#dynamicdisability
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serenebutterfly.bsky.social
"Sometimes my body gives me flashes of my old self, only to snatch them back. I never know which version of me I’ll wake up to." www.brainlesionandme.com/dynamic-disa...

#ChronicIllness #ChronicallyIll #Disability #DynamicDisability #NEISVoid
Dynamic Disability: The Truth About Life in an Unpredictable Body –
A personal journey of living with a dynamic disability, navigating mobility aids, imposter syndrome, and finding resilience in daily life.
www.brainlesionandme.com
November 2, 2026 at 4:30 PM
thecottagepeach.bsky.social
Comment TOOLS and I’ll send you my favorite garden tools for adapting the garden to my dynamic disability.

#dynamicdisability #autoimmunewarrior #arthritisawareness #chronicpainawareness
October 27, 2026 at 3:57 PM
serenebutterfly.bsky.social
Some days, being in my body is exhausting. 💗

Lately, my pain has increased, my legs have been trembling more, and they’ve been giving way more often, leading to more falls.

Living with chronic illness and disability can be relentless.

#ChronicIllness #Disability #NEISVoid #DynamicDisability
October 20, 2026 at 10:40 AM
serenebutterfly.bsky.social
"On good days, I feel dishonest calling myself #disabled. On the days I look fine, I feel as though I break an unspoken rule about what #disability should look like." www.brainlesionandme.com/dynamic-disa...

#DynamicDisability #NEISVoid #InvisibleDisabilitiesWeek
Dynamic Disability: The Truth About Life in an Unpredictable Body –
A personal journey of living with a dynamic disability, navigating mobility aids, imposter syndrome, and finding resilience in daily life.
www.brainlesionandme.com
October 20, 2026 at 2:29 PM
thezebraalliance.bsky.social
@chronicillness.bsky.social always has the best shares—from funny to compassionate 🩵🤗🩵

#chronicillness #raredisease #invisibleillness #disability #dynamicdisability #EDS #ehlersdanlossyndrome #HSD linktr.ee/thezebraalliance
Theres this quiet performance chronically ill people do where we say "I'm fine" while absolutely not being fine. We shrink the pain, soften the truth, crack a joke so no one feels uncomfortable. It's not denial. It's just easier to carry our symptoms than to carry someone else's awkwardness about them. MyBodyIsTryingToKillMe.com
October 12, 2026 at 6:39 PM
serenebutterfly.bsky.social
Thank you so much @achronicvoice.com for taking the time to share my blog post on the reality of living with a #DynamicDisability. It’s much appreciated! 🫶
achronicvoice.com A Chronic Voice @achronicvoice.com · 26d
"Outside, the world carries on uninterrupted..Cars pass. Life hums along. Inside my #body, the rules rewrite themselves without warning. It feels like being #gaslit by my own body. I insist I’m fine. My body..stubbornly disagrees.": buff.ly/ox669I2

by @serenebutterfly.bsky.social
#ChronicIllness
Dynamic Disability: The Truth About Life in an Unpredictable Body –
A personal journey of living with a dynamic disability, navigating mobility aids, imposter syndrome, and finding resilience in daily life.
buff.ly
October 9, 2026 at 11:54 AM
rachelsipperstudio.net
Intermittent access to long term medical treatments may suck, but it sure will disabuse one of any illusions that their #DynamicDisability isn’t real.
September 29, 2026 at 1:00 PM
thezebraalliance.bsky.social
The Zebra Alliance is here you 🩵🫂🩵

linktr.ee/thezebraalliance #chronicillness #chronicpain #disability #dynamicdisability #invisibleillness #raredisease #EDS #ehlersdanlossyndrome #mentalhealth
Drawing by @sketchy.whiskers Cat sitting on a couch, gesturing towards to cushion beside it. "You dont have to tell me what's wrong. Come sit with me anyway."
September 23, 2026 at 11:34 PM
thezebraalliance.bsky.social
What is your favorite adaptive/mobility aid(s)?
Some of mine include braces, heating pads, and hiking poles.

#adaptiveaids #chronicillness #chronicpain #disability #dynamicdisability #invisibleillness #EDS #ehlersdanlossyndrome #mobilityaid
ehlers-danlos.com The Ehlers-Danlos Society @ehlers-danlos.com · Sep 17
Do you have a favorite adaptive device or mobility aid?⁠
⁠
Mars Lombardi talks about dynamic disability & various types of adaptive aids and devices that can be helpful when managing pain and fatigue: youtu.be/03VfEULK65w?...

#PainAwarenessMonth #EhlersDanlosSyndromes #HypermobilitySpectrumDisorder
2023 Treatment: Adaptive Aids & Devices to Help with Symptoms - Mars Lombardi
YouTube video by The Ehlers-Danlos Society
youtu.be
September 23, 2026 at 12:05 AM
serenebutterfly.bsky.social
"Sometimes my body gives me flashes of my old self, only to snatch them back. I never know which version of me I’ll wake up to." www.brainlesionandme.com/dynamic-disa...

#ChronicIllness #ChronicallyIll #DynamicDisability #NEISVoid
Dynamic Disability: The Truth About Life in an Unpredictable Body –
A personal journey of living with a dynamic disability, navigating mobility aids, imposter syndrome, and finding resilience in daily life.
www.brainlesionandme.com
September 22, 2026 at 3:45 PM
serenebutterfly.bsky.social
Thank you so much @achronicvoice.com for taking the time to share my blog post on the reality of living with a #DynamicDisability. It’s much appreciated! 🫶
September 19, 2026 at 3:21 PM
thezebraalliance.bsky.social
DYK: September is Pain Awareness Month
If you live with #ChronicPain, what do you wish people without chronic pain understood?

linktr.ee/thezebraalliance #chronicillness #raredisease #invisibleillness #disability #dynamicdisability #mentalhealth #healthcare
Pain Awareness Month - International Association for the Study of Pain (IASP)
About September is Pain Awareness Month September is Pain Awareness Month, an annual campaign dedicated to increasing understanding of pain, pain management, and the experiences of people living with ...
www.iasp-pain.org
September 13, 2026 at 9:29 PM
thezebraalliance.bsky.social
Poll: Do you think Private Schools who get Public Funding should be required to accept children with disabilities?
TZA Opinion: Yes, they should be required to extend the same education to kiddos w disabilities as kiddos without.

linktr.ee/thezebraalliance #disability #dynamicdisability #education
propublica.org ProPublica @propublica.org · Sep 13
Some of the nation’s first statewide voucher programs were created specifically for students with disabilities.

But most legislatures haven’t required private schools that take this public money to accept even a few kids with such needs.
Vouchers Promise Students With Disabilities a Path to Private School. Parents Say That’s Not the Reality.
To give voucher programs a toehold in state legislatures, politicians touted how students with disabilities would gain access to private education. But those students’ families often have the hardest ...
www.propublica.org
September 13, 2026 at 6:06 PM
serenebutterfly.bsky.social
"I never feel safe in my body." www.brainlesionandme.com/disability-a...

#ChronicIllness #ChronicallyIll #DynamicDisability #Disability #NEISVoid
Disability And Its Hidden Anger: This Body Betrays Me –
An exploration of living with disability, where anger is both a shield and a source of grief and how it feels to have a body that betrays you
www.brainlesionandme.com
September 1, 2026 at 3:30 PM
thezebraalliance.bsky.social
Inclusive public spaces is an important topic for The Zebra Alliance community.

If your community managed to build an inclusive park, what steps happened to get from idea to completion? Your experience may help folks elsewhere.

#dynamicdisability #disabilities #disability #EDS #HSD #chronicillness
prbplus.bsky.social PRB+ Magazine @prbplus.bsky.social · Aug 20
In matters of inclusion, the right vendor knows how to go above and beyond for the community.

Read "The Only Standard" by Brandy Todd of Little Tikes Commercial for the full scoop: www.prbplus.com/the-only-sta...
August 25, 2026 at 12:27 PM
thezebraalliance.bsky.social
Humor can make all the difference during an otherwise crap-tastic day 😄😉

Follow @chronicillness.bsky.social for lots of giggles!
linktr.ee/thezebraalliance #chronicillness #raredisease #EDS #ehlersdanlossyndrome #invisibleillness #disability #dynamicdisability #mentalhealth #healthmeme #meme #memes
"How long as you surviving in the apocalypse" Brother im on 7 medications a day im cooked Chronic Illness Humor: Chronically ill people will be like, "I miss you," and then disappear for 5 years. nonbeans post Me: im feeling so creative today! I wanna deaw, I wanna write, I wanna create! I wanna play games! My disability: mhmm that great but I have strict plans foe you to have a 6 hours migraine where youre crying in bed and so nauseous you cant eat anything. Soooooo. She was beautiful like a mcflurry machine, yet broken also like a mcflurry machine
August 25, 2026 at 6:37 PM
thezebraalliance.bsky.social
A few more for you 😘😊

linktr.ee/thezebraalliance #chronicillness #raredisease #EDS #ehlersdanlossyndrome #invisibleillness #disability #dynamicdisability #mentalhealth #healthmeme #meme #memes #jokes
Another good one from Chronic Illness Humor 😄 Got Chinese for dinner, this was my fortune "Life difficult" When someone asks how your day is going "I wanna go home. I want a beer. I want an ice cream sandwich. I wanna take a nap. I wanna read a comic book. I wanna watch Little House on the Prairie. I want a vodka." How much my doctors know about my condition * two fingers holding a teeny-tiny book * How much I have to know to keep them from harming me * person reading a ridiculously huge book *
August 25, 2026 at 6:46 PM
serenebutterfly.bsky.social
Thank you so much @achronicvoice.com for taking the time to share my blog post on the reality of living with a #DynamicDisability. It’s very much appreciated! 🫶
achronicvoice.com A Chronic Voice @achronicvoice.com · Aug 25
"The #grief for my former body remains, along with days when the #unfairness of it all feels esp heavy..But slowly, I’m learning that my #body isn’t my enemy. It isn’t lying..It’s speaking in a language I’m still learning to understand.": buff.ly/uPmfLCe

by @serenebutterfly.bsky.social
#ChronicPain
Dynamic Disability: The Truth About Life in an Unpredictable Body –
A personal journey of living with a dynamic disability, navigating mobility aids, imposter syndrome, and finding resilience in daily life.
buff.ly
August 25, 2026 at 1:03 PM
corywysz.bsky.social
8/23/2026 ‐ #cwyszzebral8
Welcome to a month in the life of chronic illness: the highs, the lows, doctor visits in between

Stability Summary score in the @visible.health app? Let's do it!

#visible #pwME #chronicillnessiswar #dynamicdisability
August 24, 2026 at 5:22 PM
deerberrynz.bsky.social
I really enjoyed reading this - from someone with a #ChronicIllness and a #DynamicDisability I really appreciated it! (Watched both the original Fly movie and the Cronenberg last year, so absolutely got what you were saying! Need to check out some of the others you referred to that I haven't seen.)
August 11, 2026 at 8:44 PM
thegothautistic.bsky.social
It’s ok to use mobility aids everywhere! There’s no need for shame or feeling you’re not that bad. They are there to help you live better #mobilityaid #chronicallyill #chronicillness #dynamicdisability #disabled
January 9, 2025 at 7:29 PM
hannemiriam.bsky.social
👇🏿👇🏿👇🏿
#Disability #DynamicDisability #ChronicPain #ChronicIllness #Crip #EhlersDanlosSyndrome #EDSSucks
June 9, 2026 at 3:22 PM
hannemiriam.bsky.social
🎯
#Ableism #Crip #DynamicDisability #ChronicIllness
March 20, 2026 at 7:01 PM
hannemiriam.bsky.social
“The variability of my condition is something that I know a lot of society doesn’t understand. The truth is, I don’t really understand it either. All I ask is for people to be respectful.”
#DynamicDisability #ChronicIllness #EhlersDanlosSyndrome #Word
www.theguardian.com/commentisfre...
I’m a dancer who sometimes uses a wheelchair – people should just get over it | Kate Stanforth
Some wheelchair users can use their legs in certain circumstances. As my TV appearance proved, not everyone knows that, says Kate Stanforth, dancer and activist
www.theguardian.com
February 16, 2025 at 8:05 AM
stretchystoner.bsky.social
No one ever talks about the imposter syndrome that comes with having a dynamic disability. It’s really somethin special /s

#dynamicdisability #disabled #heds #eds #ehlersdanlossyndrome #impostersyndrome
January 18, 2025 at 2:01 PM