"Long Covid is still here. I know – my life came to a stop because of it"
"With more than 200 possible symptoms, long Covid isn’t easy to treat and diagnose. Rolled-back federal funding has led longhaulers to ask: is this all in my head?"
#LongCOVID
"With more than 200 possible symptoms, long Covid isn’t easy to treat and diagnose. Rolled-back federal funding has led longhaulers to ask: is this all in my head?"
#LongCOVID
Long Covid is still here. I know – my life came to a stop because of it
With more than 200 possible symptoms, long Covid isn’t easy to treat and diagnose. Rolled-back federal funding has led longhaulers to ask: is this all in my head?
www.theguardian.com
February 18, 2026 at 11:36 PM
"Long Covid is still here. I know – my life came to a stop because of it"
"With more than 200 possible symptoms, long Covid isn’t easy to treat and diagnose. Rolled-back federal funding has led longhaulers to ask: is this all in my head?"
#LongCOVID
"With more than 200 possible symptoms, long Covid isn’t easy to treat and diagnose. Rolled-back federal funding has led longhaulers to ask: is this all in my head?"
#LongCOVID
What #longhaulers wish you knew: In our survey, longhaulers shared their thoughts on how friends & family can help during the holidays:
1/3
#longcovid #covidisntover #covidisairborne #maskup
1/3
#longcovid #covidisntover #covidisairborne #maskup
December 14, 2024 at 7:25 PM
What #longhaulers wish you knew: In our survey, longhaulers shared their thoughts on how friends & family can help during the holidays:
1/3
#longcovid #covidisntover #covidisairborne #maskup
1/3
#longcovid #covidisntover #covidisairborne #maskup
Today we launched the Living with Long COVID exhibition @museumofvan.bsky.social. In 2023 we conducted a study in which we heard from longhaulers that this invisible illness needs more awareness and attention. This exhibition was co-created with longhaulers to do just that. On view until March 2026
A new exhibition at the @museumofvan.bsky.social, co-produced by FHS, invites visitors into the often-invisible world of those living with the life-altering effects of COVID-19.
The exhibit runs from Oct 4, 2025 to March 22, 2026
🔗: bit.ly/4pUPA4V
#SFU #SFUResearch #MOV #LongCOVID #KT #KM
/1
The exhibit runs from Oct 4, 2025 to March 22, 2026
🔗: bit.ly/4pUPA4V
#SFU #SFUResearch #MOV #LongCOVID #KT #KM
/1
October 5, 2025 at 4:35 AM
Today we launched the Living with Long COVID exhibition @museumofvan.bsky.social. In 2023 we conducted a study in which we heard from longhaulers that this invisible illness needs more awareness and attention. This exhibition was co-created with longhaulers to do just that. On view until March 2026
What longhaulers (=ppl with long covid) wish from their family and friends during the holidays
- Testing and Masking
- Stop Pretending Everything Is Normal: Educate yourself on Covid and Long Covid. Acknowledge the ongoing pandemic instead of acting like life is back to normal.
- Respect Their Agency: Accept their decision not to attend an event without pressuring them to participate.
2/3
- Stop Pretending Everything Is Normal: Educate yourself on Covid and Long Covid. Acknowledge the ongoing pandemic instead of acting like life is back to normal.
- Respect Their Agency: Accept their decision not to attend an event without pressuring them to participate.
2/3
December 16, 2024 at 1:15 PM
What longhaulers (=ppl with long covid) wish from their family and friends during the holidays
in general the way liberal longhaulers (and people influenced by them) talk is revealing here. getting sick is seen as a punishment for misbehavior. implicitly it's a tool for the discipline and control of labor, for biopower. it's another baying wolf that precarious workers can be thrown to
July 6, 2025 at 4:35 AM
in general the way liberal longhaulers (and people influenced by them) talk is revealing here. getting sick is seen as a punishment for misbehavior. implicitly it's a tool for the discipline and control of labor, for biopower. it's another baying wolf that precarious workers can be thrown to
“Our country is sick.
Covid broke the world. “ @exceedhergrasp1.bsky.social at Covid LongHaulers Against Fascism #HandsOff
Covid broke the world. “ @exceedhergrasp1.bsky.social at Covid LongHaulers Against Fascism #HandsOff
April 5, 2025 at 6:06 PM
“Our country is sick.
Covid broke the world. “ @exceedhergrasp1.bsky.social at Covid LongHaulers Against Fascism #HandsOff
Covid broke the world. “ @exceedhergrasp1.bsky.social at Covid LongHaulers Against Fascism #HandsOff
🌍💨 Join the #SaferAir4All Campaign!
Let’s make the air safer for all! 💙
#longhaulers #longcovidawareness #longcovidawarenessday #indoorairquality #CleanAirMatters #HealthcareSafety #cleanair #pureair #Healthcare #HealthcareHeroes #health
Let’s make the air safer for all! 💙
#longhaulers #longcovidawareness #longcovidawarenessday #indoorairquality #CleanAirMatters #HealthcareSafety #cleanair #pureair #Healthcare #HealthcareHeroes #health
March 13, 2025 at 12:39 PM
🌍💨 Join the #SaferAir4All Campaign!
Let’s make the air safer for all! 💙
#longhaulers #longcovidawareness #longcovidawarenessday #indoorairquality #CleanAirMatters #HealthcareSafety #cleanair #pureair #Healthcare #HealthcareHeroes #health
Let’s make the air safer for all! 💙
#longhaulers #longcovidawareness #longcovidawarenessday #indoorairquality #CleanAirMatters #HealthcareSafety #cleanair #pureair #Healthcare #HealthcareHeroes #health
🚨 NEW CAMPAIGN ALERT: #SafeAir4All 🚨
SHH-UK is launching our 2025 campaign...
👉 Like, Save & Share to spread the word!
#longhaulers #longcovidawareness #longcovidawarenessday #indoorairquality #HealthcareSafety #healthcare #HealthcareHeroes #health
SHH-UK is launching our 2025 campaign...
👉 Like, Save & Share to spread the word!
#longhaulers #longcovidawareness #longcovidawarenessday #indoorairquality #HealthcareSafety #healthcare #HealthcareHeroes #health
March 13, 2025 at 8:54 AM
🚨 NEW CAMPAIGN ALERT: #SafeAir4All 🚨
SHH-UK is launching our 2025 campaign...
👉 Like, Save & Share to spread the word!
#longhaulers #longcovidawareness #longcovidawarenessday #indoorairquality #HealthcareSafety #healthcare #HealthcareHeroes #health
SHH-UK is launching our 2025 campaign...
👉 Like, Save & Share to spread the word!
#longhaulers #longcovidawareness #longcovidawarenessday #indoorairquality #HealthcareSafety #healthcare #HealthcareHeroes #health
For longhaulers who can handle a lot of screen time, here’s something to do to pass the time when you are feeling restless but have to physically rest!
#longcovid
#longcovid
Kid was sick for a lot of this month so couldn't get his volunteer hours in, so I looked for some online citizen science stuff he could do from home and found Beluga Bits, where you look at photos of belugas and log what you can see.
I'm completely engrossed and haven't been able to stop.
I'm completely engrossed and haven't been able to stop.
Zooniverse
The Zooniverse is the world’s largest and most popular platform for people-powered research.
www.zooniverse.org
December 8, 2024 at 4:15 AM
For longhaulers who can handle a lot of screen time, here’s something to do to pass the time when you are feeling restless but have to physically rest!
#longcovid
#longcovid
WHO working on 3 requests from longhaulers #longcovid
Dr.@mvankerkhove.bsky.social is a WHO epidemiologist leading global pandemic response, translating science into action, advocating continued recognition, research, support for long COVID worldwide.
#who #longhaulers
youtube.com/shorts/zt3Tu...
Dr.@mvankerkhove.bsky.social is a WHO epidemiologist leading global pandemic response, translating science into action, advocating continued recognition, research, support for long COVID worldwide.
#who #longhaulers
youtube.com/shorts/zt3Tu...
WHO working on 3 requests from longhaulers #longcovid
YouTube video by Long Covid The Answers
youtube.com
March 26, 2026 at 6:05 PM
WHO working on 3 requests from longhaulers #longcovid
Dr.@mvankerkhove.bsky.social is a WHO epidemiologist leading global pandemic response, translating science into action, advocating continued recognition, research, support for long COVID worldwide.
#who #longhaulers
youtube.com/shorts/zt3Tu...
Dr.@mvankerkhove.bsky.social is a WHO epidemiologist leading global pandemic response, translating science into action, advocating continued recognition, research, support for long COVID worldwide.
#who #longhaulers
youtube.com/shorts/zt3Tu...
Longhaulers vs bandwagoners.. Definitely identifiable differences.
December 12, 2025 at 6:00 AM
Longhaulers vs bandwagoners.. Definitely identifiable differences.
Amsterdam - We're ready!
ISLC-PAIS Conference. Excited to see what comes of this new collaboration for longhaulers!
#longcovid #longcovidtheanswers #longhauler #amsterdam
@RobWüst @DrMark_Faghy
ISLC-PAIS Conference. Excited to see what comes of this new collaboration for longhaulers!
#longcovid #longcovidtheanswers #longhauler #amsterdam
@RobWüst @DrMark_Faghy
August 25, 2026 at 6:48 PM
Amsterdam - We're ready!
ISLC-PAIS Conference. Excited to see what comes of this new collaboration for longhaulers!
#longcovid #longcovidtheanswers #longhauler #amsterdam
@RobWüst @DrMark_Faghy
ISLC-PAIS Conference. Excited to see what comes of this new collaboration for longhaulers!
#longcovid #longcovidtheanswers #longhauler #amsterdam
@RobWüst @DrMark_Faghy
With more than 200 possible symptoms, long Covid isn’t easy to treat and diagnose.
Rolled-back federal funding has led longhaulers to ask: is this all in my head?
Rolled-back federal funding has led longhaulers to ask: is this all in my head?
Long Covid is still here. I know – my life came to a stop because of it
www.theguardian.com
February 18, 2026 at 1:59 PM
With more than 200 possible symptoms, long Covid isn’t easy to treat and diagnose.
Rolled-back federal funding has led longhaulers to ask: is this all in my head?
Rolled-back federal funding has led longhaulers to ask: is this all in my head?
Let's stop making fresh longhaulers.
Clean air in hospitals, schools, public transport/transit, workplaces, venues, prisons, clinics, concert venues, pharmacies, kindergartens, nurseries...
Clean air in hospitals, schools, public transport/transit, workplaces, venues, prisons, clinics, concert venues, pharmacies, kindergartens, nurseries...
November 21, 2024 at 4:45 PM
Let's stop making fresh longhaulers.
Clean air in hospitals, schools, public transport/transit, workplaces, venues, prisons, clinics, concert venues, pharmacies, kindergartens, nurseries...
Clean air in hospitals, schools, public transport/transit, workplaces, venues, prisons, clinics, concert venues, pharmacies, kindergartens, nurseries...
At least over the last 6 months, there wasn't much of an improvement.
In the group of longhaulers, I am not even a bad case. I can have quality of life, even though I have to say NO to so many things (which stings every time).
In the group of longhaulers, I am not even a bad case. I can have quality of life, even though I have to say NO to so many things (which stings every time).
June 10, 2025 at 1:00 PM
At least over the last 6 months, there wasn't much of an improvement.
In the group of longhaulers, I am not even a bad case. I can have quality of life, even though I have to say NO to so many things (which stings every time).
In the group of longhaulers, I am not even a bad case. I can have quality of life, even though I have to say NO to so many things (which stings every time).
📢 Long COVID Awareness Day: Know the Facts!
Share to raise awareness!
#SafeAir4All #masksinhealthcare #cleanairinhealthcare #longhaulers #longcovidawareness #longcovidawarenessday #indoorairquality #CleanAirMatters #HealthcareSafety #Healthcare #HealthcareHeroes #health
Share to raise awareness!
#SafeAir4All #masksinhealthcare #cleanairinhealthcare #longhaulers #longcovidawareness #longcovidawarenessday #indoorairquality #CleanAirMatters #HealthcareSafety #Healthcare #HealthcareHeroes #health
March 15, 2025 at 1:21 PM
📢 Long COVID Awareness Day: Know the Facts!
Share to raise awareness!
#SafeAir4All #masksinhealthcare #cleanairinhealthcare #longhaulers #longcovidawareness #longcovidawarenessday #indoorairquality #CleanAirMatters #HealthcareSafety #Healthcare #HealthcareHeroes #health
Share to raise awareness!
#SafeAir4All #masksinhealthcare #cleanairinhealthcare #longhaulers #longcovidawareness #longcovidawarenessday #indoorairquality #CleanAirMatters #HealthcareSafety #Healthcare #HealthcareHeroes #health
Looking for studies about the suspected impacts of Long Covid on ADHD & autism. Pls circulate widely to gather as many as we can (if they exist). TIA
#LongCovid #LongHaulers #ADHD #MedTwitter #autism #neurodivergent #mecfs #neisvoid #chronicillness #pwd #Disability #dysautonomia
#LongCovid #LongHaulers #ADHD #MedTwitter #autism #neurodivergent #mecfs #neisvoid #chronicillness #pwd #Disability #dysautonomia
December 13, 2023 at 5:16 PM
Looking for studies about the suspected impacts of Long Covid on ADHD & autism. Pls circulate widely to gather as many as we can (if they exist). TIA
#LongCovid #LongHaulers #ADHD #MedTwitter #autism #neurodivergent #mecfs #neisvoid #chronicillness #pwd #Disability #dysautonomia
#LongCovid #LongHaulers #ADHD #MedTwitter #autism #neurodivergent #mecfs #neisvoid #chronicillness #pwd #Disability #dysautonomia
Adults and children.
Long Covid is real.
Overcoming Grief Few Understand... Long Covid video, finally with English voice-over! Thx to #YouTube.
🌍 For all Long Covid longhaulers, free to watch: youtu.be/W_OxdC0t0Pk
Please promote!
#LongCovid #LongHaulers #ChronicFatigue #PostCovid #Grief
Long Covid is real.
Overcoming Grief Few Understand... Long Covid video, finally with English voice-over! Thx to #YouTube.
🌍 For all Long Covid longhaulers, free to watch: youtu.be/W_OxdC0t0Pk
Please promote!
#LongCovid #LongHaulers #ChronicFatigue #PostCovid #Grief
My Long Covid Story as a patient | Experience Overcoming Grief Few Understand (Post Covid dokument)
YouTube video by Gerben G van Dijk
youtu.be
October 17, 2025 at 10:46 PM
Adults and children.
Long Covid is real.
Overcoming Grief Few Understand... Long Covid video, finally with English voice-over! Thx to #YouTube.
🌍 For all Long Covid longhaulers, free to watch: youtu.be/W_OxdC0t0Pk
Please promote!
#LongCovid #LongHaulers #ChronicFatigue #PostCovid #Grief
Long Covid is real.
Overcoming Grief Few Understand... Long Covid video, finally with English voice-over! Thx to #YouTube.
🌍 For all Long Covid longhaulers, free to watch: youtu.be/W_OxdC0t0Pk
Please promote!
#LongCovid #LongHaulers #ChronicFatigue #PostCovid #Grief
Redefining joy when you have Long COVID - Gez Medinger shares the shift he's made
#longcovid #longhaulers
#longcovid #longhaulers
September 13, 2025 at 1:31 PM
Redefining joy when you have Long COVID - Gez Medinger shares the shift he's made
#longcovid #longhaulers
#longcovid #longhaulers
It's life for all us longhaulers :(
April 21, 2026 at 11:43 AM
It's life for all us longhaulers :(
Michael, I've respected your work and have followed you for a few years now. When it comes to COVID, though, you talk like longhaulers/C-19 cautious/etc are hypochondriacs are asking too much of others. I'd give anything to have my health back. I didn't choose to have to beg others to care an iota.
September 3, 2025 at 2:56 AM
Michael, I've respected your work and have followed you for a few years now. When it comes to COVID, though, you talk like longhaulers/C-19 cautious/etc are hypochondriacs are asking too much of others. I'd give anything to have my health back. I didn't choose to have to beg others to care an iota.
Ditto! While combating poor health from Covid19 longhaulers. The combination is truly terrifying!🤬
April 20, 2025 at 1:11 AM
Ditto! While combating poor health from Covid19 longhaulers. The combination is truly terrifying!🤬
Longhaulers.
December 27, 2025 at 4:10 AM
Longhaulers.
Covid Is Surging, So Remember To Protect That Important Bit Of Your Neck Just Under Your Chin.
August 4, 2025 at 9:36 PM