#Orthostaticintolerance
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tomkindlon.bsky.social
Unfortunately for some people with mobility issues, problems being upright (#OrthostaticIntolerance) mean they can't use traditional #wheelchairs or if they do, they can't be upright for long. This looks a interesting idea!

#Disability #Spoonie #MEcfs #Bedbound #SevereME

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December 14, 2024 at 10:40 PM
batemanhornecenter.bsky.social
Check out The Basics: Orthostatic Intolerance with Clayton Powers, DPT! Learn about OI, its symptoms, and tips for pacing upright activities.

Watch now: bit.ly/3W9TzNG
#OrthostaticIntolerance #BatemanHorneCenter #ChronicIllness #PatientEducation
January 10, 2025 at 3:36 AM
tomkindlon.bsky.social
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With my feet up and on my cushion. I find I can sit up longer using both.

#MEcfs #OrthostaticIntolerance
Photo of 3 people sitting down
May 22, 2026 at 5:42 PM
loriinreallife.bsky.social
I’m having a rough day. #orthostaticintolerance #POTS #sjogrens #autonomicneuropathy
March 18, 2025 at 12:54 PM
wearlumia.bsky.social
Happy Valentine’s Day from all of us at Lumia Health. You light up our life!
#wearlumia
#wearable #stat #pots #longcovid #pwme #orthostaticintolerance #lumia #fainting #medsky #chronicillness #brainfog #posturalorthoststictachycardiasyndome #dysautonomia #neuropathy #synuclein
February 15, 2025 at 2:32 AM
spoonieresources.bsky.social
"[Cerebral blood flow] is reduced in ME/CFS and [orthostatic intolerance] alone and having both conditions comorbidly amplifies CBF reductions. Therefore, observing CBF changes in ME/CFS with and without OI may be important in monitoring disease severity."

#MECFS #OrthostaticIntolerance
tomkindlon.bsky.social Tom Kindlon @tomkindlon.bsky.social · Jun 6
Mapping cerebral blood flow in myalgic encephalomyelitis/chronic fatigue syndrome (ME/CFS) and orthostatic intolerance: insights from a systematic review

link.springer.com/article/10.1...

Screenshot from AMMES May 2026 Newsletter

#MEcfs #OrthostaticIntolerance
Image of a brain in different colours with the following text Mapping cerebral blood flow in myalgic encephalomyelitis/chronic fatigue syndrome (ME/CFS) and orthostatic intolerance: insights from a systematic review Cerebral Blow Flow is reduced in ME/CFS and OI alone and having both conditions comorbidly amplifies CBF reductions. Therefore, observing CBF changes in ME/CFS with and without OI may be important in monitoring disease severity. Read more here>>
June 7, 2026 at 11:45 AM
wearlumia.bsky.social
Lumia’s new Live Mode feature can power new dimensions of self discovery! ✨ Learn what raises or drops the blood flow to your head, to better self-manage #chronicillness like #pots #dysautonomia #syncope #longcovid #dysautonomia #orthostaticintolerance #peripheralneuropathy #pwme #sjogrens
jessamyn-ann.bsky.social jessamyn-ann.bsky.social @jessamyn-ann.bsky.social · Feb 18
Here I’m doing a live demonstration of what it’s like to live with POTS (or other forms of OI) using my Lumia. We look fine on the outside, but this is what’s happening inside. Remember blue is my HR and gray is blood flow to my head. Note: Lumia is not a medical device.
#wearlumia #pots #mecfs
February 18, 2025 at 8:14 PM
liegenddemo.bsky.social
Das ist ein Verlust, um den wir trauern 💙

#Trauergang #LiegendDemo
#MECFS #longcovid #pcs #mecfsawareness #MEAwareness #MillionsMissing #demonstration #MyalgischeEnzephalomyelitis  #GDB #Pflegegrad #belastungsintoleranz #chronicillness #cfs #orthostaticintolerance #pots #pacing
November 14, 2023 at 7:14 PM
wearlumia.bsky.social
Exciting to see the first home stand tests w/ the Lumia Health wearable. Data is not for medical use. Lumia can help people self-manage symptoms of #orthostaticintolerance and adhere to healthy lifestyle guidelines from their doctor. #pots #longcovid #pwME #chronicillness #dizziness #medsky
jessamyn-ann.bsky.social jessamyn-ann.bsky.social @jessamyn-ann.bsky.social · Feb 11
I was diagnosed with Dysautonomia/POTS via a tilt table test w/ my cardiologist, but I had never done a “5 Minute Stand Test” at home. 5 minutes laying, then 5 minutes standing, then 5 minutes laying. Proof is in the pudding, as they say. Textbook POTS right here.
#dysautonomia #pots #wearlumia
February 12, 2025 at 12:59 AM
batemanhornecenter.bsky.social
It’s POTS Awareness Month!
#OrthostaticIntolerance (OI) includes #POTS, orthostatic hypotension & more. Our OI Overview covers evaluation (Passive Standing Test, EKG), lifestyle approaches, meds, and further resources.
🔗 https://bit.ly/4pCeOoA
#POTSAwarenessMonth #Dysautonomia #MERC
Orthostatic Intolerance Overview with resources for individuals, caregivers, and healthcare providers. Download at BatemanHorneCenter.org.
October 29, 2025 at 5:23 PM
tomkindlon.bsky.social
"Orthostatic Intolerance" (5 pages)

batemanhornecenter.org/wp-content/u...

I would prefer a separate document for ME/CFS without any mention of exercise but sharing as has lots of other suggestions

#OI #OrthostaticIntolerance #MEcfs #CFS #PwME
Screenshot of most of page 1
July 12, 2024 at 7:56 PM
liegenddemo.bsky.social
#MECFS #PostCovid #longcovid #pcs #longcovidsyndrom #MEAwareness #MillionsMissing #demonstration  #GDB #Pflegegrad #eppsteinbarrvirus #postvac #cci #cranialcervicalinstability #mcas #belastungsintoleranz #mitochondiraldysfunction #chronicillness #cfs #orthostaticintolerance #pots #chronicwarrior
November 9, 2023 at 8:16 PM
meactmaryland.bsky.social
KEY POINTS (2/3)
~ Many of these anatomic problems can present with fatigue & orthostatic intolerance as prominent problems, overlapping with ME

~Connective tissue laxity is a risk factor for both ME & for many neuroanatomic abnormalities

#orthostaticintolerance
#connectivetissue #laxity
December 9, 2025 at 6:44 AM
openmedf.bsky.social
OMF's Melbourne ME/CFS Collaboration published a paper on the results of a systematic review looking at cerebral blood flow in #MECFS and #orthostaticintolerance (OI). 118 studies, including over 9000 participants, were incorporated in the systematic review.

ow.ly/QZjw50WNfjt
Mapping cerebral blood flow in myalgic encephalomyelitis/chronic fatigue syndrome (ME/CFS) and orthostatic intolerance: insights from a systematic review - Journal of Translational Medicine
Background Myalgic encephalomyelitis/chronic fatigue syndrome (ME/CFS) is a complex and debilitating condition with a large proportion of patients that experience orthostatic intolerance (OI). This sy...
ow.ly
August 28, 2025 at 2:04 PM
tomkindlon.bsky.social
New UK study using the NASA lean test (rather than a tilt table):

Prevalence of #orthostaticintolerance in Long #Covid clinic patients–A multicentre observational study

www.medrxiv.org/content/10.1...

"More than half of #longcovid patients experienced OI symptoms during NLT"

#PostCovid
Screenshot of abstract
December 19, 2023 at 8:43 PM
openmedf.bsky.social
🌟 Struggling with dizziness or rapid heart rate when upright? The OI Overview helps patients & providers recognize & manage Orthostatic Intolerance.

📘 loom.ly/izkdURE
💙 Donate to MERC: www.omf.ngo?form=merc

#POTS #MECFS #LongCOVID #OrthostaticIntolerance @batemanhornecenter.bsky.social
Image showing tips for managing orthostatic intolerance: Drink 3+ liters of water daily, 7–10g salt/day (with medical advice), Wear compression garments, Follow an individualized diet, Raise head of bed 3–6 inches.
April 22, 2025 at 5:40 PM
tomkindlon.bsky.social
Mapping cerebral blood flow in myalgic encephalomyelitis/chronic fatigue syndrome (ME/CFS) and orthostatic intolerance: insights from a systematic review

link.springer.com/article/10.1...

Screenshot from AMMES May 2026 Newsletter

#MEcfs #OrthostaticIntolerance
Image of a brain in different colours with the following text Mapping cerebral blood flow in myalgic encephalomyelitis/chronic fatigue syndrome (ME/CFS) and orthostatic intolerance: insights from a systematic review Cerebral Blow Flow is reduced in ME/CFS and OI alone and having both conditions comorbidly amplifies CBF reductions. Therefore, observing CBF changes in ME/CFS with and without OI may be important in monitoring disease severity. Read more here>>
June 6, 2026 at 6:14 PM
tomkindlon.bsky.social
New US research:

Phenylephrine Alters Phase Synchronization between Cerebral Blood Velocity and Blood Pressure in #ChronicFatigueSyndrome with #OrthostaticIntolerance

journals.physiology.org/doi/abs/10.1...

#MEcfs #CFS #PwME #POTS
Screenshot of abstract
April 29, 2024 at 1:37 PM
tomkindlon.bsky.social
4-Minute video
"The Basics: Orthostatic Intolerance (OI)" (April 2024)

www.youtube.com/watch?v=Gh4v...

#OI #OrthostaticIntolerance #MEcfs #LongCovid #PwME #POTS

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THE Basics FOR Patients Orthostatic Intolerance with Clayton Powers, DPT MERC Bateman Horne Center RESEARCH | CLINICAL CARE | EDUCATION Medical Education Resource Center
June 29, 2024 at 4:58 PM
julesahouston.bsky.social
My copy of "Living Well with #OrthostaticIntolerance: A Guide to Diagnosis & Treatment" has just arrived! Now to read. #POTS #Dysautonomia #OI #MECFS #LongCovid #Fibromyalgia #Lyme #EDS #Myalgicencephalomyelitis #pwME
A book cover titled "Living Well with Orthostatic Intolerance: A Guide to Diagnosis and Treatment" by Peter C. Rowe, MD, resting on an oak table with an amber candle holder in the background.
August 24, 2024 at 10:41 AM
valebodi.bsky.social
indicator of endothelial dysfunction – when the lining of blood vessels (endothelium) does not work properly.
Via @meresearchuk.bsky.social
#MECFS #CBVDysfunction #OrthostaticIntolerance #NeuroCognitiveDysfunction in #PwME even in those w/o #PoTS
January 25, 2025 at 3:57 PM
openmedf.bsky.social
Participants may qualify if:

▪ You are male or female, between 18 and 65 years of age (inclusive).
▪ You have not been on #LDN or #Mestinon.
▪ Meet National Academy of Medicine Criteria (NAM), Canadian Consensus Criteria (CCC), and demonstrate #orthostaticintolerance for diagnosis of #MECFS. (2/4)
January 29, 2025 at 4:33 PM
alex-wears-crocs.bsky.social
Don't run before you can walk... and don't walk before you can stand, don't stand before you can sit, and don't sit before you can be propped up in bed with your legs up without crashing from it. #babysteps
#severeME #POTS #orthostaticintolerance #chronicillness #spoonie #wheelchairuser #disabled
February 5, 2026 at 2:00 AM
ellybrosius.bsky.social
Quick pose bcI don’t want to stand still when don’t have to! #OrthostaticIntolerance

Superman stance 4 @renegaderesearch.bsky.social #InnovationInn with muscle @MoxyMonitor. Hoping 4 good PEM data

SOS bc #millionsmissing need more help, mild- #severeME @meactnet.bsky.social

#severeMEday #MECFS
Woman with arms akimbo holding a black handkerchief with Renegade Research logo over a SOS #MillionsMissing black t-shirt. The woman is wearing orange shorts and standing on a deck with flowers behind her and trees across a railing.
August 8, 2026 at 7:37 PM
ginkgotreehealth.bsky.social
My husband bought me this cute mug for warm drinks. Since I need lots of electrolytes and salt I used it with bullion! 1tsp of this has 700mg sodium. It’s nice and small so not too heavy to carry. It is Owala brand.

#orthostaticintolerance #dysautonomia #chronicillness #healthcoach #healthcoaching
November 16, 2024 at 6:41 PM