#ElhersDanlos
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byronhopkins.bsky.social
#elhersdanlos #edssucksass
February 24, 2025 at 7:13 PM
rainbowmama.bsky.social
If you are any of these or just want new friends, like me, please follow me & I’ll follow back!! Just comment!!
#fosterparent
#parent
#amputee
#Deaf
#disabled
#wheelchairuser
#osseointegration
#dogmom
#axolotlmom
#POTS
#ElhersDanlos
#CRPS
#Navywife
#LGBTQIA+
#bisexual
#nonbinary
#survivor
November 15, 2024 at 8:15 PM
terrierben.bsky.social
Vascular Elhers-Danlos syndrome - By Ruben Monteiro (fellow of Internal Medicine, Dijon, France) #ElhersDanlos #InternistAcademy 2024
January 26, 2025 at 11:23 AM
terrierben.bsky.social
Syndrome d'Elhers-Danlos vasculaire - Par Ruben Monteiro (Interne en Médecine Interne, Dijon, France) #ElhersDanlos #InternistAcademy 2024
January 26, 2025 at 11:22 AM
doingitdizzy.bsky.social
This is hilarious, but since there isn’t an Edit button yet-

#disabled
#resist
#chronicillness
#migraines
#ElhersDanlos
#deimatters
#disability
#CanadaSky
#SupportLibraries
📚🇨🇦🦋💙🫶🤓

bsky.app/profile/doin...
doingitdizzy.bsky.social Jennifer-Robbin 🦋🌈👩🏻‍⚖️🇨🇦 @doingitdizzy.bsky.social · Feb 5
As someone who is well educated but currently physically disabled with cognitive impairment it can be anxiety inducing trying to think of ways to fight with my fellow Ike besties.

The #Library Supporting your local library is hands down the best thing to do. List in pic 🤓🤓

#booksky
#resist
💙📚
a woman in a blue dress is standing in a library looking at books .
Alt: a woman in a blue dress is standing in a library looking at books . Also at the library; Ebooks Newspapers Magazines CDs Audiobooks DVDs So so much more!
media.tenor.com
February 5, 2025 at 5:12 AM
dravenxivuk.bsky.social
Nice little EDS summary video from Dr Clair
#elherdanlossyndrome #elhersdanlos #EDS #chronicillness

youtu.be/9I1kHUvu_0A?...
Ehlers-Danlos Syndrome (EDS) Explained: What You Need to Know
YouTube video by Doctor Clair
youtu.be
January 24, 2025 at 1:25 AM
lunarcookie.bsky.social
Took a fall tonight at work and I just KNOW that I fucked up my entire body.

#chronicallyill #spoonie #elhersdanlos #EDS
June 22, 2025 at 4:01 AM
dravenxivuk.bsky.social
Blog post from Jeannie Di Bon on Aging with EDS
#EDS #hEDS #hypermobility #elhersdanlos #chronicillness
Aging with EDS - Jeannie Di Bon
Estimated reading time: 6 minutesIn my 16 years of clinical practice, I have worked with clients of all ages with EDS and HSD. I’ve seen children, teenagers, and adults of all ages.
jeanniedibon.com
February 6, 2025 at 1:16 PM
dravenxivuk.bsky.social
Anyway... Today is mostly a splat day, and I'm ok with that. Thank you @stickmancomms.bsky.social for the reminder. #hEDS #PoTS #elhersdanlos #invisibleillness #chronicillness #chronicpain #chronicfatigue
September 11, 2024 at 5:13 PM
dravenxivuk.bsky.social
Keeping an eye on this! 👀
#hEDS #HSD #elhersdanlos #chronicillness #invisibleillness
New Research Identifies Potential Biomarkers for Diagnosing Hypermobile Ehlers-Danlos Syndrome and Hypermobility Spectrum Disorders - The Ehlers Danlos Society
A recent study funded by The Ehlers-Danlos Society, and published in the American Journal of Medical Genetics, has identified potential blood-based biomarkers that could help diagnose hypermobile Ehle...
www.ehlers-danlos.com
September 11, 2024 at 5:50 PM
dravenxivuk.bsky.social
Useful slides from @ehlersdanlos.bsky.social on dislocations and subluxations
#hEDS #EDS #elhersdanlos #chronicillness
A slide by The Ehlers Danlos Society, which says, "A dislocation is where the bones in a joint fully separate from each other" and shows diagrams of a normal and dislocated shoulder joint. A slide by The Elhers Danlos Society, which says, "A subluxation is where the bones in a joint slip over each other more than they normally should but do not separate or dislocate from each other" and shows diagrams of a normal and subluxed shoulder joint. A slide by The Ehlers Danlos Society, which says, "These events can happen at different sites in the body. The more common places are, for example the jaw joint, shoulder, thumb, and knee cap." and includes diagrams of the named joints. A text only slide by The Elhers Danlos Society, which says, "Dislocations and subluxations can be painful and cause injury to the tissues in and around the joint. The experience of a dislocation can be extremely painful and distressing, and require urgent medical attention.
January 4, 2025 at 1:20 PM
sara-keith.bsky.social
Officially referring to my cardiologist appointments as Cardi B appointments to make it more tolerable.

#pots #elhersdanlos
July 16, 2025 at 1:22 AM
cybertooth.bsky.social
2/2
Je cherche des conseils de personnes avec #SED et/ou sensibilité cutanée pour l'aider.

Si vous pouvez partager auprès de personnes concernées, ça me plairait bien.

#ElhersDanlos
August 2, 2024 at 11:24 AM
cybertooth.bsky.social
1/2
#SED #ElhersDanlos
Mon fils ado a un SED. Le symptôme principal chez lui est la fragilité et la sensibilité cutanée, ce qui engendre une difficulté pour la toilette, frotter sa peau (cuir chevelu inclus) pour se laver étant douloureux.
August 2, 2024 at 11:24 AM
chunkyknitcardigan.bsky.social
If my body could just chill, that would be greeeeaaaat. #chronicillness #elhersdanlos #POTS
Black cat from the Simpsons breathing fire.
March 8, 2026 at 9:24 AM
autismadvocate.co.uk
Oh Alex as a disabled person ( #ElhersDanlos) I understand this more than you could know .. it is those little self care things that can make a day or even a week .
Grateful to be able to do it 💜💜💜💜💜
April 22, 2026 at 12:16 PM
doingitdizzy.bsky.social
When it’s not even 9am and you’re breaking out the magic bag and tens machine 😵‍💫🤯
Oh and the 6yo is wanting 2nd breakfast 😶

#Hypermobile
#Disability
#ElhersDanlos
#SleptFunny
a woman in a suit says everything hurts and i 'm dying .
ALT: a woman in a suit says everything hurts and i 'm dying .
media.tenor.com
June 28, 2025 at 3:56 PM
survivefromspite.bsky.social
#chronicillness #relatable #meme #jointproblems #elhersdanlos
June 30, 2025 at 7:10 AM