It’s ok to let a doctor’s office know you are a medically complex patient and to request that they book you for more than the regular amount of allotted time. #Zebra #RareDisease #MedicallyComplex #DisabledLife
January 10, 2026 at 3:23 AM
It’s ok to let a doctor’s office know you are a medically complex patient and to request that they book you for more than the regular amount of allotted time. #Zebra #RareDisease #MedicallyComplex #DisabledLife
Foreign trip 15 with our trachy daughter Freya. #Stargazing in the #desert #sharmelsheikh #Egypt #trachy #tracheostomy #bsl #signlanguage #medicallycomplextravel #trach #medicallycomplex #deaf #deafgirl #deaftravel
February 22, 2025 at 1:25 PM
Foreign trip 15 with our trachy daughter Freya. #Stargazing in the #desert #sharmelsheikh #Egypt #trachy #tracheostomy #bsl #signlanguage #medicallycomplextravel #trach #medicallycomplex #deaf #deafgirl #deaftravel
#disability #wheelchair #fyp #inclusion #medicallycomplex
IG acct info:
@pallisons_journey
Allison Kate
IG acct info:
@pallisons_journey
Allison Kate
June 30, 2026 at 9:28 PM
#disability #wheelchair #fyp #inclusion #medicallycomplex
IG acct info:
@pallisons_journey
Allison Kate
IG acct info:
@pallisons_journey
Allison Kate
Abled comfort is not more important than the disabled being heard and getting support.
Even casual ableism can have devastating consequences. Work on your empathy and compassion.
#ableism #spoonie #disability #chronicillness #medicallycomplex #chronicallyill #disabledmodel #disabledartist
Even casual ableism can have devastating consequences. Work on your empathy and compassion.
#ableism #spoonie #disability #chronicillness #medicallycomplex #chronicallyill #disabledmodel #disabledartist
December 9, 2025 at 8:42 PM
Abled comfort is not more important than the disabled being heard and getting support.
Even casual ableism can have devastating consequences. Work on your empathy and compassion.
#ableism #spoonie #disability #chronicillness #medicallycomplex #chronicallyill #disabledmodel #disabledartist
Even casual ableism can have devastating consequences. Work on your empathy and compassion.
#ableism #spoonie #disability #chronicillness #medicallycomplex #chronicallyill #disabledmodel #disabledartist
one of my most popular stickers, inspired by being NPO/tube fed for over 6 mo. in 2021 recovering from an esophageal-aortic fistula. No purchase needed, giving it a like on my shop is enough! #disabled #disability #tubie #zebra #medicallycomplex #ehlersdanlos #eds #heds www.etsy.com/listing/1739...
April 29, 2025 at 5:56 PM
one of my most popular stickers, inspired by being NPO/tube fed for over 6 mo. in 2021 recovering from an esophageal-aortic fistula. No purchase needed, giving it a like on my shop is enough! #disabled #disability #tubie #zebra #medicallycomplex #ehlersdanlos #eds #heds www.etsy.com/listing/1739...
Early morning surgery
- fingers crossed🤞
If successful, we'll be doing this procedure every few months
#Dysphagia
#Botox #Collagen
#MedicallyComplex
#22q11
- fingers crossed🤞
If successful, we'll be doing this procedure every few months
#Dysphagia
#Botox #Collagen
#MedicallyComplex
#22q11
October 7, 2025 at 12:13 PM
Early morning surgery
- fingers crossed🤞
If successful, we'll be doing this procedure every few months
#Dysphagia
#Botox #Collagen
#MedicallyComplex
#22q11
- fingers crossed🤞
If successful, we'll be doing this procedure every few months
#Dysphagia
#Botox #Collagen
#MedicallyComplex
#22q11
Pssst .... Update your/your child(ren)'s #MedicAlert bracelets, #EmergencyApp, #EmergencyContacts, etc. & back up your #MedicalRecords ( #DigitalCopies #Smart911 #PersonalFiles #PersonalDocuments)
#ChildrenWithDisabilities #DisabilityCommunity #SupportNeeds #MedicallyComplex #MedicallyFragile
#ChildrenWithDisabilities #DisabilityCommunity #SupportNeeds #MedicallyComplex #MedicallyFragile
a medical id button and a sos button are shown
ALT: a medical id button and a sos button are shown
media.tenor.com
March 19, 2025 at 4:22 AM
Pssst .... Update your/your child(ren)'s #MedicAlert bracelets, #EmergencyApp, #EmergencyContacts, etc. & back up your #MedicalRecords ( #DigitalCopies #Smart911 #PersonalFiles #PersonalDocuments)
#ChildrenWithDisabilities #DisabilityCommunity #SupportNeeds #MedicallyComplex #MedicallyFragile
#ChildrenWithDisabilities #DisabilityCommunity #SupportNeeds #MedicallyComplex #MedicallyFragile
Look at my new hat! 😍
A wonderful deaf/blind creator from IG made it for me.
IG: @blindlove.woodburning
#advocate #blind #deaf #medicallycomplex #nystagmus
A wonderful deaf/blind creator from IG made it for me.
IG: @blindlove.woodburning
#advocate #blind #deaf #medicallycomplex #nystagmus
January 26, 2025 at 3:55 PM
Look at my new hat! 😍
A wonderful deaf/blind creator from IG made it for me.
IG: @blindlove.woodburning
#advocate #blind #deaf #medicallycomplex #nystagmus
A wonderful deaf/blind creator from IG made it for me.
IG: @blindlove.woodburning
#advocate #blind #deaf #medicallycomplex #nystagmus
I’m not looking for anything, sympathy/suggestions. I’m mostly documenting what is going on for my own sake & maybe someone out there who is also facing medical questions without answers will find out they are not alone 🪡
#medicallycomplex #autoimmune #cervicalradiculopathy #degenerativediscdisease
#medicallycomplex #autoimmune #cervicalradiculopathy #degenerativediscdisease
April 19, 2026 at 1:11 AM
I’m not looking for anything, sympathy/suggestions. I’m mostly documenting what is going on for my own sake & maybe someone out there who is also facing medical questions without answers will find out they are not alone 🪡
#medicallycomplex #autoimmune #cervicalradiculopathy #degenerativediscdisease
#medicallycomplex #autoimmune #cervicalradiculopathy #degenerativediscdisease
There is a #DownSyndorme spectrum, as there is with other
#disabilities and chronic onditions/illnesses. Ignoring, dismissing, and side-stepping the most severe, and #MedicallyComplex individuals to promote only the most abled-body individuals with this diagnosis is also #eugenics.
#ProChoice
#disabilities and chronic onditions/illnesses. Ignoring, dismissing, and side-stepping the most severe, and #MedicallyComplex individuals to promote only the most abled-body individuals with this diagnosis is also #eugenics.
#ProChoice
June 7, 2026 at 2:33 AM
There is a #DownSyndorme spectrum, as there is with other
#disabilities and chronic onditions/illnesses. Ignoring, dismissing, and side-stepping the most severe, and #MedicallyComplex individuals to promote only the most abled-body individuals with this diagnosis is also #eugenics.
#ProChoice
#disabilities and chronic onditions/illnesses. Ignoring, dismissing, and side-stepping the most severe, and #MedicallyComplex individuals to promote only the most abled-body individuals with this diagnosis is also #eugenics.
#ProChoice
Yeesh, check out the internalized ableism in my comments section. I can't believe I've been having this conversation online since like 2014. It just never ends: youtu.be/aIjPpXbQb1U?...
The disabled don’t owe you comfort #ableism #spoonie #disability #chronicillness #medicallycomplex
YouTube video by New Hologram
youtu.be
December 10, 2025 at 6:00 AM
Yeesh, check out the internalized ableism in my comments section. I can't believe I've been having this conversation online since like 2014. It just never ends: youtu.be/aIjPpXbQb1U?...
January 27th, we will celebrate Leilani Reign. To honor her, we ask that you join us & wear your favorite Tiara and help bring awarenesss to the dangers of Pediatric Traumatic Brain Injury.
#inclusivity #Accessability #support #TBI #MedicallyComplex #SPED #accessability4all
#inclusivity #Accessability #support #TBI #MedicallyComplex #SPED #accessability4all
January 6, 2025 at 5:04 PM
January 27th, we will celebrate Leilani Reign. To honor her, we ask that you join us & wear your favorite Tiara and help bring awarenesss to the dangers of Pediatric Traumatic Brain Injury.
#inclusivity #Accessability #support #TBI #MedicallyComplex #SPED #accessability4all
#inclusivity #Accessability #support #TBI #MedicallyComplex #SPED #accessability4all
3. If you do have a major medical event, you can pay a lot out of pocket even with great full coverage.
4. Not everything that is needed is covered, you will pay out of pocket AND have it not count towards your maximum.
I know because all of these things happen to me every year.
#medicallycomplex
4. Not everything that is needed is covered, you will pay out of pocket AND have it not count towards your maximum.
I know because all of these things happen to me every year.
#medicallycomplex
December 31, 2024 at 12:43 AM
3. If you do have a major medical event, you can pay a lot out of pocket even with great full coverage.
4. Not everything that is needed is covered, you will pay out of pocket AND have it not count towards your maximum.
I know because all of these things happen to me every year.
#medicallycomplex
4. Not everything that is needed is covered, you will pay out of pocket AND have it not count towards your maximum.
I know because all of these things happen to me every year.
#medicallycomplex
Maybe it's all the coffee I drink during Zoom trainings but I swear I get out of these sessions feeling so optimistic, rejuvenated, and re-committed to #CommunityCare and #CommunityBuilding through supporting #Families of #MedicallyFragile #MedicallyComplex, and #DIsabledChildren.
a picture of pink flowers with the words hello march written on it
ALT: a picture of pink flowers with the words hello march written on it
media.tenor.com
March 1, 2025 at 10:26 PM
Maybe it's all the coffee I drink during Zoom trainings but I swear I get out of these sessions feeling so optimistic, rejuvenated, and re-committed to #CommunityCare and #CommunityBuilding through supporting #Families of #MedicallyFragile #MedicallyComplex, and #DIsabledChildren.
Who else has a thicc chart? Likes and shares are always welcome on this design, as well as the other items in my shop! www.etsy.com/listing/4304... Thank you so much for the support! #Disabled #Disability #ChronicallyIll #ChronicIllness #CancerSurvivor #MedicallyComplex
May 14, 2025 at 1:16 AM
Who else has a thicc chart? Likes and shares are always welcome on this design, as well as the other items in my shop! www.etsy.com/listing/4304... Thank you so much for the support! #Disabled #Disability #ChronicallyIll #ChronicIllness #CancerSurvivor #MedicallyComplex
🔥✊🔥
Oooo...Careful Republicans, you're poking bears. This Mama Bear ain't playing and she's not alone. She will come and she will bring all of her friends. Are you ready? Try her. We all dare you.
Thank you Billie Nelson.
( @mamabenergy2 )
www.tiktok.com/t/ZP829P5o6/
Oooo...Careful Republicans, you're poking bears. This Mama Bear ain't playing and she's not alone. She will come and she will bring all of her friends. Are you ready? Try her. We all dare you.
Thank you Billie Nelson.
( @mamabenergy2 )
www.tiktok.com/t/ZP829P5o6/
Unhinged x Unapologetic x Unafraid #Fyp #specialneeds #medicallycomplex #medicallyfragile #fy #mamabear #viral #unhinged #CUNTRYQueen #trump #maga #elon #breakingnews #viraltiktok #news #fafo
TikTok video by Billie Nelson
www.tiktok.com
March 19, 2025 at 9:11 PM
🔥✊🔥
Oooo...Careful Republicans, you're poking bears. This Mama Bear ain't playing and she's not alone. She will come and she will bring all of her friends. Are you ready? Try her. We all dare you.
Thank you Billie Nelson.
( @mamabenergy2 )
www.tiktok.com/t/ZP829P5o6/
Oooo...Careful Republicans, you're poking bears. This Mama Bear ain't playing and she's not alone. She will come and she will bring all of her friends. Are you ready? Try her. We all dare you.
Thank you Billie Nelson.
( @mamabenergy2 )
www.tiktok.com/t/ZP829P5o6/
Ever felt like your death warrant was just signed by the medical community where you live? I do. #Tallahassee, Florida is a fucking medical wasteland. Don't be #chronicallyill or #medicallycomplex in Florida. Especially North Florida. Fuck all of you.
July 21, 2026 at 9:14 AM
Ever felt like your death warrant was just signed by the medical community where you live? I do. #Tallahassee, Florida is a fucking medical wasteland. Don't be #chronicallyill or #medicallycomplex in Florida. Especially North Florida. Fuck all of you.
Well, kidney surgery recovery was ok until Wednesday. I’m in urgent care with what looks like a kidney infection. Waiting on the rest of the labs to see, and then I’ll get meds. Not the news I was hoping for, but it explains my symptoms. #immunosuppressed #medicallycomplex #zebra #chronicallyill
April 25, 2025 at 9:37 PM
Well, kidney surgery recovery was ok until Wednesday. I’m in urgent care with what looks like a kidney infection. Waiting on the rest of the labs to see, and then I’ll get meds. Not the news I was hoping for, but it explains my symptoms. #immunosuppressed #medicallycomplex #zebra #chronicallyill
Still inpatient and having a #swallowstudy early Monday morning 🩻 🗣️
Then, this #medicalmom predicts, the big #NPO talk 😫with the #SpeechLanguagePathologist and her doctors before 🏥 discharge on full #jtubefeeding
#medicallycomplex
#familycare
#homecare
#dysphagia
#22q11
Then, this #medicalmom predicts, the big #NPO talk 😫with the #SpeechLanguagePathologist and her doctors before 🏥 discharge on full #jtubefeeding
#medicallycomplex
#familycare
#homecare
#dysphagia
#22q11
March 16, 2025 at 10:26 PM
Still inpatient and having a #swallowstudy early Monday morning 🩻 🗣️
Then, this #medicalmom predicts, the big #NPO talk 😫with the #SpeechLanguagePathologist and her doctors before 🏥 discharge on full #jtubefeeding
#medicallycomplex
#familycare
#homecare
#dysphagia
#22q11
Then, this #medicalmom predicts, the big #NPO talk 😫with the #SpeechLanguagePathologist and her doctors before 🏥 discharge on full #jtubefeeding
#medicallycomplex
#familycare
#homecare
#dysphagia
#22q11
I prioritize my daughter's needs differently depending on who and what my listener generally relates to most.
Health care in medical, community and home settings is always at the top of her needs.
#disability #medicallycomplex
Health care in medical, community and home settings is always at the top of her needs.
#disability #medicallycomplex
December 8, 2024 at 6:07 PM
I prioritize my daughter's needs differently depending on who and what my listener generally relates to most.
Health care in medical, community and home settings is always at the top of her needs.
#disability #medicallycomplex
Health care in medical, community and home settings is always at the top of her needs.
#disability #medicallycomplex
Trying to get medical care when you're #medicallycomplex in the U. S. is near impossible unless you have resources that let you travel long distance for care. Trying to get competent timely care in #NorthFlorida is actually impossible.
#Tallahassee is a medical wasteland.
#Tallahassee is a medical wasteland.
April 10, 2026 at 5:47 AM
Trying to get medical care when you're #medicallycomplex in the U. S. is near impossible unless you have resources that let you travel long distance for care. Trying to get competent timely care in #NorthFlorida is actually impossible.
#Tallahassee is a medical wasteland.
#Tallahassee is a medical wasteland.
Replying to a comment: long story short, when the monthly budget doesn’t add up and certain meds cost more for one month than a full years salary… then it’s time to get both creative with your budget and patient with red tape in the systems. #medicallycomplex #caregiver
October 10, 2025 at 9:05 PM
Replying to a comment: long story short, when the monthly budget doesn’t add up and certain meds cost more for one month than a full years salary… then it’s time to get both creative with your budget and patient with red tape in the systems. #medicallycomplex #caregiver
#MoyaMoyaDisease #Aloha #StrokeAwareness #BrainHealth #music #healing #medicallycomplex #Anuhea #aphasia #raredisease #neurology #Hawaii #Anuhea #lotus #musicishealing #brain #neurovasular #neurosurgery #sandiego #stanford
Hawaiian superstar Anuhea's Moyamoya Disease PSA
YouTube video by Ray Sinsay
youtu.be
November 20, 2024 at 6:20 PM