and orthostatic intolerance. RECLAIM is recruiting participants — adults and children aged 12-17 — who self-report with ME/CFS, Long COVID, or other IACCIs. Adult study participants can expect three 30-minute in-person visits, and child participants will have two in-person visits with the option to join a follow-up study. Contact Dr. Sl
October 10, 2024 at 11:19 AM
cavalcadewhimsy.bsky.social
Really ugly KT tape job but it actually helps 🙌🏼 #hypermobilitysyndrome #chronicWTF
cavalcadewhimsy.bsky.social DeinGesicht 🎲 @cavalcadewhimsy.bsky.social · Apr 2
Ugly wrist ganglion is back. Never really went anywhere in past 7 years but somehow strained it the other day. I've got it covered in ancient KT tape, not that I think it'll help (it might), but mainly so I don't have to look at it 🤢 #hypermobilitysyndrome
April 2, 2026 at 9:43 PM
cavalcadewhimsy.bsky.social
Ugly wrist ganglion is back. Never really went anywhere in past 7 years but somehow strained it the other day. I've got it covered in ancient KT tape, not that I think it'll help (it might), but mainly so I don't have to look at it 🤢 #hypermobilitysyndrome
April 2, 2026 at 6:47 PM
cavalcadewhimsy.bsky.social
The ENT actually acknowledged that #hypermobilitysyndrome causes eustachian tube dysfunction! Only been saying that for ten years... 🙄
cavalcadewhimsy.bsky.social DeinGesicht 🎲 @cavalcadewhimsy.bsky.social · Feb 20
Ears going mad earlier listening to music, trapped in the shower unable to turn it down. Looked up what the ENT said last time I was in.... "diplacusis dysharmonica" is a lovely word, but caused by knackered eardrum so I've sensorineural AND conductive #HearingLoss now (since early teens ffs) 👎🏼🦻🏻
February 20, 2026 at 10:14 PM
cavalcadewhimsy.bsky.social
Almost pulled my hip out putting shoes on while upright. Either hitting "that age" or a gentle reminder of #hypermobilitysyndrome. Doesn't happen often since WFH but then shit like that pops up (or out....) 😖 #chronicWTF
February 7, 2025 at 9:09 PM
cavalcadewhimsy.bsky.social
Question on #thechase just now. Still got it 💪🏼 #hypermobilitysyndrome
December 22, 2024 at 10:47 AM
meactmaryland.bsky.social
The objectives of this #MedEd webinar:
1) Background on EDS and Joint Hypermobility
2) Association between JH/EDS and Pediatric ME/CFS
3) Reasons to assess for JH/EDS in the clinic care and research studies of Pediatric ME/CFS
#HypermobilitySyndrome
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(Alt ID: Graphic in blue/ yellow/ and white sharing info about the webinar “Joint Hypermobility/EDS in Pediatric ME/CFS” which launched on October 23 at 1 pm ET. The graphic also lists things you will learn and shares that it will be facilitated by #MEAction Maryland. Those are also listed in this post. #TeachMETreatME logo is in the bottom corner. This series will be available online at youtube.com/@MEActmaryland )
November 12, 2024 at 9:23 PM