LightNews — News, ranked by scholars

@momazonrises.bsky.social

#ProudBlue

Infusion day. Time to shut down my immune system again.

Will treatments like this soon be banned here under RFK Jr? Definitely concerning to me.

#mecfswarrior #interstitiallundisease #spoonie #youdontlooksick #Dysautonomia #mecfs #chronicillness #invisibleillness #sjogrens

March 2, 2025 at 6:31 PM

Honest and Unfiltered

@momazonrises.bsky.social

#ProudBlue

This is HUGE News for the ME/CFA community.

They have found some links to a person’s genes & this illness. This could lead to better testing & possible treatments soon.

#mecfswarrior #spoonie #youdontlooksick #myalgicencephalomyelitis #mecfs #chronicillness #invisibleIllness

August 7, 2025 at 2:06 AM

Honest and Unfiltered

@momazonrises.bsky.social

#ProudBlue #MomSky

I so appreciate those protesting for those of us too sick to attend.

Medicaid cuts will be devastating to the ME/CFS & Long Covid communities.

Tell Congress NO to Medicaid cuts

#mecfswarrior #youdontlooksick #myalgicencephalomyelitis #mecfs #chronicillness #invisibleillness

The Sick Times @thesicktimes.org · May 13

Myalgic encephalomyelitis (ME), Long COVID, and other chronic disease advocates demonstrated outside the Capitol Building in Washington, D.C. yesterday. #MillionsMissing.

Read more from @mileswgriffis.bsky.social at The Sick Times: thesicktimes.org/2025/05/12/m...

ID: Everyone who attended the Missing Millions: SOS protest next to the U.S. Capitol building. They are protesting the funding cuts and other measures the Trump administration is doing to slow or stop research about M.E. and Long Covid in Washington D.C. on May 12, 2025. The text reads, “The Sick Times. “Millions Missing” protest at the Capitol demands myalgic encephalomyelitis funding, social support. By Miles W. Griffis.”

“There is a campaign of revenge against infectious disease, public health, and infection-associated chronic conditions, in particular, because of the COVID-19 pandemic,” Jaime Seltzer, the scientific director of #MEAction.

L to R, top to bottom:

Two women, Danielle Gillan and her daughter Natalie Gillan, speaking with the Capitol building behind them. Both are wearing red T-shirts and shorts, with lifeguard bags and visors. Natalie holds a pair of signs, the one on top reads, "No treatment, no roadmap, nowhere to go, sick of being sick"

Portrait photo of couple David Burks and Shania Coleman during the Millions Missing protest. Burks is speaking into a microphone.

A demonstrator in a red hat and white t-shirt speaks into a microphone with the Capital in the background.

Jaime Seltzer speaking into a microphone, with the Capitol building behind her.

A group of ME advocates gathered in front of the U.S. Capitol building, protesting against cuts to federal programs like Medicaid and in favor of ME research funding. All are wearing red, and many are holding signs saying, "SOS: Save Our Science."

May 13, 2025 at 7:01 PM

Honest and Unfiltered

@momazonrises.bsky.social

First dose is done! ✅

2nd dose Rituximab in two weeks & then I’m set for 6 months.

#mecfswarrior #interstitiallundisease #autonomicneuropathy #spoonie #youdontlooksick #myalgicencephalomyelitis #Dysautonomia #youareenough #mecfs #chronicillness #invisibledisability #invisibleillness #sjogrens

September 1, 2025 at 2:29 AM

Honest and Unfiltered

@momazonrises.bsky.social

#ProudBlue #MomSky

I am one of the millions missing.

Help me & others fight for our lives! ME/CFS steals the lives of millions across the world. Let’s raise awareness.

#mecfswarrior #spoonie #youdontlooksick #myalgicencephalomyelitis #mecfs #chronicillness #invisibleillness

Maggie Boxey Writes @maggieboxey.bsky.social · May 12

Protest in DC happening now!
Here are action items for today and the rest of the month. Links can be found here: Action items for the coming week and beyond:
🔗 linktr.ee/maggieboxey
#MEAwareness #momsky #mecfs

May 12, 2025 at 9:09 PM

Dr Morgan Hughes

@thereremouse.bsky.social

The #youdontlooksick issue leads to extensive time (often years of gaslighting) before diagnosis, and when that eventually comes, treatments are often barely effective, leading to isolation, forcing sufferers to mask symptoms which feeds the whole cycle. The system fails people with chronic illness.

Billy Hanlon @bhanlon15.bsky.social · Apr 20

SBS: 'Chloe's been called 'hysterical' and has lost friends — because of something we can't see'

'Brett has been living with Long COVID since 2022 and believes his symptoms are getting worse.'

'..he finds it challenging to gain empathy for his Long COVID..'

www.sbs.com.au/news/insight...

Chloe's been called 'hysterical' and has lost friends — because of something we can't see

Chloe has an invisible illness. She says the world makes her feel like she's going crazy — and she's far from alone.

www.sbs.com.au

April 21, 2025 at 8:01 PM

Friday Night Writes

@fridaynightwrites.bsky.social

Today's spotlight author is @carablaine.bsky.social
Pre-orders Available now!
eBook: books2read.com/SeeMeAsIAm
Paperback: forms.gle/xDEtBW6qfEEF...

#seemeasiam #books #invisibleillness #youdontlooksick #weeseeyou #charityantho #books #disabilities #invisibledisabilities #mentalhealthawareness

June 3, 2025 at 5:50 PM

Honest and Unfiltered

@momazonrises.bsky.social

#mecfswarrior #interstitiallundisease #autonomicneuropathy #spoonie #youdontlooksick #myalgicencephalomyelitis #Dysautonomia #youareenough #mecfs #chronicillness #invisibledisability #invisibleillness #sjogrens

January 7, 2025 at 4:22 PM

fibrocanada.bsky.social

@fibrocanada.bsky.social

Did you know❓

Not all disabilities can be seen.

Did you know❓

Millions of people live with disabilities that you can't see like #fibromyalgia❓

Our fibromyalgia may be invisible, but we are not!

#InvisibleDisabilitiesWeek #YouDontLookSick #EndTheStigma #SeeTheInvisible

October 19, 2025 at 1:08 PM

Dr Morgan Hughes

@thereremouse.bsky.social

So I am on the sofa, ankles, knees and hips burning, but the view (and the challenge) was worth it. I went into it with planned recovery time, so it is okay. But sometimes I feel that the #youdontlooksick thing is insurmountable. More than a climb of 225 steps, anyway. #cfs #sarcoidosis #spoonie

September 13, 2025 at 2:57 PM

Ruthanne Reid (A.K.A. Trin)

@ruthannereid.bsky.social

Some days are harder than others. Most “get unblocked” programs don’t consider that.

The Two Rule Recovery does. Having a rough day? Creative, you are in the right place. 
#2rulerecovery #chronicillness #artists #writers #youdontlooksick
——
My weird books: ruthannereid.com

youtu.be/Ac9TsijKWOw

Having a bad brain day? So am I.

YouTube video by Ruthanne Reid

youtu.be

September 16, 2026 at 7:18 PM

Friday Night Writes

@fridaynightwrites.bsky.social

Shazara Brooks is our spotlight author today! check her out at linktr.ee/shazarabrook...
Pre-Orders for See Me As I Am are available!
#fridaynightwrites #seemeasiam #books #invisibleillness #youdontlooksick #weeseeyou #charityantho #spoons #disabilities #invisibledisabilities #mentalhealthawareness

May 29, 2025 at 8:22 PM

Kilara Kaito

@kilarakaito.bsky.social

Another Tradition has come to visit:
Holiday Cheer Aftermath
Flaring the Day Away

#chronicillness #selfcare #youdontlooksick #fibroflare #spoonie #autoimmune

a man laying on a couch covered in christmas lights and tinsel

ALT: a man laying on a couch covered in christmas lights and tinsel

media.tenor.com

December 26, 2024 at 3:22 PM

Orthrus / PupOrthrus 🇵🇸🌹🌈♾️

@orthrusargos.bsky.social

I would really love to be able to work consistently, or at least predict when I'm going to feel like crap. Today should have been very busy but instead I'm stuck in a dark, quiet room with a migraine while me teeth feel like they're trying to escape my head. #invisibledisability #youdontlooksick

August 12, 2025 at 9:32 PM

Friday Night Writes

@fridaynightwrites.bsky.social

Today's spotlight author is @saburd.bsky.social

eBook preorder link: books2read.com/SeeMeAsIAm
Paperback link: forms.gle/1WrZ8JDzmoWQ...

#seemeasiam #fnw #fnwanthology #invisibleillness #youdontlooksick #weeseeyou #charityantho #disabilities #invisibledisabilities #mentalhealthawareness

June 5, 2025 at 5:13 PM

Evie Black

@evieblackbooks.bsky.social

Tonight's spotlight author is Lee VanBeek!
Ebook preorder link: books2read.com/SeeMeAsIAm
Charity Link: www.nami.org
#fridaynightwrites #seemeasiam #fnwanthology #books #invisibleillness #youdontlooksick #weeseeyou #charityantho#spoonies#disabilities #invisibledisabilities #mentalhealthawareness

May 9, 2025 at 1:33 AM

Friday Night Writes

@fridaynightwrites.bsky.social

Todays spotlight author is @bobbieisabelauthor.bsky.social

There's still time to Pre-Order your copy
eBook: books2read.com/SeeMeAsIAm
Paperback: forms.gle/rPH7GgH4sMJV...

#seemeasiam #books #invisibleillness #youdontlooksick #weeseeyou #fnwantho #charityantho #disabilities #MentalHealthAwareness

June 12, 2025 at 4:36 PM

Friday Night Writes

@fridaynightwrites.bsky.social

@saburd.bsky.social is another contributing author to See Me As I Am, our charity anthology.

eBook: books2read.com/SeeMeAsIAm
Paperback: forms.gle/hgAsHSBj8zV8...

#seemeasiam #invisibleillness #youdontlooksick #weeseeyou #charityantho #disabilities #invisibledisabilities #mentalhealthawareness

May 25, 2025 at 5:19 PM

fibrocanada.bsky.social

@fibrocanada.bsky.social

#InvisibleDisabilitiesWeek – Day 2

#Fibromyalgia is an invisible illness. You can’t see the pain, fatigue, or brain fog, but it’s real

People often have to explain or hide what others can’t see. What they need most is understanding, compassion & belief

#YouDontLookSick #FAC #EndtheStigma

October 20, 2025 at 7:13 PM

Star Crushed Alien

@starcrushedalien.bsky.social

Depression is a bitch. Job searching isn't helping. I just keep being told "we have a lot of applications" they won't even let me say my name. But at least it's on my resume 🤷‍♀️
#mentalhealth #depression #youdontlooksick

February 17, 2025 at 9:43 PM