#PwMe
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tessamunt.bsky.social
Thank you so much, George! Your conclusion speaks volumes, reflecting so much that I hear from #pwME.
September 24, 2026 at 8:24 AM
itsmepz.bsky.social
Thank you George for using your platform to make people aware of the #GreatestMEdicalScandal

It means a lot to #pwME !
September 24, 2026 at 7:13 AM
longcovidadvoc.com
Amplifying! Excellent news that GM is writing another ME article. If relevant email address below 👇

#pwME #NEISVoid #LongCovid #ChronicIllness
georgemonbiot.bsky.social George Monbiot @georgemonbiot.bsky.social · 4d
Intending to write another column about the treatment of #ME/CFS patients this week, pegged to new research findings on the biological basis. My question for sufferers:
Are any of you still being offered inappropriate (psych/GET etc) "treatments"?
Please email george at monbiot dot info. Thanks.
September 21, 2026 at 11:00 AM
tomkindlon.bsky.social
Great to see Alem (Matthees) has just joined Bluesky @alemmatthees.bsky.social
#MEcfs #PwME
tomkindlon.bsky.social Tom Kindlon @tomkindlon.bsky.social · 16d
10 years today, after a David vs Goliath FOI legal battle that damaged Alem Mathees, White et al were forced to release data from PACETrial (that cost UK taxpayers £5M) showing graded exercise therapy & CBT didn’t lead to an increased recovery rate for CFS.

Please remind the world
#MEcfs #PwME #CFS
Rethinking the treatment of chronic fatigue syndrome-a reanalysis and evaluation of findings from a recent major trial of graded exercise and CBT Carolyn E Wilshire 1 , Tom Kindlon 2 , Robert Courtney 3 , Alem Matthees 4 , David Tuller 5 , Keith Geraghty 6 , Bruce Levin 7 Affiliations Expand PMID: 29562932 PMCID: PMC5863477 DOI: 10.1186/s40359-018-0218-3 Abstract Background: The PACE trial was a well-powered randomised trial designed to examine the efficacy of graded exercise therapy (GET) and cognitive behavioural therapy (CBT) for chronic fatigue syndrome. Reports concluded that both treatments were moderately effective, each leading to recovery in over a fifth of patients. However, the reported analyses did not consistently follow the procedures set out in the published protocol, and it is unclear whether the conclusions are fully justified by the evidence. Methods: Here, we present results based on the original protocol-specified procedures. Data from a recent Freedom of Information request enabled us to closely approximate these procedures. We also evaluate the conclusions from the trial as a whole.
September 17, 2026 at 9:25 PM
mgholm.bsky.social
Thank you so much for writing in support of #pwME ! It’s sorely needed.
September 24, 2026 at 7:23 AM
katybrc.bsky.social
Can't ever thank you enough for this piece & for being the most fantastic ally, so grateful to you for hearing us & for reporting on what's still happening to pwME with such clarity, accuracy & compassion. We'll be sharing it everywhere we possibly can.
September 24, 2026 at 6:37 AM
jasper.dog
I take care of mahm #dogsofbluesky #pwME
February 21, 2026 at 10:12 PM
notunpackedyet.bsky.social
#pwME #LongCovid 👀
georgemonbiot.bsky.social George Monbiot @georgemonbiot.bsky.social · 4d
Intending to write another column about the treatment of #ME/CFS patients this week, pegged to new research findings on the biological basis. My question for sufferers:
Are any of you still being offered inappropriate (psych/GET etc) "treatments"?
Please email george at monbiot dot info. Thanks.
September 21, 2026 at 9:57 AM
vladvexler.bsky.social
My 2 cents on ME (myalgic encephalomyelitis) and exercise:
#pwME
November 17, 2024 at 3:05 PM
longcovidadvoc.com
Excellent news. The coverage on the ME scandal is continuing!

@georgemonbiot.bsky.social will be on Natasha Devon's LBC show this Saturday 6-9pm 📻

#longcovid #pwME #NEISVoid #Disability
natashadevon.bsky.social Natasha Devon @natashadevon.bsky.social · 1d
George will be coming on my show this weekend to discuss this very important article.
georgemonbiot.bsky.social George Monbiot @georgemonbiot.bsky.social · 1d
Here's today's column on the astonishing, ongoing mistreatment of people with #ME/CFS. Please spread it far and wide: the only thing which can break the media's wall of indifference is seeing an article about the issue go viral. Thank you. 1/2
www.theguardian.com/commentisfre...
September 24, 2026 at 12:05 PM
hollychessman.bsky.social
CLICK AND RESPOND.

#CovidConscious #LongCovid #Disability #PwME
altfda.altgov.info AltFDA @altfda.altgov.info · May 20
Gather around kids!! Tell these fuckers that you want “Updated Sub-Lineage Covid Vaccines” or “Updated Covid Vaccines” or That it’s patriotic to vaxx & be heathy. We have till Friday at 11:59 to make comments on the shit they dropped today. This is on purpose.

www.regulations.gov/commenton/FD...
#Altcitizen Armchair Activist Activate! Comment that we want updated Covid vaccines here https://www.regulations.gov/commenton/FDA-2025-N-1146-0001 Spam in the Gears. Comment that we want updated Covid vaccines here https://www.regulations.gov/commenton/FDA-2025-N-1146-0001
May 21, 2025 at 7:14 PM
valebodi.bsky.social
Catch ME if you PEM

Only #pwME can understand

#ME/CFS
#ICD-10G93.3
#ICD-10G93.32
#ICD-118E49
September 24, 2026 at 1:49 PM
meactnet.bsky.social
Scientific Director Jaime Seltzer @exceedhergrasp1.bsky.social reporting live (virtually) from the NIH From Mechanisms to Medicine conference.

#pwME #MyalgicEncephalomyelitis #MECFS #LongCovid #ChronicIllness #NIH
exceedhergrasp1.bsky.social It's ME(Jaime) @exceedhergrasp1.bsky.social · 2d
Starting talk reporting here!

Opening: Amy Adams of NINDS wonders if the same "butler did it" in each of the multi-system diseases covered by the conference.

Adams discusses her appreciation for people with lived experience,the "true experts", hopes to continue to learn from them. 🧪
exceedhergrasp1.bsky.social It's ME(Jaime) @exceedhergrasp1.bsky.social · 2d
I had planned being in-person to the NIH conference, From Mechanisms to Medicine: Rethinking the Discovery-to-Care Continuum in Multi-System Disorders; got be-suited and on the road before I decided I was still too wobby from my COVID vaccination.

In-person tomorrow; reporting from home, today! 🧪
September 23, 2026 at 1:46 PM
exceedhergrasp1.bsky.social
Hey, #pwME, a new diagnostic! Just look at our faces
clayranck.bsky.social Clay Ranck @clayranck.bsky.social · Aug 27
wtf is this nonsense? He thinks he can understand kid’s “mitochondrial challenges” just by looking at them?

This is an insane person.
Acyn @Acyn X.com RFK JR: I'm looking at kids as I walk through the airports today...and I see these kids that are just overburdened with mitochondrial challenges, inflammation-you can tell from their faces, movements, and lack of social connection TEXAS "MAKE AMERICA HEALTHY AGAIN" LEGISLATION ROBERT F. KENNEDY JR. Health & Human Services Secretary 0:12 From CSPAN C-SPANG* 15:04 • 8/27/25
August 28, 2025 at 7:58 PM
cabruce.bsky.social
#pwME Do spread this far and as wide as you can 🙏
georgemonbiot.bsky.social George Monbiot @georgemonbiot.bsky.social · 4d
Intending to write another column about the treatment of #ME/CFS patients this week, pegged to new research findings on the biological basis. My question for sufferers:
Are any of you still being offered inappropriate (psych/GET etc) "treatments"?
Please email george at monbiot dot info. Thanks.
September 21, 2026 at 9:19 AM
tomkindlon.bsky.social
From @mayalongcovid.bsky.social

#MEcfs #PwME #CFS #MyalgicEncephalomyelitis
June 3, 2026 at 4:18 PM
tomkindlon.bsky.social
One week to go
#MEcfs #LongCovid #MyalgicEncephalomyelitis #ChronicFatigueSyndrome #PwME #CFS #speirgorm #spéirgorm #speirghorm #spéirghorm
irishmecfsassoc.bsky.social Irish ME/CFS Association @irishmecfsassoc.bsky.social · 10d
Informal ME/CFS social meet-up in Dublin hosted by Tom Kindlon @tomkindlon.bsky.social on Wednesday, September 30

Hopefully we’ll see some of you there
irishmecfs.org/blog/wednesd...

Carers/parents/similar welcome.

#MEcfs #PwME
Informal ME/CFS social meet up in Dublin 1:30 PM-3 PM, Wednesday, September 30 The Bell Bar & Restaurant, Dublin 15, D15 EW77 https://www.thebell.ie All welcome incl. relatives & people with long Covid Buy your own food +/or drink Register for any updates (in case cancelled - hasn't happened so far): tomkindlon@irishmecfs.org Host: Tom Kindlon Irish ME/CFS Association for Information. Support & Research logo
September 23, 2026 at 10:34 AM
tomkindlon.bsky.social
Includes three-minute video clip
#MyalgicEncephalomyelitis #ChronicFatigueSyndrome #MEcfs #CFS #PwME
July 27, 2025 at 1:03 PM
katybrc.bsky.social
Action for ME have chosen to leave X & the 13,000+ followers they have there without consulting #pwME
#pwME are dependent on social media & as the contact between #pwME & the APPG for #ME & the Parliamentary Champions for #ME this is counterproductive.
AfME should have a presence where #pwME are
November 15, 2024 at 11:59 AM
sickness.bsky.social
Don't underestimate the hope that your original post has offered to pwME. Just to have someone who is interested in our experiences means the world. Thank you.
September 22, 2026 at 9:13 AM
danielmissailidis.bsky.social
Hello everybody, I am now on this website.

#MECFS #LongCOVID #pwME
October 22, 2024 at 8:24 AM
tomkindlon.bsky.social
2/
I have just read it will be recorded.

#MyalgicEncephalomyelitis #ChronicFatigueSyndrome #MEcfs #CFS #PwME
September 23, 2026 at 5:34 PM
jesshoneybadger.bsky.social
go.bsky.app/VPRy2ML

Message me to be added if you are a #disabled voice or #pwME.
November 13, 2024 at 1:31 PM
valebodi.bsky.social
Good news for pwME used to bad news!
exceedhergrasp1.bsky.social It's ME(Jaime) @exceedhergrasp1.bsky.social · Jul 30
Learned earlier this evening that the #MECFS Collaborative Research Center at Columbia's funding was restored... it's a huge relief to know that their work will move forward. Congrats to the whole lab! 🧪

#NEISvoid
July 30, 2025 at 5:07 PM
katybrc.bsky.social
For the #ME orgs
especially, most recently
@meassociation.org.uk

#pwME #MEAwareness #MEcfs
April 19, 2026 at 2:41 PM