Attending @SABCSSanAntonio 2024 for the latest in #breastcancer & #metastaticbreastcancer research news?
#SABCS24 schedule ~ done ✅
‼️Be sure to note sessions featuring #patientadvocate voices‼️
#bcsm
@OncoAlert
#SABCS24 schedule ~ done ✅
‼️Be sure to note sessions featuring #patientadvocate voices‼️
#bcsm
@OncoAlert
November 29, 2024 at 1:35 PM
Attending @SABCSSanAntonio 2024 for the latest in #breastcancer & #metastaticbreastcancer research news?
#SABCS24 schedule ~ done ✅
‼️Be sure to note sessions featuring #patientadvocate voices‼️
#bcsm
@OncoAlert
#SABCS24 schedule ~ done ✅
‼️Be sure to note sessions featuring #patientadvocate voices‼️
#bcsm
@OncoAlert
🔗 You can find me on other platforms linktr.ee/sahara88uk_ 🔗
Find all of my #PatientAdvocate articles about topics such as #InflammatoryBowelDisease, #Ostomy life, #ChronicPain, #MentalHealth etc on my website advocatinghealth.com 🌐
#IBDSuperHeroes #IBD #GI #CrohnsDisease #UlcerativeColitis
Find all of my #PatientAdvocate articles about topics such as #InflammatoryBowelDisease, #Ostomy life, #ChronicPain, #MentalHealth etc on my website advocatinghealth.com 🌐
#IBDSuperHeroes #IBD #GI #CrohnsDisease #UlcerativeColitis
November 16, 2024 at 8:23 AM
🔗 You can find me on other platforms linktr.ee/sahara88uk_ 🔗
Find all of my #PatientAdvocate articles about topics such as #InflammatoryBowelDisease, #Ostomy life, #ChronicPain, #MentalHealth etc on my website advocatinghealth.com 🌐
#IBDSuperHeroes #IBD #GI #CrohnsDisease #UlcerativeColitis
Find all of my #PatientAdvocate articles about topics such as #InflammatoryBowelDisease, #Ostomy life, #ChronicPain, #MentalHealth etc on my website advocatinghealth.com 🌐
#IBDSuperHeroes #IBD #GI #CrohnsDisease #UlcerativeColitis
After decades of being a #ProudMom.
So very proud of myself.
That’s my philosophy y’all. Thank you for listening 🥰
If you’re a creative like me, make art. Art is salve. Keep going.
#rareartist #brilliantmindsnbc #raredisease #patientadvocacy #patientadvocate
So very proud of myself.
That’s my philosophy y’all. Thank you for listening 🥰
If you’re a creative like me, make art. Art is salve. Keep going.
#rareartist #brilliantmindsnbc #raredisease #patientadvocacy #patientadvocate
June 18, 2026 at 1:13 AM
After decades of being a #ProudMom.
So very proud of myself.
That’s my philosophy y’all. Thank you for listening 🥰
If you’re a creative like me, make art. Art is salve. Keep going.
#rareartist #brilliantmindsnbc #raredisease #patientadvocacy #patientadvocate
So very proud of myself.
That’s my philosophy y’all. Thank you for listening 🥰
If you’re a creative like me, make art. Art is salve. Keep going.
#rareartist #brilliantmindsnbc #raredisease #patientadvocacy #patientadvocate
Today is #WORDDay2025 — a global movement dedicated to raising awareness of rheumatic diseases in children and young people! 💙🌍
#PatientAdvocacy #PatientAdvocate #PatientEngagement #PatientInvolvement #MedicalCommunications #Rheumatology #RMDs #WORDDay #RheumaticDiseases #NothingAboutUsWithoutUs
#PatientAdvocacy #PatientAdvocate #PatientEngagement #PatientInvolvement #MedicalCommunications #Rheumatology #RMDs #WORDDay #RheumaticDiseases #NothingAboutUsWithoutUs
March 18, 2025 at 9:11 AM
Today is #WORDDay2025 — a global movement dedicated to raising awareness of rheumatic diseases in children and young people! 💙🌍
#PatientAdvocacy #PatientAdvocate #PatientEngagement #PatientInvolvement #MedicalCommunications #Rheumatology #RMDs #WORDDay #RheumaticDiseases #NothingAboutUsWithoutUs
#PatientAdvocacy #PatientAdvocate #PatientEngagement #PatientInvolvement #MedicalCommunications #Rheumatology #RMDs #WORDDay #RheumaticDiseases #NothingAboutUsWithoutUs
Your periodic reminder that you have the right to find out why your health insurer denied your claim.
We built a tool to help you do it: projects.propublica.org/claimfile/
We built a tool to help you do it: projects.propublica.org/claimfile/
Find Out Why Health Insurance Denied Your Claim
You likely have the right to access records that explain why your insurer denied your claim or prior authorization request. Use ProPublica’s free tool to generate a letter requesting your claim file f...
projects.propublica.org
October 8, 2025 at 2:22 AM
#ASCO25, I’ve arrived!! @ascocancer.bsky.social Annual Meeting is one I look forward to each year. I’m most proud of the #CancerSurvivor badge esp since this month’s my 9 yr #cancerversary. Grateful to @swog.org @supportingswog.bsky.social for making it possible for me to be here! #patientadvocate
May 30, 2025 at 8:18 PM
#ASCO25, I’ve arrived!! @ascocancer.bsky.social Annual Meeting is one I look forward to each year. I’m most proud of the #CancerSurvivor badge esp since this month’s my 9 yr #cancerversary. Grateful to @swog.org @supportingswog.bsky.social for making it possible for me to be here! #patientadvocate
Delighted to get ☕️ this morning with Allison Rosen, MS #patientAdvocate extraordinaire & #eoCRC #AYACSM survivor. I have appreciated all of her amazing work for over a decade to make sure that science keeps up with patient priorities. Excited to collaborate with her in the future. 🙌
November 11, 2024 at 4:16 PM
Delighted to get ☕️ this morning with Allison Rosen, MS #patientAdvocate extraordinaire & #eoCRC #AYACSM survivor. I have appreciated all of her amazing work for over a decade to make sure that science keeps up with patient priorities. Excited to collaborate with her in the future. 🙌
“New Thompson, Man., program provides birth helpers for First Nations mothers” - www.cbc.ca/lite/story/9... - #MaternalHealth #FirstNationsHealth #CulturalSafety #PatientAdvocate
New Thompson, Man., program provides birth helpers for First Nations mothers
www.cbc.ca
September 29, 2026 at 7:07 PM
“New Thompson, Man., program provides birth helpers for First Nations mothers” - www.cbc.ca/lite/story/9... - #MaternalHealth #FirstNationsHealth #CulturalSafety #PatientAdvocate
I was in the #ICU on a ventilator and I could not move, could not see, but I could feel and hear many things which were horrifying, especially if I was not treated as a person, but rather, a body in a bed. You never know what patients will remember. #Nurse #RN #PatientAdvocate
November 12, 2024 at 2:28 AM
I was in the #ICU on a ventilator and I could not move, could not see, but I could feel and hear many things which were horrifying, especially if I was not treated as a person, but rather, a body in a bed. You never know what patients will remember. #Nurse #RN #PatientAdvocate
see, the thing *i’m* genuinely worried about is that RFK will effectively ban vaccines
Breaking:
WASHINGTON (AP) - Health secretary removes every member of scientific committee that advises the CDC on how vaccines should be used.
WASHINGTON (AP) - Health secretary removes every member of scientific committee that advises the CDC on how vaccines should be used.
June 9, 2025 at 9:52 PM
Hi there! Test driving over here 🚙 I’m an 8 year metastatic #kidneycancer survivor turned #patientadvocate trying to make the best of the time I’ve been given. Any other #cancersurviors or fellow #oncology nerds? Let’s connect!
November 16, 2024 at 3:09 AM
Hi there! Test driving over here 🚙 I’m an 8 year metastatic #kidneycancer survivor turned #patientadvocate trying to make the best of the time I’ve been given. Any other #cancersurviors or fellow #oncology nerds? Let’s connect!
May 22, 2025 at 9:04 PM
Hi, I'm Marianne 😊 After years of dismissive care, I’m building tools to help patients speak up, feel prepared, and be heard. We deserve better.
#EDS #MTHFR #PatientAdvocate #spoonie #heds #zebrastrong #medicalgaslighting #speakuptoolkit #chronicillnesswarrior #ehlersdanlossyndrome #hypermobility
#EDS #MTHFR #PatientAdvocate #spoonie #heds #zebrastrong #medicalgaslighting #speakuptoolkit #chronicillnesswarrior #ehlersdanlossyndrome #hypermobility
June 5, 2025 at 10:02 PM
Hi, I'm Marianne 😊 After years of dismissive care, I’m building tools to help patients speak up, feel prepared, and be heard. We deserve better.
#EDS #MTHFR #PatientAdvocate #spoonie #heds #zebrastrong #medicalgaslighting #speakuptoolkit #chronicillnesswarrior #ehlersdanlossyndrome #hypermobility
#EDS #MTHFR #PatientAdvocate #spoonie #heds #zebrastrong #medicalgaslighting #speakuptoolkit #chronicillnesswarrior #ehlersdanlossyndrome #hypermobility
This is not a complaint, just a reminder that “everyday activities” often take extra everything when you live with #ChronicIllness.
#PatientAdvocate #IBDSuperHeroes #Crohns #Colitis #IBD #CrohnsDisease #UlcerativeColitis #IBDawareness #IBDVisible #InflammatoryBowelDisease #IBDWarrior #CutTheCrap
#PatientAdvocate #IBDSuperHeroes #Crohns #Colitis #IBD #CrohnsDisease #UlcerativeColitis #IBDawareness #IBDVisible #InflammatoryBowelDisease #IBDWarrior #CutTheCrap
June 25, 2025 at 2:13 PM
This is not a complaint, just a reminder that “everyday activities” often take extra everything when you live with #ChronicIllness.
#PatientAdvocate #IBDSuperHeroes #Crohns #Colitis #IBD #CrohnsDisease #UlcerativeColitis #IBDawareness #IBDVisible #InflammatoryBowelDisease #IBDWarrior #CutTheCrap
#PatientAdvocate #IBDSuperHeroes #Crohns #Colitis #IBD #CrohnsDisease #UlcerativeColitis #IBDawareness #IBDVisible #InflammatoryBowelDisease #IBDWarrior #CutTheCrap
Honored to be in @sarahschafermd.bsky.social recent newsletter. Her kind words about my book have me smiling from ear to ear! #autoimmunelife #sjogrens #patientadvocate
May 3, 2025 at 4:13 PM
Honored to be in @sarahschafermd.bsky.social recent newsletter. Her kind words about my book have me smiling from ear to ear! #autoimmunelife #sjogrens #patientadvocate
Happening tonight: Tuesday 1/14/25, 5 pm PT / 8 pm ET ~ #TumorBoardTuesday (#TBT) - HR+ #MBC! Join @zoezhang.bsky.social & @dr-rshatsky.bsky.social for this great educational session!
#bcsm
#PatientAdvocate
#bcsm
#PatientAdvocate
So excited to begin my #Medsky journey by presenting with my amazing clinic mentor @dr-rshatsky.bsky.social at
#TBT on new developments in HR+ MBC! ! It will be on Tuesday the 14th at 5pm pacific, 8pm eastern!
#bcsm #OncSky #CanSky #MedSky #breastcancer #MBC
#TBT on new developments in HR+ MBC! ! It will be on Tuesday the 14th at 5pm pacific, 8pm eastern!
#bcsm #OncSky #CanSky #MedSky #breastcancer #MBC
January 14, 2025 at 1:43 PM
Happening tonight: Tuesday 1/14/25, 5 pm PT / 8 pm ET ~ #TumorBoardTuesday (#TBT) - HR+ #MBC! Join @zoezhang.bsky.social & @dr-rshatsky.bsky.social for this great educational session!
#bcsm
#PatientAdvocate
#bcsm
#PatientAdvocate
When a clinic is designed for complex patients so it offers long appointments as standard, but you're the type of complex patient who can't make it through a long appointment without crashing 🙃.
#PatientAdvocate #Spoonie #SpoonieLife #ChronicIllness
#PatientAdvocate #Spoonie #SpoonieLife #ChronicIllness
March 12, 2025 at 11:32 PM
When a clinic is designed for complex patients so it offers long appointments as standard, but you're the type of complex patient who can't make it through a long appointment without crashing 🙃.
#PatientAdvocate #Spoonie #SpoonieLife #ChronicIllness
#PatientAdvocate #Spoonie #SpoonieLife #ChronicIllness
Time to do my weekly meds 💊 again. It would be great if they actually made me feel remotely "healthy" 🙄
#PatientAdvocate #IBDSuperHeroes #Crohns #Colitis #IBD #CrohnsDisease #UlcerativeColitis #IBDawareness #IBDVisible #InflammatoryBowelDisease #ItTakesGuts #NoColonStillRollin
#PatientAdvocate #IBDSuperHeroes #Crohns #Colitis #IBD #CrohnsDisease #UlcerativeColitis #IBDawareness #IBDVisible #InflammatoryBowelDisease #ItTakesGuts #NoColonStillRollin
March 22, 2025 at 11:21 AM
Time to do my weekly meds 💊 again. It would be great if they actually made me feel remotely "healthy" 🙄
#PatientAdvocate #IBDSuperHeroes #Crohns #Colitis #IBD #CrohnsDisease #UlcerativeColitis #IBDawareness #IBDVisible #InflammatoryBowelDisease #ItTakesGuts #NoColonStillRollin
#PatientAdvocate #IBDSuperHeroes #Crohns #Colitis #IBD #CrohnsDisease #UlcerativeColitis #IBDawareness #IBDVisible #InflammatoryBowelDisease #ItTakesGuts #NoColonStillRollin
What is a #patientadvocate ?
My answer: Someone who speaks up for the best interest of the patient despite fear of judgement.
#cardiosky
Tag a friend.
You go next
@accintouch.bsky.social
@drjaymohan.bsky.social
@cathlabedu.bsky.social
My answer: Someone who speaks up for the best interest of the patient despite fear of judgement.
#cardiosky
Tag a friend.
You go next
@accintouch.bsky.social
@drjaymohan.bsky.social
@cathlabedu.bsky.social
December 1, 2024 at 9:12 PM
What is a #patientadvocate ?
My answer: Someone who speaks up for the best interest of the patient despite fear of judgement.
#cardiosky
Tag a friend.
You go next
@accintouch.bsky.social
@drjaymohan.bsky.social
@cathlabedu.bsky.social
My answer: Someone who speaks up for the best interest of the patient despite fear of judgement.
#cardiosky
Tag a friend.
You go next
@accintouch.bsky.social
@drjaymohan.bsky.social
@cathlabedu.bsky.social
@abdulelsayed.bsky.social
Is this good faith medical treatment?
Can anything be done about this?
Please reach out to: contact@courage26.com
#patientadvocate
#journalist
#medicalmalpractice
#attorneys
#law
#workerscomp
#medicareforall
#patientsrights
#blues
Is this good faith medical treatment?
Can anything be done about this?
Please reach out to: contact@courage26.com
#patientadvocate
#journalist
#medicalmalpractice
#attorneys
#law
#workerscomp
#medicareforall
#patientsrights
#blues
September 16, 2026 at 4:33 PM
@abdulelsayed.bsky.social
Is this good faith medical treatment?
Can anything be done about this?
Please reach out to: contact@courage26.com
#patientadvocate
#journalist
#medicalmalpractice
#attorneys
#law
#workerscomp
#medicareforall
#patientsrights
#blues
Is this good faith medical treatment?
Can anything be done about this?
Please reach out to: contact@courage26.com
#patientadvocate
#journalist
#medicalmalpractice
#attorneys
#law
#workerscomp
#medicareforall
#patientsrights
#blues
Part 1- why are pain patients and pain meds seen as completely separate from other patients and meds?
#ChronicPainPatient #PainMeds #SickleCellDisease #PatientAdvocate #Stigma
#ChronicPainPatient #PainMeds #SickleCellDisease #PatientAdvocate #Stigma
January 9, 2025 at 1:31 AM
Part 1- why are pain patients and pain meds seen as completely separate from other patients and meds?
#ChronicPainPatient #PainMeds #SickleCellDisease #PatientAdvocate #Stigma
#ChronicPainPatient #PainMeds #SickleCellDisease #PatientAdvocate #Stigma
Caring for our patients starts with listening to them. #PatientsFirst #PatientAdvocate
November 13, 2024 at 6:31 AM
Caring for our patients starts with listening to them. #PatientsFirst #PatientAdvocate
You can find me on other platforms linktr.ee/sahara88uk
Find all of my #PatientAdvocate articles about topics such as #InflammatoryBowelDisease, #Ostomy life, #ChronicPain, #MentalHealth etc on my website advocatinghealth.com
Find all of my #PatientAdvocate articles about topics such as #InflammatoryBowelDisease, #Ostomy life, #ChronicPain, #MentalHealth etc on my website advocatinghealth.com
August 23, 2024 at 1:18 PM
You can find me on other platforms linktr.ee/sahara88uk
Find all of my #PatientAdvocate articles about topics such as #InflammatoryBowelDisease, #Ostomy life, #ChronicPain, #MentalHealth etc on my website advocatinghealth.com
Find all of my #PatientAdvocate articles about topics such as #InflammatoryBowelDisease, #Ostomy life, #ChronicPain, #MentalHealth etc on my website advocatinghealth.com
#CanSky
#OncoSky
#MedSky
#MedChat
#ScreenBetterCanada
#MedOnc
#MedOncology
#MedicalOncology
#MedEd
#Oncology
#CancerCare
#PatientCare
#CancerPatient
#Cancer
#ThanksCancer
#BreastCancer
#OncoDaily
#MetastaticCancer
#MBC
#MetastaticBreastCancer
#PatientAdvocate
#PatientPartner
#Stage4
#DeNovo
#OncoSky
#MedSky
#MedChat
#ScreenBetterCanada
#MedOnc
#MedOncology
#MedicalOncology
#MedEd
#Oncology
#CancerCare
#PatientCare
#CancerPatient
#Cancer
#ThanksCancer
#BreastCancer
#OncoDaily
#MetastaticCancer
#MBC
#MetastaticBreastCancer
#PatientAdvocate
#PatientPartner
#Stage4
#DeNovo
February 17, 2025 at 3:56 PM
“What might change if, before blaming the patient, we become curious about the mental health barriers behind their behavior?”
#patientadvocate
#patientadvocate
Before You Call a Patient 'Noncompliant'
Patients may struggle with treatment for reasons that are not immediately apparent. A broader clinical lens can help clinicians understand why and respond more effectively.
www.medscape.com
September 30, 2026 at 2:56 PM
“What might change if, before blaming the patient, we become curious about the mental health barriers behind their behavior?”
#patientadvocate
#patientadvocate