#severemeawarenessday
#Liegenddemo Hannover - heute zum #SevereMEAwarenessDay auf dem Opernplatz.
Besonders die Stimmen schwerst Betroffener zum Liegendteil waren sehr bewegend ⤵️

Danke an das Team für die tolle Organisation!
Eine beeindruckende Demo mit tollen Beiträgen & über 300 Teilnehmern💪
1/
August 9, 2025 at 3:42 PM
Today is Severe ME Awareness Day. Every day since the 8th of June 2022 has been a severe ME day for me, a total of 1522 days so far without any end in sight. 1/7

#SevereMEAwarenessDay #MECFS #pwME #Photography
August 8, 2026 at 10:53 AM
#Liegenddemo Hannover - heute zum #SevereMEAwarenessDay auf dem Opernplatz.
Besonders die Stimmen schwerst Betroffener zum Liegendteil waren sehr bewegend ⤵️

Danke an das Team für die tolle Organisation!
Eine beeindruckende Demo mit tollen Beiträgen & über 300 Teilnehmern💪
1/
August 9, 2025 at 3:25 PM
When a healthy person's hopes and dreams are crushed, they often fall apart.

ME/CFS patient's hopes and dreams are crushed over and over again. Every. Single. Day.

1/2

#SevereMEAwarenessDay #SevereMEDay #MECFS
August 11, 2025 at 6:49 PM
Community video for Severe ME awareness day, please share and tag politicians and public figures who need to see this!

All participants IG handles tagged at the end 💙💙

#SevereME #SevereMEAwarenessDay #MECFS #MillionsMissing #UnitedForME
August 8, 2025 at 10:15 AM
August 8, 2025 at 8:20 AM
From @rorpreston.bsky.social
The economic cost from not educating, caring or researching #ME seriously over decades.
#SevereMEAwarenessDay
August 8, 2026 at 1:36 PM
quick accessibility note:

today is #SevereMEAwarenessDay

I typically don't repost images without Alt Text

However, a lot of people posting about ME today have ME, and severe energy limitations as a result

This can include not having the energy to include alt text
August 8, 2025 at 1:45 PM
From @dougieslifewithmecfs on IG:
Today is severe ME awareness day. If you can please show love and support to this post for all the people suffering and having suffered from severe ME.

#mecfs #mecfsawareness #severemeawareness #severemeawarenessday #spoonie
August 8, 2026 at 10:13 PM
(4/4)
Danke an die anonymen Helfer, dass ihr meine Aufklärungsarbeit so kraftvoll in die analoge Welt getragen habt! Ihr macht das Unsichtbare sichtbar.

#SevereMEAwarenessDay #RosaCaerulea #MECFS #SevereME #Esslingen #EsslingenCity #StummerProtest #Gedenken #LearnAboutME
August 7, 2026 at 10:31 PM
Die Zitate stammen aus den Erfahrungsberichten auf unserer Website:

🔗 www.fatigatio.de/me/cfs/leben...

Wir empfehlen außerdem das Heft Nr. 32 aus unserer Schriftenreihe: „Unser Leben mit ME/CFS“ – erhältlich im Shop auf www.fatigatio.de.

#StimmenAusDemDunkel #SevereMEAwarenessDay #MECFS
6/6
August 7, 2025 at 11:49 AM
August 8, 2026 at 4:36 PM
August 8, 2026 at 4:22 PM
Millions are still waiting for answers. Ahead of #SevereMEAwarenessDay, we’re reaffirming our support and using genetic insights to develop the first non-invasive mechanostic tests to accelerate diagnosis and improve care.

🔗 precisionlife.com/blog-support...

#MECFS #LongCOVID
August 6, 2025 at 11:00 AM
Also please check out this interview of Mila's mother @sabinehermisson.bsky.social in the Austrian format #arsboni on this year's #severeMEAwarenessDay: www.youtube.com/live/JnV5N-i...

It is in German, but you can turn on YouTube's automatic subtitle translations for many other languages.

7/
December 14, 2024 at 2:39 PM
2d ago was Severe ME Awareness Day.

Yesterday was, too.

So is today.

Tomorrow again, & the day after we’ll feel it with full force, cuz by then our friend PEM has our full attention.

For us, every day is #SevereMEAwarenessDay.

We're waiting. We're waiting for help. Every fucking day!

#mecfs
Today is Severe ME Awareness Day. Every day since the 8th of June 2022 has been a severe ME day for me, a total of 1522 days so far without any end in sight. 1/7

#SevereMEAwarenessDay #MECFS #pwME #Photography
August 10, 2026 at 8:59 AM
#severeME Day
Aug 8th is a day of Remembrance & a day of amplification

25% of those with #MyalgicEncephalomyelitis are Severe/Very Severe. Trapped in the Dark, the Void, the Wasteland

#SevereMEAwareness
#SevereMEAwarenessDay
#UnitedForME
August 7, 2025 at 6:03 PM
🖤 STIMMEN AUS DEM DUNKEL

Am 8. August ist internationaler #SevereMEAwarenessDay.

Ein Tag, der denjenigen gewidmet ist, die kaum noch gesehen werden – und oft nicht einmal mehr (für sich) selbst sprechen können.

Menschen mit der schweren Verlaufsform von ME/CFS leben in Isolation...⤵️
1/6
August 7, 2025 at 11:49 AM
Am heutigen #SevereMEAwarenessDay gibt bzw. gäbe es einiges zu sagen.

Von mir nur das: Auch hier public-health.meduniwien.ac.at/abteilung-pc... werden Ergebnisse kommen. Alle, die mit dieser Krankheitsschwere leben, diejenigen betreuen oder einen realistischen Blick auf #SevereMECFS und 1/2
Projekt: Adult patients with severe and very severe ME/CFS in Austria. A multi-perspective study. | MedUni Wien
public-health.meduniwien.ac.at
August 8, 2025 at 4:35 AM
Post this every year for #severeMEAwarenessDay, because we’re still waiting for biomedical research and treatment options. Scandalous!

#severeME #pwme
August 8, 2026 at 11:48 AM
If you read one thing for #SevereMEAwarenessDay, let it be this.

I have experienced “very severe” only in crashes, for brief periods. But that’s enough to know it is hell.

And this — the words and images — describe it perfectly.

Thank you, @nikosuvisto.bsky.social #SevereME #MECFS
On this Severe ME Awareness Day, I present to you my newest exhibition: “In the Absence of Light”. 1/3

www.aquietstorm.me/in-the-absen...

#MECFS #SevereME #SevereMEday #pwME #Photography
August 8, 2025 at 5:39 PM
Folgt uns für weitere Informationen. Wenn ihr mit in unsere WhatsAppgruppen möchtet, schreibt uns gerne an.

Liegenddemo.MECFS@gmail.com

#MECFS #PostCovid #PostVac #longcovid #Belastungsintoleranz #mecfsawareness #GDB #PEM #MEAwarenessDay #MillionsMissing #severemeawarenessday

gofund.me/16914589
January 2, 2024 at 4:42 PM