#nesvoid
you know what to do

Heads up #disabilityVoid #NESVoid:
Attn my followers: Please report this account (photo provided by me) for targeted harassment, privacy violations, and attempted doxing. This individual made a spreadsheet LIVE ON TWITCH of DISABLED INDIVIDUALS WITHOUT CONSENT to "collect data" and is actively putting lives at risk! REPORT!
January 7, 2025 at 5:03 AM
I haven’t thrown up in 5 days. First time in 21 years. I think this shit is working. All hail off-label meds. #NESvoid
August 30, 2025 at 6:01 AM
#DisabilityCommunity #NESVoid
Does anyone have recommendations for books on somatic therapy, somatic healing, CPTSD, etc that are #disability / #chronicillness friendly, non-gaslighty, trauma-informed etc?
December 7, 2025 at 7:42 PM
two good-ish days this week & now today i can barely even stay awake. i hate this.

#NESVoid
#fibromyalgia
#mecfs
June 20, 2025 at 2:04 AM
We removed the barriers and created an accessible space because resistance is for everyone, everywhere.

The *official* No Kings Accessible Rally will be a virtual event to protect our health, defend our democracy, and say NO KINGS.

Details: zurl.co/TXWd7
#NoKings #NoKings3 #Democracy #NK3VR
March 27, 2026 at 5:59 AM
Today I’m having the realization that I’m one of the “people” who gets checked on when the weather is bad and you need to protect people, plants, pets, pipes.

I do not like this reality. #NESVoid
January 13, 2024 at 7:46 PM
#Clinician's Roundtable with Tania Dempsey, MD on Mar-14

Dr. Dempsey will give a 45-minute lecture on #vector-borne illnesses often seen as co-infections in #MECFS and #LongCovid followed by a 15-minute Q&A.

us06web.zoom.us/webinar/regi...

#infectious #illness #medX #patientled #nesvoid #pwME
March 1, 2025 at 11:09 PM
I feel like Im stuck in purgatory.

I cant sleep in any way that brings rest.

I cant eat anything that doesnt make me feel awful.

I have to beg daily to survive power structures crushing me & never tally enough for medical needs or stability & have to move on from unmet needs constantly.

#NESVoid
Save Wylder & his loved ones? | Linktree
🏳️‍🌈43 🏳️‍⚧️He/They ♿Disabled ♾️AuDHD 🖖Geek 💜Surviving on kind donations🙏
linktr.ee
December 30, 2025 at 5:00 AM
Has anyone else who struggles to function without having to apply a heating pad every 10-30 minutes or so figured out any solutions?

#EDS #NESVoid
December 25, 2025 at 3:40 PM
Currently playing:
(stuff I can play on my phone bc Im stuck in bed when awake #NESVoid)

- Blue Protocol
- Genshin Impact
- UmaMasume
- Cats & Soup (all 3)
- Cat Mansion (mergy with cute story, got me with a version of lil match girl with a happy ending 🥹)
- Hero & A Garden (FAFO fable, but cute)
December 29, 2025 at 3:55 AM
Five years ago a rheumatologist said I didn’t have fibromyalgia. Today my doctor says I am ticking all the boxes for it. Also started the process of being evaluated for POTS. Being an advocate for one’s health is exhausting. #NESvoid #pwME #MECFS
April 6, 2026 at 10:59 PM
The two wolves inside of me today are one who wants to go spy on birds, one who needs to do laundry, and one whose legs hurt.

The wolves can’t count.
#NESvoid #pwME #AuDHD
March 22, 2026 at 6:26 PM
Okay, for once I am actually posting with a question mark and looking for sources.

Does anyone have any link to an #MCAS related study that discusses how taking two different second gen H1 antihistamines can work better than increasing the dose of one? (cont.)

#NESVoid #LongCovid
January 28, 2026 at 2:36 AM
Any advice on rest, pain management, or food from folks with the #POTS #MCAS #EDS trifecta is welcome, even if it doesn't quite fit for me. #NESVoid
December 30, 2025 at 5:06 AM
December 6, 2024 at 4:02 AM
I was hoping to get the tree up for Solstice but it didnt happen. Its out. We've been outting it together for 2 days because energy is so lacking...

It is wild to exist like this.

I feel like an Ent, but barely awake. #NESVoid
December 22, 2025 at 8:08 AM
#Adenomyosis #NESVoid

I'm tired of being tired.
I'm tired of being ruled by my fucking uterus!
I swear am going to lose my shit if this upcoming period isn't my last!

Waiting on this wait list is driving me stir crazy.

Can't take it anymore!!
Hurry up hysterectomy 😭
February 3, 2025 at 7:38 PM
February 23, 2025 at 11:11 PM
Am I craving sweets because:

a. I need carbs/sugar because I barely ate today
b. I’m flirting w/a crash & my body is looking for emergency energy
c. I’m after the dopamine/mood boost
d. All of the above

#nesvoid
July 4, 2025 at 3:20 AM
So far, I’ve been Dx’d w/ essential hypertension, hypercalcemia, & a high PTH level (but we don’t know why, yet. Endocrinology in 10 days.)

New, this is all new.

Coincidence or causation? #LongCovid? #PostViralComplications?
#NESVoid 2/2
November 12, 2023 at 2:53 AM
Y'all, my new doctor is so nice.

I feel listened to and taken seriously, she doesn't talk down to me, we're making plans and getting things done, and the nurses have been great too. What even is this, is it real? 😆

I might finally actually get the help I need.

#spoonie #NESvoid
November 2, 2023 at 9:42 PM
Good Trouble Protest 7/17 - ONLINE
For those who cannot attend an in-person event, North Country NY Indivisible is hosting an on-line event! July 17th, 7:30 pm- 9:30 pm EDT. More info. and sign up here:
www.mobilize.us/john-lewis-a...

#goodtroubleliveson
#NESVoid
#MECFS
#LongCovid
GOOD TROUBLE LIVES ON · John Lewis Actions
Five years ago, we lost a giant. But Congressman John Lewis's spirit of "Good Trouble" – peaceful, nonviolent action to challenge injustice and create meaningful change – lives on in each of us. We'r...
www.mobilize.us
July 14, 2025 at 10:55 PM
I have both physio and massage therapy appts today. Either my body will have me extra, or some things will cancel out and I'll have the best sleep ever.

#NESVoid
November 14, 2024 at 9:26 PM
I'm too tired to go to all these doctors' appointments, on account of all the things I need to see the doctors for.

#NESVoid
December 1, 2023 at 5:04 PM
As selfish as it seems to some, every day I wake up now, I pray on that day I will get a call from the #gynaecologist office that there is a cancellation slot free for me to have my surgery sooner than later!!

#Adenomyosis #NESVoid
January 31, 2025 at 1:18 AM