Six years ago, last night.
#LongCovid
#FirstWave
#NotRecovered
#MillionsMissing
#PASC
#CovidIsNotOver
#WearAMask
#LongCovid
#FirstWave
#NotRecovered
#MillionsMissing
#PASC
#CovidIsNotOver
#WearAMask
6 years ago this night I was burning up w fever, coughing up blood, hallucinating fever dreams, throwing up, unable to stand. I thought I was dying. I called my dad’s facility 7 times before I got thru to him; they were in chaos of lockdown. I’m glad I got to say goodbye
He had a stroke that night
He had a stroke that night
March 23, 2026 at 5:12 PM
Six years ago, last night.
#LongCovid
#FirstWave
#NotRecovered
#MillionsMissing
#PASC
#CovidIsNotOver
#WearAMask
#LongCovid
#FirstWave
#NotRecovered
#MillionsMissing
#PASC
#CovidIsNotOver
#WearAMask
"In 2022, a Journal of Voice study revealed that 30% of Broadway singers continued to experience vocal fatigue, reduced range, or chronic inflammation after recovering from COVID-19."
#NOTrecovered #longcovid
#NOTrecovered #longcovid
A ‘silent’ epidemic: has Covid-19 damaged the voices of artists like Macbeth's Rona Morison?
Last week’s incident with Lady Macduff raised a disturbing question: could the illness that swept through the cast in November still be exacting its toll weeks later?
www.thecanary.co/uk/analysis/...
Last week’s incident with Lady Macduff raised a disturbing question: could the illness that swept through the cast in November still be exacting its toll weeks later?
www.thecanary.co/uk/analysis/...
A ‘silent’ epidemic: has Covid-19 damaged the voices of artists like Macbeth's Rona Morison?
Voice loss at David Tennant’s Macbeth and the vocal health crisis in the performing arts: is it actually linked to Covid-19?
www.thecanary.co
December 21, 2024 at 6:14 PM
"In 2022, a Journal of Voice study revealed that 30% of Broadway singers continued to experience vocal fatigue, reduced range, or chronic inflammation after recovering from COVID-19."
#NOTrecovered #longcovid
#NOTrecovered #longcovid
I've been ill for 1094 days. How long still?
#notrecovered #niethersteld #longcovid #nationallongcovidawarenessday
#notrecovered #niethersteld #longcovid #nationallongcovidawarenessday
March 15, 2025 at 5:54 PM
I've been ill for 1094 days. How long still?
#notrecovered #niethersteld #longcovid #nationallongcovidawarenessday
#notrecovered #niethersteld #longcovid #nationallongcovidawarenessday
I do not understand the ongoing lack of protection from Covid in healthcare settings -
Is it hubris? Apathy? Reconciling moral injury? Misinformation? Delusion? Trauma response?
Am at a loss. I don’t know how to make them care anymore
#CovidIsNotOver #Immunocompromised #NotRecovered
Is it hubris? Apathy? Reconciling moral injury? Misinformation? Delusion? Trauma response?
Am at a loss. I don’t know how to make them care anymore
#CovidIsNotOver #Immunocompromised #NotRecovered
November 23, 2024 at 10:17 AM
I do not understand the ongoing lack of protection from Covid in healthcare settings -
Is it hubris? Apathy? Reconciling moral injury? Misinformation? Delusion? Trauma response?
Am at a loss. I don’t know how to make them care anymore
#CovidIsNotOver #Immunocompromised #NotRecovered
Is it hubris? Apathy? Reconciling moral injury? Misinformation? Delusion? Trauma response?
Am at a loss. I don’t know how to make them care anymore
#CovidIsNotOver #Immunocompromised #NotRecovered
Weißt du wie es ist (nicht) #vermisst zu sein?!
@johannesrauch.bsky.social @wernerkogler.bsky.social
#liegengelassen #NichtGenesen #notrecovered #massdisablingevent #mecfs #longCovid #NotRecovered
@johannesrauch.bsky.social @wernerkogler.bsky.social
#liegengelassen #NichtGenesen #notrecovered #massdisablingevent #mecfs #longCovid #NotRecovered
November 16, 2023 at 8:20 PM
Weißt du wie es ist (nicht) #vermisst zu sein?!
@johannesrauch.bsky.social @wernerkogler.bsky.social
#liegengelassen #NichtGenesen #notrecovered #massdisablingevent #mecfs #longCovid #NotRecovered
@johannesrauch.bsky.social @wernerkogler.bsky.social
#liegengelassen #NichtGenesen #notrecovered #massdisablingevent #mecfs #longCovid #NotRecovered
Excited to have finally gotten my butt in gear to move here...
(X has somehow become even worse in the past few weeks).
Looking forward to using a platform not filled with far right hate
#LongCovid #FBLC #MyalgicEncephalomyelitis #MECFS #LongCovidKids #Ireland #Irish ##NotRecovered #pwME
(X has somehow become even worse in the past few weeks).
Looking forward to using a platform not filled with far right hate
#LongCovid #FBLC #MyalgicEncephalomyelitis #MECFS #LongCovidKids #Ireland #Irish ##NotRecovered #pwME
February 6, 2025 at 2:49 AM
Excited to have finally gotten my butt in gear to move here...
(X has somehow become even worse in the past few weeks).
Looking forward to using a platform not filled with far right hate
#LongCovid #FBLC #MyalgicEncephalomyelitis #MECFS #LongCovidKids #Ireland #Irish ##NotRecovered #pwME
(X has somehow become even worse in the past few weeks).
Looking forward to using a platform not filled with far right hate
#LongCovid #FBLC #MyalgicEncephalomyelitis #MECFS #LongCovidKids #Ireland #Irish ##NotRecovered #pwME
Viele sind komplett ans Bett gefesselt und viel kränker als ich.
Wir bauchen endlich wieder ein Leben, das
lebenswert ist
#LongCovidAwarenessDay
#LongCovidAwareness
#notrecovered
5/
Wir bauchen endlich wieder ein Leben, das
lebenswert ist
#LongCovidAwarenessDay
#LongCovidAwareness
#notrecovered
5/
March 15, 2024 at 2:14 PM
Viele sind komplett ans Bett gefesselt und viel kränker als ich.
Wir bauchen endlich wieder ein Leben, das
lebenswert ist
#LongCovidAwarenessDay
#LongCovidAwareness
#notrecovered
5/
Wir bauchen endlich wieder ein Leben, das
lebenswert ist
#LongCovidAwarenessDay
#LongCovidAwareness
#notrecovered
5/
Check out the hashtags #NietHersteld (#NotRecovered) & #PAISProtest for posts on demonstrations today in The Hague, Netherlands & online in support of people with post-acute infection syndromes (PAIS) like Long Covid, Lyme, & ME/CFS. Very moving images representing those missing from public life.
Op het #Malieveld staan zo’n honderd rolstoelen, die nog vele mensen meer vertegenwoordigen die er niet bij kunnen zijn.
Ze zijn ernstig, langdurig ziek.
Online volgen ze alles.
Ik sta er voor hen.
#PAISprotest #NietHersteld #LiefdeVoorCéline
Ze zijn ernstig, langdurig ziek.
Online volgen ze alles.
Ik sta er voor hen.
#PAISprotest #NietHersteld #LiefdeVoorCéline
November 30, 2025 at 10:06 PM
Check out the hashtags #NietHersteld (#NotRecovered) & #PAISProtest for posts on demonstrations today in The Hague, Netherlands & online in support of people with post-acute infection syndromes (PAIS) like Long Covid, Lyme, & ME/CFS. Very moving images representing those missing from public life.
#MEawareness #liegengelassen #MillionsMissing #nichtgenesen #notrecovered #pwme #CovidIsntOver
December 15, 2023 at 9:16 PM
#MEawareness #liegengelassen #MillionsMissing #nichtgenesen #notrecovered #pwme #CovidIsntOver
You can try to ignore the truth, but the elephant in the room is only getting bigger and more powerful. The reality of #MEcfs, #LongCOVID, and other #PAIS cannot be dismissed. In the end, scientific truth always triumphs over denial.🙏
#MillionsMissing #NotRecovered
#MillionsMissing #NotRecovered
April 17, 2026 at 4:16 PM
You can try to ignore the truth, but the elephant in the room is only getting bigger and more powerful. The reality of #MEcfs, #LongCOVID, and other #PAIS cannot be dismissed. In the end, scientific truth always triumphs over denial.🙏
#MillionsMissing #NotRecovered
#MillionsMissing #NotRecovered
The charity give away is being done again!
Sign up to get a $50 gift card to donate to up to two US charities ($25 each)
@openmedf.bsky.social @meactnet.bsky.social & Simmaron Research all do research and/or advocacy for ME/CFS so this would make a difference 🩵
www.tisbest.org/redefinegift...
Sign up to get a $50 gift card to donate to up to two US charities ($25 each)
@openmedf.bsky.social @meactnet.bsky.social & Simmaron Research all do research and/or advocacy for ME/CFS so this would make a difference 🩵
www.tisbest.org/redefinegift...
#RedefineGifting Charity Gift Card Giveaway | TisBest
Help Us #RedefineGifting This Holiday Season ????✨Sign Up to Be Notified When Our #RedefineGifting Giveaway Launches!
www.tisbest.org
December 11, 2024 at 10:10 PM
I’m finding life quite hard at the moment. Nothing has changed, but I think that’s a big part of the problem.
The whole “no cure, no treatment, no hope” stuff is getting me down.
#LongCovid #LongCovidNZ #NotRecovered
The whole “no cure, no treatment, no hope” stuff is getting me down.
#LongCovid #LongCovidNZ #NotRecovered
February 10, 2026 at 11:51 AM
I’m finding life quite hard at the moment. Nothing has changed, but I think that’s a big part of the problem.
The whole “no cure, no treatment, no hope” stuff is getting me down.
#LongCovid #LongCovidNZ #NotRecovered
The whole “no cure, no treatment, no hope” stuff is getting me down.
#LongCovid #LongCovidNZ #NotRecovered
The bad news is that my #PEM #PostExertionalMalaise returned this afternoon. Struggling to walk, for the first time in months.
The good news is that I know what I need to do! And it's Half-Term, so I can easily recover 🙏
#LongCovid #Pacing #NotRecovered!
The good news is that I know what I need to do! And it's Half-Term, so I can easily recover 🙏
#LongCovid #Pacing #NotRecovered!
Thinking about it, I shouldn't be struggling like this today. My first (mild) fatigue, muscle weakness and muscle aches (arms and legs) since mid-December.
Despite resting for over an hour on the train, with my feet up, it's clear that I overdid it in the gym this week and last.
Despite resting for over an hour on the train, with my feet up, it's clear that I overdid it in the gym this week and last.
February 18, 2025 at 7:28 PM
The bad news is that my #PEM #PostExertionalMalaise returned this afternoon. Struggling to walk, for the first time in months.
The good news is that I know what I need to do! And it's Half-Term, so I can easily recover 🙏
#LongCovid #Pacing #NotRecovered!
The good news is that I know what I need to do! And it's Half-Term, so I can easily recover 🙏
#LongCovid #Pacing #NotRecovered!
Kopf wie leer, Schwindel, Fatigue knallen heute wieder stark.
Warum?
Gestern sind meine Emotionen mit mir durch, wegen einer Kleinigkeit an sich.
Die Rechnung dafür, Tag im Bett, abgedunkelts Zimmer, wenig Reize.
#LongCovid
#NotRecovered
#MECFS
Warum?
Gestern sind meine Emotionen mit mir durch, wegen einer Kleinigkeit an sich.
Die Rechnung dafür, Tag im Bett, abgedunkelts Zimmer, wenig Reize.
#LongCovid
#NotRecovered
#MECFS
August 30, 2023 at 4:26 PM
Kopf wie leer, Schwindel, Fatigue knallen heute wieder stark.
Warum?
Gestern sind meine Emotionen mit mir durch, wegen einer Kleinigkeit an sich.
Die Rechnung dafür, Tag im Bett, abgedunkelts Zimmer, wenig Reize.
#LongCovid
#NotRecovered
#MECFS
Warum?
Gestern sind meine Emotionen mit mir durch, wegen einer Kleinigkeit an sich.
Die Rechnung dafür, Tag im Bett, abgedunkelts Zimmer, wenig Reize.
#LongCovid
#NotRecovered
#MECFS
#meawareness #liegengelassen #notrecovered #nichtgenesen
August 28, 2023 at 8:37 PM
#meawareness #liegengelassen #notrecovered #nichtgenesen
That one day a week when you - as a patient with severe #MEcfs or #LongCovid - can briefly leave your home feels increasingly alienated from your own neighborhood over the years. This confrontation further reinforces the sense of loneliness.
#MillionsMissing #NotRecovered
#MillionsMissing #NotRecovered
May 5, 2026 at 4:55 PM
That one day a week when you - as a patient with severe #MEcfs or #LongCovid - can briefly leave your home feels increasingly alienated from your own neighborhood over the years. This confrontation further reinforces the sense of loneliness.
#MillionsMissing #NotRecovered
#MillionsMissing #NotRecovered
Hi, there :)
let's connect
#NEISvoid
#Mecfs
#Longcovid
#Pwme
#Pots
#ChronicIllness
#Dysautonomia
#SFN
#Mcas
#Eds
#Mcas
#NurGemeinsam
#MyalgicEncephalomyelitis
#NotRecovered
#MillionsMissing
#pwLC
(Feel free to add missing ones)
ALT: Cat with a hat sitting in boxes full of oranges
let's connect
#NEISvoid
#Mecfs
#Longcovid
#Pwme
#Pots
#ChronicIllness
#Dysautonomia
#SFN
#Mcas
#Eds
#Mcas
#NurGemeinsam
#MyalgicEncephalomyelitis
#NotRecovered
#MillionsMissing
#pwLC
(Feel free to add missing ones)
ALT: Cat with a hat sitting in boxes full of oranges
August 19, 2023 at 8:20 PM
Hi, there :)
let's connect
#NEISvoid
#Mecfs
#Longcovid
#Pwme
#Pots
#ChronicIllness
#Dysautonomia
#SFN
#Mcas
#Eds
#Mcas
#NurGemeinsam
#MyalgicEncephalomyelitis
#NotRecovered
#MillionsMissing
#pwLC
(Feel free to add missing ones)
ALT: Cat with a hat sitting in boxes full of oranges
let's connect
#NEISvoid
#Mecfs
#Longcovid
#Pwme
#Pots
#ChronicIllness
#Dysautonomia
#SFN
#Mcas
#Eds
#Mcas
#NurGemeinsam
#MyalgicEncephalomyelitis
#NotRecovered
#MillionsMissing
#pwLC
(Feel free to add missing ones)
ALT: Cat with a hat sitting in boxes full of oranges
My coronaversarry is next Friday.
Six years straight of being sick & isolated
I’m lucky to be alive but I also don’t know if I’d call this living: erased from my own life, left to rot
Entombed in my room
While the world looks away
#LongCovid
#FirstWave
#NotRecovered
#MillionsMissing
Six years straight of being sick & isolated
I’m lucky to be alive but I also don’t know if I’d call this living: erased from my own life, left to rot
Entombed in my room
While the world looks away
#LongCovid
#FirstWave
#NotRecovered
#MillionsMissing
"Long COVID — Here’s What To Know And The Challenges Ahead"
"Despite entering the 6th year since the emergence of the COVID-19 pandemic, the virus has not disappeared and the long-term consequences of infection continue"
Source: web.archive.org/web/20260303...
"Despite entering the 6th year since the emergence of the COVID-19 pandemic, the virus has not disappeared and the long-term consequences of infection continue"
Source: web.archive.org/web/20260303...
March 6, 2026 at 1:15 AM
My coronaversarry is next Friday.
Six years straight of being sick & isolated
I’m lucky to be alive but I also don’t know if I’d call this living: erased from my own life, left to rot
Entombed in my room
While the world looks away
#LongCovid
#FirstWave
#NotRecovered
#MillionsMissing
Six years straight of being sick & isolated
I’m lucky to be alive but I also don’t know if I’d call this living: erased from my own life, left to rot
Entombed in my room
While the world looks away
#LongCovid
#FirstWave
#NotRecovered
#MillionsMissing
Damit es bei mir nicht mehr so leer ist, eine kurze Vorstellung:
Auf Twitter hatte ich mich damals angemeldet, um unter #notrecovered mit für Awareness für #LongCovid und #MEcfs zu sorgen.
Das werden auch hier die Hauptthemen sein sowie #dieMaskeBleibtAuf und #CovidisntOver
Auf Twitter hatte ich mich damals angemeldet, um unter #notrecovered mit für Awareness für #LongCovid und #MEcfs zu sorgen.
Das werden auch hier die Hauptthemen sein sowie #dieMaskeBleibtAuf und #CovidisntOver
August 22, 2023 at 9:25 AM
Damit es bei mir nicht mehr so leer ist, eine kurze Vorstellung:
Auf Twitter hatte ich mich damals angemeldet, um unter #notrecovered mit für Awareness für #LongCovid und #MEcfs zu sorgen.
Das werden auch hier die Hauptthemen sein sowie #dieMaskeBleibtAuf und #CovidisntOver
Auf Twitter hatte ich mich damals angemeldet, um unter #notrecovered mit für Awareness für #LongCovid und #MEcfs zu sorgen.
Das werden auch hier die Hauptthemen sein sowie #dieMaskeBleibtAuf und #CovidisntOver
Liebe #LongCovid Bubble, Dinge entwickeln sich sehr gut beim #LongCovidFeed. Alle großen u wichtigen technischen Grundlagen stehen. Aktuell richte ich ein System ein, um Feedback und Fehler zu dokumentieren. #PostCovid #PEM #MECFS #notrecovered #diemaskebleibtauf
December 1, 2023 at 9:26 AM
Liebe #LongCovid Bubble, Dinge entwickeln sich sehr gut beim #LongCovidFeed. Alle großen u wichtigen technischen Grundlagen stehen. Aktuell richte ich ein System ein, um Feedback und Fehler zu dokumentieren. #PostCovid #PEM #MECFS #notrecovered #diemaskebleibtauf
Five years of #LongCovid
The pandemic isn't over. Those of you who can't imagine the true risks are folly to its dangers. You are risking everything to ignore covid
Long covid will take your health, your wealth, your fam & friends, your job, & all you hold dear
#NotRecovered
#NEISvoid
#disability
The pandemic isn't over. Those of you who can't imagine the true risks are folly to its dangers. You are risking everything to ignore covid
Long covid will take your health, your wealth, your fam & friends, your job, & all you hold dear
#NotRecovered
#NEISvoid
#disability
Really appreciate this thread. Lockdown never ended for me. I’m still stuck in that first weekend of the pandemic & been sick & isolated the entire time. My covidversarry is in 2 days. Entombed in my room while the world looks away. Everyone moved on when I never got well. It’s so brutal #LongCovid
March 11, 2025 at 9:16 PM
Five years of #LongCovid
The pandemic isn't over. Those of you who can't imagine the true risks are folly to its dangers. You are risking everything to ignore covid
Long covid will take your health, your wealth, your fam & friends, your job, & all you hold dear
#NotRecovered
#NEISvoid
#disability
The pandemic isn't over. Those of you who can't imagine the true risks are folly to its dangers. You are risking everything to ignore covid
Long covid will take your health, your wealth, your fam & friends, your job, & all you hold dear
#NotRecovered
#NEISvoid
#disability
"We vonden een significante associatie tussen het volume van de hippocampus en ernst van de #MEcvs & #LongCovid symptomen."
"Prof. Corey Smith zei dat hoewel de studie klein is,
het nog maar eens bevestigd dat deze ziektes fysiologisch
zijn en niet psychologisch."
#NotRecovered #MillionsMissing
"Prof. Corey Smith zei dat hoewel de studie klein is,
het nog maar eens bevestigd dat deze ziektes fysiologisch
zijn en niet psychologisch."
#NotRecovered #MillionsMissing
Studie toont hersenzwelling aan bij ME/cvs en LongCOVID.
YouTube video by ME/CVS - Infokanaal
youtu.be
March 13, 2025 at 1:39 PM
"We vonden een significante associatie tussen het volume van de hippocampus en ernst van de #MEcvs & #LongCovid symptomen."
"Prof. Corey Smith zei dat hoewel de studie klein is,
het nog maar eens bevestigd dat deze ziektes fysiologisch
zijn en niet psychologisch."
#NotRecovered #MillionsMissing
"Prof. Corey Smith zei dat hoewel de studie klein is,
het nog maar eens bevestigd dat deze ziektes fysiologisch
zijn en niet psychologisch."
#NotRecovered #MillionsMissing
Entombed in my room while the world looked away
I am still sick today, 5 years later
Still get fevers
Still have cough
Still get rashes
Still have eye & ear problems
Still can't taste or smell
Still have to use walker, wish I had wheelchair
Still more
Enough for now.
I'm so tired
#LongCovid
I am still sick today, 5 years later
Still get fevers
Still have cough
Still get rashes
Still have eye & ear problems
Still can't taste or smell
Still have to use walker, wish I had wheelchair
Still more
Enough for now.
I'm so tired
#LongCovid
March 24, 2025 at 9:16 PM
I shared the Mayo Clinic article about ME (published yesterday) with my parents, noting they could read about it to learn more about what I think Covid gave me. They basically said, we are believing you don’t have that and will be healed. Dismissal = Support or Empathy. #pwLC #notrecovered
October 5, 2023 at 3:02 AM
I shared the Mayo Clinic article about ME (published yesterday) with my parents, noting they could read about it to learn more about what I think Covid gave me. They basically said, we are believing you don’t have that and will be healed. Dismissal = Support or Empathy. #pwLC #notrecovered