#ZebraStrong🦓
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sparklearts.bsky.social
YESSS!! Another zebra!!! This one really reminds me of my pony Moo 🤭🦓💖🦓 thank you Kevin!

#edsawarenessmonth #zebrastrong #eds
kevinragland.bsky.social Kevin Ragland @kevinragland.bsky.social · May 2
A drawing I made of a Zebra and Tim Gravy for my friend, @sparklearts.bsky.social and EDS awareness month.
❤️🦓❤️
#ZebraStrongArt #EDSAwarenessMonth
May 2, 2025 at 11:01 PM
sparklearts.bsky.social
I have Ehlers Danlos Syndrome and it sucks, so I made pretty art 🦓

#eds #ehlersdanlos #zebra #zebrastrong #arr #tattooart
A zebra with a banner saying zebra strong in a tattoo flash style by SparkleArts
November 28, 2024 at 12:12 AM
paintedzebra.bsky.social
Zebra Strong! 💪🦓
This painting sketch was done to raise awareness of Rare Disease fighters.
Medium: Ink and Watercolor
#artist #art #watercolorartist #watercolorart #inkandwatercolor #ink #inkart #zebrastrong #rarediseaseawareness
June 1, 2025 at 1:59 PM
samluegger.bsky.social
Today is International Day of the Zebra for not only the animal but also for Medical Zebras. 🦓🩵 Learn more at @thezebraalliance.bsky.social and
@ehlersdanlos.bsky.social

#EDS #HSD #ehlersdanlossyndrome #zebrastrong
January 31, 2025 at 5:37 PM
merula.bsky.social
Ich bin jetzt offiziell auch ein autistisches 🦓. Und das unten zitierte beschreibt ziemlich genau wie ich zu diesen Diagnosen stehe. #hEDS #ehlersdanlos #autistic #chronicill #zebrastrong #maskup #teamvorsicht
October 31, 2025 at 11:44 AM
squeefulraven.bsky.social
May is EDS Awareness Month, please share EDS Awareness Ireland's video and help spread much needed awareness, Thank You and Happy EDS Awareness Month to all 🥰🦓

#EDSAwarenessIreland #EhlersDanlosSyndrome #ChronicIllness #SpeirGorm #SpéirGhorm #SpéirGorm #Ireland #Awareness #Disability #ZebraStrong
May 2, 2026 at 10:31 AM
sparklearts.bsky.social
My Zebra Strong design is available on Redbubble 😊🦓💖

Stickers, totes, mugs, clothing and more!

www.redbubble.com/shop/ap/1693...

#edsawarenessmonth #eds #ehlersdanlossyndrome #ehlersdanlos #zebrastrong #zebrastrongart
Zebra strong tattoo design on a tote
May 3, 2025 at 11:09 PM
sparklearts.bsky.social
Yip! 🦓 #zebrastrong
November 15, 2024 at 12:28 AM
byronhopkins.bsky.social
#zebrastrong #ehlersdanols 🦓
ehlers-danlos.com The Ehlers-Danlos Society @ehlers-danlos.com · Dec 9
The Ehlers-Danlos syndromes (EDS) are a group of 13 heritable connective tissue disorders. Some features are seen across all types of #EDS, including joint hypermobility, skin hyperextensibility, and tissue fragility. Learn more: www.ehlers-danlos.com/what-is-eds/ #EhlersDanlosSyndrome #Health
What is EDS? - The Ehlers Danlos Society
www.ehlers-danlos.com
December 9, 2024 at 12:57 PM
buttahflyk.bsky.social
Here's one more #RareDiseaseDay column I wrote for Sarcoidosis News - this one from 2024!
🦓🦋
#RareDisease #community #PatientStories #sarcoidosis #ZebraStrong
sarcoidosisnews.com/columns/shar...
Sharing our rare disease stories is vital for building community
Columnist Kerry Wong explains how reading and hearing about others' experiences inspired her to share her own rare disease story.
sarcoidosisnews.com
March 1, 2026 at 4:18 AM
buttahflyk.bsky.social
Did you know?
Currently, there are more than 10,000 rare diseases identified.
Show your stripes this #RareDiseaseDay

Learn more: rarediseasedayus.us
~🦋🦓
#ChronicIllness #RareDisease #ShowYourStripes #SpoonieSky #ZebraStrong
FLaB background with NORD/RDD logos. Text reads: Did you know? Currently, there are more than 10,000 rare diseases identified. Show your stripes this #RareDiseaseDay
February 28, 2025 at 6:01 PM
buttahflyk.bsky.social
Did you know?
Any disease affecting fewer than 200,000 people in the US is considered rare.
Show your stripes this #RareDiseaseDay

Learn more: rarediseasedayus.us
~🦋🦓
#ChronicIllness #RareDisease #ShowYourStripes #SpoonieSky #ZebraStrong
FLaB background with NORD/RDD logos; text reads: Did you know? Any disease affecting fewer than 200,000 people in the US is considered rare. Show your stripes this Rare Disease Day
February 28, 2025 at 4:30 PM
treetattoodance.bsky.social
Grateful to have connected with medical professionals this year who could finally tell me why my body hurt all of the time. Shout out to my fellow zebras! 🦓💖
#hEDS #ZebraStrong
January 31, 2025 at 6:22 PM
buckivotesblue.bsky.social
What is #hEDS?

Hypermobile Ehlers-Danlos Syndrome is a genetic connective tissue disorder caused by faulty collagen, which acts as the body's "glue".

It's more than flexible joints. It causes:
• Chronic joint pain & dislocations
• Severe fatigue
• GI issues
• Dysautonomia/POTS/MCAS
#ZebraStrong 🦓
June 9, 2026 at 3:19 PM
buttahflyk.bsky.social
Did you know?
More than 95% of rare diseases are still without an FDA-approved treatment.
#ShowYourStripes this #RareDiseaseDay
~🦋🦓
#ChronicIllness #RareDisease #SpoonieSky #ZebraStrong
FLaB background with NORD/RDD logos. Text reads: Did you know? More than 95% of rare diseases are still without an FDA-approved treatment. Show your stripes this Rare Disease Day
March 1, 2025 at 12:00 AM
buttahflyk.bsky.social
Giving with #Gratitude Sale!
a.co/d/1qhe4Je

From giving thanks to #GivingTuesday, Kaleidoscope #RareDisease Stories (Kindle Edition) is only $9.99*

Proceeds donated to National Organization for #Rare Disorders, Inc. (NORD).
~🦋🦓
#KaleidoscopeRare #ShowYourStripes #ZebraStrong
🧵1/
November 29, 2024 at 5:29 AM
roguenayabiz.bsky.social
In 6 months I went from not being able to walk very far, to running 4 miles on the elliptical. Feeing pretty proud of the slow progress I’ve made. A couple years ago I thought I wouldn’t make it back to being fit. Treating MCAS has made life so much better with less pain. 🦓 #mcas #EDS #zebrastrong
February 28, 2025 at 1:08 PM
buttahflyk.bsky.social
Still looking for last-minute gift ideas?

Kaleidoscope #RareDisease Stories is a collection of true, first-person stories from people around the world living with a variety of #RareDiseases.

Proceeds donated to NORD.
Available at a.co/d/5FLMmny or Amazon sites worldwide.
~🦋
#ZebraStrong🦓
December 20, 2024 at 1:08 AM
buttahflyk.bsky.social
Why Zebras?
A fitting mascot for #RareDiseaseDay

“When you hear hoofbeats, think horses, not zebras.”
That doesn't work for us. There's a lot we can learn, and a lot of work to do.
🦓🦋
buttahflyk.substack.com/p/why-zebras
@rarediseaseday.bsky.social #sarcoidosis #ShowYourStripes #ZebraStrong
Why Zebras?
A fitting mascot for Rare Disease Day
buttahflyk.substack.com
February 28, 2026 at 9:37 PM
buttahflyk.bsky.social
A great read for #RareDiseaseDay (or any day):

Kaleidoscope #RareDisease Stories
Featuring:
60 Stories
44 Patient Writers
3 Caregiver Writers •
59 Rare Diseases
4 Countries
Ages 2- 76

Proceeds donated to NORD
~🦋🦓
a.co/d/dsmrBw5
<a href="/hashtag/ChronicIllness" class="hover:underline text-blue-600 dark:text-sky-400 no-card-link">#ChronicIllness #ShowYourStripes #SpoonieSky #ZebraStrong
FLaB promo shows me holding a copy of Kaleidoscope book, with RDD/NORD logos and QR code. Text reads: Float Like a Buttahfly presents Kaleidoscope RARE DISEASE Stories TOLD BY THE PEOPLE WHO LIVE THEM Featuring: 60 Stories 44 Patient Writers 3 Caregiver Writers • 59 Rare Diseases 4 Countries Ages 2- 76 Forward by Karen Duffy Lambros, NY Times best-selling author of Model Patient, Backbone, and Wise Up Proceeds donated to NORD National Organization for Rare Disorders
March 1, 2025 at 3:00 AM
adangrenier.bsky.social
On commence la semaine avec la journée de la recherche sur les #maladiesrares du CUSM! 🦓👊#ZebraStrong
Photo d’un écran d’ordi sur lequel on voit une session Zoom avec Dr Donald Vinh dans une petite vignette et une diapo de présentatkon avec le texte « Les maladies rares affectent actuellement 5% de la population mondiale »
February 26, 2024 at 2:13 PM
buttahflyk.bsky.social
RARE DISEASE DIAGNOSIS AND TREATMENT There are more than 10,000 known rare diseases. Diagnosis can take five years or longer. Most rare diseases lack an FDA-approved treatment or cure.
#ShowYourStripes this #RareDiseaseDay
~🦋🦓
rarediseaseday.us
#ChronicIllness #RareDisease #SpoonieSky #ZebraStrong
NORD Rare Disease Day | Official US Partner
The National Organization for Rare Disorders (NORD) is proud to be the official US partner for Rare Disease Day.
rarediseaseday.us
March 1, 2025 at 1:30 AM
bobbiskozykitchen.bsky.social
Ehlers-Danlos: Just Google It. 🦓💜

For those tired of explaining EDS to everyone. Including doctors.

No more blank stares. No more "have you tried yoga?"

Let the internet do the work.

www.ebay.com/itm/14591673...

#EhlersDanlos #JustGoogleIt #EDS #ZebraStrong #Spoonie
June 2, 2026 at 10:17 PM
buttahflyk.bsky.social
It's #RareDiseaseDay!
DID YOU KNOW ... ?
🦓 Currently, there are more than 10,000 #RareDiseases identified.
🦓 More than 95% are still without an FDA-approved treatment.
🦓 Proceeds from Kaleidoscope:Rare Disease Stories are donated to NORD
🦋
@rarediseaseday.bsky.social #ShowYourStripes #ZebraStrong
FLaB background with NORD/RDD zebra graphic. Text reads Today is Rare Disease Day Show your stripes for the 1 in 10 Americans with a rare disease FLaB background with NORD/RDD Zebra graphics. Text reads DID YOU KNOW? Currently, there are more than 10,000 rare diseases identified. FLaB background with NORD/RDD Zebra graphics. Text reads DID YOU KNOW? More than 95% of rare diseases are still without an FDA-approved treatment. FLaB promo for Kaleidoscope: Rare Disease Stories features a "Rare Disease Day" banner and Bitmoji of me holding print and e-book versions. Text reads Kaleidoscope: Rare Disease Stories Told by the people who live them Proceeds donated to NORD National Organization for Rare Disorders Alone we are rare. Together we are strong.
March 1, 2026 at 12:00 AM
buttahflyk.bsky.social
That all needs to change.

That's why it's so important for us to join together, raise our voices, and
raise awareness.

Alone we are rare.
Together we are strong.
hashtag#ZebraStrong.
~🦋🦓
#RareDiseaseDay #ShowYourStripes #SpoonieSky
February 28, 2025 at 3:38 PM