Talk with @ruhoy.bsky.social Do Not miss that!
Misunderstood and Misdiagnosed: A new Look at ME/CFS
#Septad #MCAS #Dysautonomia #POTS #OI #ConnectiveTissue #EDS #hEDS #CCI #SmallFiberNeuropathy #Autoimmunity #Infections #Sibo #LongCovid #LongLyme #LongSomething

youtu.be/kmrUpXZel9A?...

Friends, can you read and help share this broadly?
Nevra has #SevereME & septad comorbidities & currently urgently needs an in-person #ME knowledgeable advocate in Pakistan. Donations to her GFM also greatly needed & appreciated. #GreatestMEdicalScandal #MECFS

www.thecanary.co/global/world...

once you collect all the pronoun types in your region into your polydex you get to challenge the Elite 7, an experienced septad each with multi-pronoun sets, without a single overlapping pronoun: truly a threat to any poly collector.

2/2 ⬆️ @ruhoy.bsky.social @kaufmanmd.bsky.social
Talia and I we spoke about #ComplexChronicIllness this week. I hope I did not mess it up, especially with my pretty bad english. I was talking about your Septad model because I learned so much from you ⬇️

www.youtube.com/live/L1dwxz3...

Me, too. Do you have any insight into why, in addition to this, the DoD might be funding research into chronic illness and the “SEPTAD” (ME/Cfs, EDS, POTS, MCAS, LC, etc)? I noticed this odd detail in a recent annct about a new research collab that includes orgs I support.

Hey! I'm Dee. I'm a disabled creative and I make small batch apothecary and ritual items to help me keep my long term care and health insurance 💕🌱🤲

You can find them here:

www.etsy.com/shop/holyfri...

#repost #bsnm #witchsky #disability #NEISvoid #mecfs #pwme #pots #mcas #heds #septad

As well as some of the other anatomical diagnoses I and it's just because when something is toxic to the body there's a mast cell reaction regardless you don't have to be um hypermobile, you don't have to be a septad patient, you don't have to have #LongCovid or #MEcfs, if anything is (6/12)

also took me forever to realize a great septad was 49 not 70. sorry mildmay.

I really would love to see a study investigating incidence rates between folks with pentad/septad conditions vs folks without, re: synesthesia

(I've got grapheme-color synesthesia, some sound-color/shape synesthesia, and I would be devastated if ever my colors were gone!)

LKSDJFLDSF this great septad person polycule is growing to cover all of melusine....this MIGHT be enough people to fix felix. maybe.

Right? I have so much to say about this. Maybe in DMs? It’s complicated but I’m right in the exact septad territory you’re mapping.

4/6 You can start with an article by @cortjohnson.bsky.social
The “Septad” – a Treatment Roadmap for ME/CFS, POTS, Long COVID : From “Unraveled” a Patreon Broadcast from Dr. Kaufman and Ruhoy)

(All episodes now available on YouTube)

www.healthrising.org/blog/2023/10...

There’s not a lot of research out there on it, but some people - including me - w/the EDS, ME, mcas septad/opted with severe Neuro symptoms do well on levodopa. It’s an old Parkinson’s med, but also used to treat dopa responsive dystonia (DRD).

Thank you! Mine and many others aren't infection-related, though. The NYT took out my references to the "pentad" and "septad," which some doctors are using. I have doctors who are as knowledgeable as anyone about the connections, but, alas, that's not saying much.

The small grouping of days being a "decade", with the small grouping of years being the 7-year "septad" (which also could just mean any group of 7) seemed intentionally disorienting. I love book settings being a bit of a puzzle, and I think this one hit a perfect balance on that. 4/7

that wild son of a gun she loved the word septad. and changing tenses in the middle of a chapter. and writing about sexual assault

melusine is a personal challenge the author set herself to see how many times a person could use the word “septad” in a single novel.

You know I guess there is the option to use less colors on higher bit systems.

My Sega Genesis II palette has about 53 colors. Generally with the first column being primary septad, and the other seconday.