This interview with @georgemonbiot.bsky.social has had almost 5,000 views since I posted it yesterday: www.youtube.com/watch?v=Maae...
Interview with George Monbiot about Guardian column on ME/CFS
YouTube video by David M Tuller
www.youtube.com
October 3, 2026 at 1:32 AM
A quick analysis that I’ve done previously, using just from what we know from public data…puts their earnings off the back of #pwME in the likely *billions*
Have shared the docs with George.
Have shared the docs with George.
October 2, 2026 at 7:48 PM
A quick analysis that I’ve done previously, using just from what we know from public data…puts their earnings off the back of #pwME in the likely *billions*
Have shared the docs with George.
Have shared the docs with George.
the SW, PW, TC et al. a free pass by wondering if perhaps they find it difficult to admit that they have been wrong and their pet theories harmful for ME. They will never admit it or be held accountable. They are a feature of how governments clamp down on disabled and ill people. In this case #pwME.
October 2, 2026 at 5:23 PM
the SW, PW, TC et al. a free pass by wondering if perhaps they find it difficult to admit that they have been wrong and their pet theories harmful for ME. They will never admit it or be held accountable. They are a feature of how governments clamp down on disabled and ill people. In this case #pwME.
Thank you @davetuller1.bsky.social and @georgemonbiot.bsky.social. As a lifelong and published pwME who has read the medical history and literature pre & post BPS & GET take over, which can be dated back to 1975, when Beard & McEvedy published their unsubstantiated paper, I think it is naive to give
October 2, 2026 at 5:23 PM
Thank you @davetuller1.bsky.social and @georgemonbiot.bsky.social. As a lifelong and published pwME who has read the medical history and literature pre & post BPS & GET take over, which can be dated back to 1975, when Beard & McEvedy published their unsubstantiated paper, I think it is naive to give
It's available on private prescription for pwME/LC. I have friends who it helped, though I found it horrendous. I'm on a semiglutide (Wegovy) for inflammation and after years of worsening ME have finally found something that helps, at least cognitively. There's clinical trials ongoing for both.
October 2, 2026 at 4:15 PM
It's available on private prescription for pwME/LC. I have friends who it helped, though I found it horrendous. I'm on a semiglutide (Wegovy) for inflammation and after years of worsening ME have finally found something that helps, at least cognitively. There's clinical trials ongoing for both.
Huge hugs Darren, as a pwME for many years who's also had my career robbed, I know your pain. The grief associated with comparing who you 'should' be to who you actually are can be intense and crippling but let yourself mourn and shriek "it's not sodding fair" when you need to. More huge hugs ❤️
October 2, 2026 at 4:10 PM
Huge hugs Darren, as a pwME for many years who's also had my career robbed, I know your pain. The grief associated with comparing who you 'should' be to who you actually are can be intense and crippling but let yourself mourn and shriek "it's not sodding fair" when you need to. More huge hugs ❤️
Sad to hear of the death of Dame Esther Rantzen yesterday. After writing about her daughter’s ME in the 90s, she received 4,000 letters from distressed patients and their families. She described treatment resembling methods “used in mediaeval days to punish witches”.
October 2, 2026 at 3:24 PM
Interview with George Monbiot about Guardian column on ME/CFS.
And decades later what has been repeatedly described by many as a “major medical scandal” continues.
#LongCOVID #PAIS #IACCIs #MEcfs #pwME
www.youtube.com/watch?v=Maae...
And decades later what has been repeatedly described by many as a “major medical scandal” continues.
#LongCOVID #PAIS #IACCIs #MEcfs #pwME
www.youtube.com/watch?v=Maae...
Interview with George Monbiot about Guardian column on ME/CFS
YouTube video by David M Tuller
www.youtube.com
October 2, 2026 at 3:22 PM
Interview with George Monbiot about Guardian column on ME/CFS.
And decades later what has been repeatedly described by many as a “major medical scandal” continues.
#LongCOVID #PAIS #IACCIs #MEcfs #pwME
www.youtube.com/watch?v=Maae...
And decades later what has been repeatedly described by many as a “major medical scandal” continues.
#LongCOVID #PAIS #IACCIs #MEcfs #pwME
www.youtube.com/watch?v=Maae...
@davetuller1.bsky.social @georgemonbiot.bsky.social
thank you both so much for all that you both continue to do for pwME
Whether there's a Public Enquiry or other type of enquiry it does need to take place urgently, the longer things continue as they are the more serious the situation becomes.
thank you both so much for all that you both continue to do for pwME
Whether there's a Public Enquiry or other type of enquiry it does need to take place urgently, the longer things continue as they are the more serious the situation becomes.
October 2, 2026 at 3:04 PM
@davetuller1.bsky.social @georgemonbiot.bsky.social
thank you both so much for all that you both continue to do for pwME
Whether there's a Public Enquiry or other type of enquiry it does need to take place urgently, the longer things continue as they are the more serious the situation becomes.
thank you both so much for all that you both continue to do for pwME
Whether there's a Public Enquiry or other type of enquiry it does need to take place urgently, the longer things continue as they are the more serious the situation becomes.
1,2
As a pwME & ex ambulance medical technician I understand the emotions that come with that. I had to resign due to health, discrimination within the service &home life. Due to my training & certificate being ‘in house’, the moment my resignation was accepted my qualification was void. 23 years
As a pwME & ex ambulance medical technician I understand the emotions that come with that. I had to resign due to health, discrimination within the service &home life. Due to my training & certificate being ‘in house’, the moment my resignation was accepted my qualification was void. 23 years
October 2, 2026 at 2:50 PM
1,2
As a pwME & ex ambulance medical technician I understand the emotions that come with that. I had to resign due to health, discrimination within the service &home life. Due to my training & certificate being ‘in house’, the moment my resignation was accepted my qualification was void. 23 years
As a pwME & ex ambulance medical technician I understand the emotions that come with that. I had to resign due to health, discrimination within the service &home life. Due to my training & certificate being ‘in house’, the moment my resignation was accepted my qualification was void. 23 years
Latest update from the CureME team, can be read here and covers a range of topics on current projects, recent publications and sample usage
eepurl.com/QShnc4nywr
#MyalgicEncephalomyelitisg #ChronicFatigueSyndrome #MEcfs #CFS #PwME
eepurl.com/QShnc4nywr
#MyalgicEncephalomyelitisg #ChronicFatigueSyndrome #MEcfs #CFS #PwME
Latest CureME team updates
eepurl.com
October 2, 2026 at 2:37 PM
Latest update from the CureME team, can be read here and covers a range of topics on current projects, recent publications and sample usage
eepurl.com/QShnc4nywr
#MyalgicEncephalomyelitisg #ChronicFatigueSyndrome #MEcfs #CFS #PwME
eepurl.com/QShnc4nywr
#MyalgicEncephalomyelitisg #ChronicFatigueSyndrome #MEcfs #CFS #PwME
Yes, it is. @georgemonbiot.bsky.social should be commended for the incredible advocacy he has done for #pwME. But at the same time, I have contacted him so often begging for the opportunity to explain the peer reviewed proof that validates all of those suffering patients and their families.
Comparison of transcriptional activation by corticosteroids of human MR (Ile-180) and haplotype (Val-180)
While the human mineralocorticoid receptor (MR) regulates electrolyte homeostasis through aldosterone activation of the kidney MR, the MR also is high…
www.sciencedirect.com
October 2, 2026 at 1:53 PM
Yes, it is. @georgemonbiot.bsky.social should be commended for the incredible advocacy he has done for #pwME. But at the same time, I have contacted him so often begging for the opportunity to explain the peer reviewed proof that validates all of those suffering patients and their families.
The American Psychological Association: The hidden harms of medical gaslighting
Read more: https://www.apa.org/monitor/2026/10/harms-medical-gaslighting
#pwME #MECFS #LongCovid #Fibromyalgia #Endometriosis #MedicalGaslighting
Read more: https://www.apa.org/monitor/2026/10/harms-medical-gaslighting
#pwME #MECFS #LongCovid #Fibromyalgia #Endometriosis #MedicalGaslighting
October 2, 2026 at 1:41 PM
The American Psychological Association: The hidden harms of medical gaslighting
Read more: https://www.apa.org/monitor/2026/10/harms-medical-gaslighting
#pwME #MECFS #LongCovid #Fibromyalgia #Endometriosis #MedicalGaslighting
Read more: https://www.apa.org/monitor/2026/10/harms-medical-gaslighting
#pwME #MECFS #LongCovid #Fibromyalgia #Endometriosis #MedicalGaslighting
Those bacme services are positioned as "specialist" and "clinical", both of which I reject. Anybody offering graded activity to pwME in 2026 is part of the problem, not a credible expert.
They're just manufacturing permission for bacme to carry on harming us with NHS approval.
They're just manufacturing permission for bacme to carry on harming us with NHS approval.
October 2, 2026 at 1:41 PM
Those bacme services are positioned as "specialist" and "clinical", both of which I reject. Anybody offering graded activity to pwME in 2026 is part of the problem, not a credible expert.
They're just manufacturing permission for bacme to carry on harming us with NHS approval.
They're just manufacturing permission for bacme to carry on harming us with NHS approval.
We have taken part in the Government consultation on fireworks and pyrotechnics, with the view that #pwME & Long Covid are at risk of deterioration & PEM due to the noise & sensory risk of fireworks.
Consultation closes: 7th Oct.
Details 👇
www.gov.uk/government/c...
Consultation closes: 7th Oct.
Details 👇
www.gov.uk/government/c...
Fireworks and pyrotechnics in the UK
We are seeking views on the regulation of pyrotechnics and fireworks in the UK.
www.gov.uk
October 2, 2026 at 1:26 PM
We have taken part in the Government consultation on fireworks and pyrotechnics, with the view that #pwME & Long Covid are at risk of deterioration & PEM due to the noise & sensory risk of fireworks.
Consultation closes: 7th Oct.
Details 👇
www.gov.uk/government/c...
Consultation closes: 7th Oct.
Details 👇
www.gov.uk/government/c...
The Guardian Letters: Specialist services are vital to help people with ME/CFS
"Readers respond to George Monbiot’s article about how those with myalgic encephalomyelitis, or chronic fatigue syndrome, have been failed by the health system"
Read: https://tinyurl.com/4vryfy2m
#pwME #MECFS
"Readers respond to George Monbiot’s article about how those with myalgic encephalomyelitis, or chronic fatigue syndrome, have been failed by the health system"
Read: https://tinyurl.com/4vryfy2m
#pwME #MECFS
October 2, 2026 at 10:38 AM
The Guardian Letters: Specialist services are vital to help people with ME/CFS
"Readers respond to George Monbiot’s article about how those with myalgic encephalomyelitis, or chronic fatigue syndrome, have been failed by the health system"
Read: https://tinyurl.com/4vryfy2m
#pwME #MECFS
"Readers respond to George Monbiot’s article about how those with myalgic encephalomyelitis, or chronic fatigue syndrome, have been failed by the health system"
Read: https://tinyurl.com/4vryfy2m
#pwME #MECFS
Thank you Tessa, whatever decision is made, it needs to happen urgently, the longer this situation continues, the worse it gets, more #pwME go from moderate to severe #ME & more people are diagnosed with ME.
Something radical & proportionate to the problem is necessary in order for it to change
Something radical & proportionate to the problem is necessary in order for it to change
October 2, 2026 at 10:14 AM
𝗢𝘃𝗲𝗿𝗽𝗿𝗶𝗸𝗸𝗲𝗹𝗶𝗻𝗴 𝗲𝗻 𝗿𝘂𝘀𝘁𝗺𝗼𝗺𝗲𝗻𝘁𝗲𝗻 𝗯𝗶𝗷 𝗠𝗘/𝗰𝘃𝘀
Veel mensen met ME/cvs zijn erg gevoelig voor prikkels. Geluid, licht, drukte, gesprekken, schermen of meerdere activiteiten tegelijk kunnen het lichaam en het brein snel overbelasten. Hierdoor kunnen klachten verergeren en kan herstel langer duren.
Veel mensen met ME/cvs zijn erg gevoelig voor prikkels. Geluid, licht, drukte, gesprekken, schermen of meerdere activiteiten tegelijk kunnen het lichaam en het brein snel overbelasten. Hierdoor kunnen klachten verergeren en kan herstel langer duren.
October 2, 2026 at 9:00 AM
𝗢𝘃𝗲𝗿𝗽𝗿𝗶𝗸𝗸𝗲𝗹𝗶𝗻𝗴 𝗲𝗻 𝗿𝘂𝘀𝘁𝗺𝗼𝗺𝗲𝗻𝘁𝗲𝗻 𝗯𝗶𝗷 𝗠𝗘/𝗰𝘃𝘀
Veel mensen met ME/cvs zijn erg gevoelig voor prikkels. Geluid, licht, drukte, gesprekken, schermen of meerdere activiteiten tegelijk kunnen het lichaam en het brein snel overbelasten. Hierdoor kunnen klachten verergeren en kan herstel langer duren.
Veel mensen met ME/cvs zijn erg gevoelig voor prikkels. Geluid, licht, drukte, gesprekken, schermen of meerdere activiteiten tegelijk kunnen het lichaam en het brein snel overbelasten. Hierdoor kunnen klachten verergeren en kan herstel langer duren.
It’s a wonderfully grey day here on my hillside. Just right for a much-needed restful day.
Wishing you the same if that’s what you’re in need of.
❤️🐌
#MorningView #MECFS #pwME #Wales #CreativeHabit
Wishing you the same if that’s what you’re in need of.
❤️🐌
#MorningView #MECFS #pwME #Wales #CreativeHabit
October 2, 2026 at 8:18 AM
It’s a wonderfully grey day here on my hillside. Just right for a much-needed restful day.
Wishing you the same if that’s what you’re in need of.
❤️🐌
#MorningView #MECFS #pwME #Wales #CreativeHabit
Wishing you the same if that’s what you’re in need of.
❤️🐌
#MorningView #MECFS #pwME #Wales #CreativeHabit
Reminder that the NHS website now allows us ME folk to book our flu jabs now.
#pwME #MECFS #ChronicPain #ChronicIllness #Disability #Disabled
#pwME #MECFS #ChronicPain #ChronicIllness #Disability #Disabled
October 2, 2026 at 6:54 AM
Reminder that the NHS website now allows us ME folk to book our flu jabs now.
#pwME #MECFS #ChronicPain #ChronicIllness #Disability #Disabled
#pwME #MECFS #ChronicPain #ChronicIllness #Disability #Disabled
We are delighted to bring you this new campaign at the request of our amazing caregiver volunteer Denise Lopez-Majano. Denise is turning 70 and wants to help spread kindness throughout our community - 70 acts of kindness by December 7th! DETAILS: https://ow.ly/1IPH50ZTE55
#pwMe #Caregiver
#pwMe #Caregiver
October 2, 2026 at 12:00 AM
We are delighted to bring you this new campaign at the request of our amazing caregiver volunteer Denise Lopez-Majano. Denise is turning 70 and wants to help spread kindness throughout our community - 70 acts of kindness by December 7th! DETAILS: https://ow.ly/1IPH50ZTE55
#pwMe #Caregiver
#pwMe #Caregiver
YouTuber @skallagrim.bsky.social with 1.63M followers has created a 31-minute video, “What ME/CFS is, and how it is wrecking me” with over 170,000 views
www.youtube.com/watch?v=GILP...
See next post for a few quick thoughts
#MyalgicEncephalomyelitis #ChronicFatigueSyndrome #MEcfs #PwME #CFS
1/
www.youtube.com/watch?v=GILP...
See next post for a few quick thoughts
#MyalgicEncephalomyelitis #ChronicFatigueSyndrome #MEcfs #PwME #CFS
1/
October 1, 2026 at 6:48 PM
(Santa Rosa, California, USA)
"Interested in Helping to Develop a Non-Invasive Way to Measure Blood Flow to the Head?"
#MEcfs #PwME #CFS #MyE #MyalgicEncephalomyelitis #ChronicFatigueSyndrome @sunsopeningband.bsky.social
"Interested in Helping to Develop a Non-Invasive Way to Measure Blood Flow to the Head?"
#MEcfs #PwME #CFS #MyE #MyalgicEncephalomyelitis #ChronicFatigueSyndrome @sunsopeningband.bsky.social
October 1, 2026 at 6:40 PM
(Santa Rosa, California, USA)
"Interested in Helping to Develop a Non-Invasive Way to Measure Blood Flow to the Head?"
#MEcfs #PwME #CFS #MyE #MyalgicEncephalomyelitis #ChronicFatigueSyndrome @sunsopeningband.bsky.social
"Interested in Helping to Develop a Non-Invasive Way to Measure Blood Flow to the Head?"
#MEcfs #PwME #CFS #MyE #MyalgicEncephalomyelitis #ChronicFatigueSyndrome @sunsopeningband.bsky.social
We're excited to bring you a new art workshop on Oct. 29 at 12 PM EST. We have a Halloween theme to celebrate spooky season! One of our wonderful volunteers & #pwME, Orion Romero, will host. https://ow.ly/2zFU50ZTl4T
All you need is pencil, paper & way to join online!
#art #spoonie #MECFS
All you need is pencil, paper & way to join online!
#art #spoonie #MECFS
October 1, 2026 at 5:50 PM
We're excited to bring you a new art workshop on Oct. 29 at 12 PM EST. We have a Halloween theme to celebrate spooky season! One of our wonderful volunteers & #pwME, Orion Romero, will host. https://ow.ly/2zFU50ZTl4T
All you need is pencil, paper & way to join online!
#art #spoonie #MECFS
All you need is pencil, paper & way to join online!
#art #spoonie #MECFS