#StillTheSame
May 6, 2026 at 2:01 AM
March 5, 2026 at 5:07 PM
Nothing new to say this #MEAwarenessDay. My brain’s wrecked, my body’s broken, and after 27 years, nothing has changed: no progress, no treatments, no cure. It's #StillTheSaME and the fury burns. Sending love & solidarity to you all. #LeftToRot
May 12, 2025 at 8:34 AM
After decades, everything is #StillTheSaME on this year's ME Awareness Day

On Monday 12 May the Canary and Not Recovered UK will be at Westminster protesting over how the state has abandoned people with ME - and we want you to get involved
www.thecanary.co/editorial/20...
After decades, everything is #StillTheSaME on this year's ME Awareness Day
So, on Monday 12 May the Canary and Not Recovered UK will be at Westminster protesting over ME/CFS - and we want you to get involved
www.thecanary.co
May 7, 2025 at 6:42 PM
feast your eyes on Goldie x Casisdead #StillTheSame commissioned by moi. read all about it www.instagram.com/the_confessi...
February 27, 2025 at 11:37 AM
I have been missing from life since 2000. So many #PwME are just existing, not living.
It is a much misunderstood, cruel, often mocked illness.
#MEawarenessDay #LearnFromME #BelieveME #MyalgicE #PwME #MillionsMissing
#StillTheSaME #WorldMEday #MEawarenessWeek #MEnotCFS
May 11, 2025 at 11:14 PM
ME is one of the cruellest diseases you can possibly have. Most people think it’s as insignificant as having a cold.

#May12 #MEAwarenessDay #StillTheSaME #StillSickStillFighting #ME #MECFS #SevereME #LongCovid #EndMEcfs #MEAction #MillionsMissing #GreatestMEdicalScandal #ThereForME #BerlinBuyers
May 12, 2025 at 8:06 AM
My day today.

Get dressed in blue 💙
Go to hospital for X-rays
Rest
Join in with #StillTheSaME #May12
Rest
Work
Rest.

'Happy '#MEAwarenessDay' M.E.eps 💙🫂
May 12, 2025 at 5:43 AM
Bob Segar & The Silver Bullet Band.
LIVE PERFORMANCE VIDEO

music.youtube.com/watch?v=Xl4f...

#LIVEMUSIC
#EPICBands
#SkyMusic
#StillTheSame
Bob Seger & The Silver Bullet Band - Still The Same (Live From San Diego, CA / 1978)
YouTube video by BobSegerVEVO
music.youtube.com
July 2, 2025 at 8:40 PM
I have been missing from life since 2000. So many #PwME are just existing, not living.
It is a much misunderstood, cruel, often mocked illness.
#MEawarenessDay #LearnFromME #BelieveME #MyalgicE #PwME #MillionsMissing
#StillTheSaME #WorldMEday #MEawarenessWeek #MEnotCFS
May 12, 2025 at 10:11 PM
I have been missing from: School, Work,Friendship,Teenage Years,All of my 20s,30s & I will soon be in my 40s,socialising,dating,life in general.I have been ill for over 25 years.
#MEawarenessDay #LearnFromME #BelieveME #MyalgicE #PwME #MillionsMissing
#StillTheSaME #WorldMEday #MEawarenessWeek
May 11, 2025 at 11:11 PM
Pretty much says it all. Still no education for medics/social care. Still no funds for research. Still no treatment. Still people being harmed by systems supposed to help.
#WorldMEDay #StillTheSaME #ThereForME #MEAwarenessDay #MEKills
May 12, 2025 at 2:03 PM
This remains my favourite article/blog I have ever written in 10 years of advocacy. I wrote this last year for @thecanaryuk.bsky.social with the help of Steve Topple and Hannah Sharland

Runs with today's theme - #StillTheSaME
Nothing has changed.

www.thecanary.co/opinion/2024...

#MEAwarenessDay
A decade of advocacy fighting for ME/CFS has left me angry and frustrated
Founder of ME Foggy Dog and Stripy Lightbulb CIC Sally Callow writes for us on her 10 years of advocacy and campaigning around ME/CFS
www.thecanary.co
May 12, 2025 at 11:30 AM
“Just take those old records off the shelf
I'll sit and listen to ’em by myself.”
-American singer-songwriter and guitarist Bob Seger, born on this day in 1945

#MusicSky #Rock #Roll #NightMoves #Katmandu #StillTheSame #BOTD
May 6, 2026 at 1:17 PM
Today,May 12th, is International ME Awareness Day & Fibromyalgia Awareness Day. These are cruel,misunderstood,often mocked conditions💙💜
#MENotCFS #PwME #MEawarenessDay #StillTheSaME #MillionsMissing #FibroAwarenessDay

www.daysoftheyear.com/days/fibromy...

www.daysoftheyear.com/days/interna...
International ME/CFS Awareness Day
Imagine waking up feeling like you ran a marathon in your sleep. Your muscles ache, your mind feels foggy, and even small tasks drain every bit of energy.
www.daysoftheyear.com
May 12, 2025 at 12:13 PM
Here's my AO3 wrapped for 2024! It's been a good year, I passed 630,000 cumulative words. I didn't include works that I started in 2023 and continued writing through this year, like Loose Ends, I'll Always Catch You, or Light in a Neon Abyss.
December 26, 2024 at 3:38 AM
Posting in solidarity with @thecanaryuk and @notrecovereduk

PLEASE get involved tomorrow

The wide (mis)treatment of ME or Chronic Fatigue Syndrome has been coined the biggest medical scandal of the 21st century.

🙏 thank you canary and Not Recovered

#stillthesame #meawarenessday
May 11, 2025 at 9:33 PM
I don’t have ME. I have post-polio syndrome which gives me enough experience to empathise.

www.thecanary.co/editorial/20...
After decades, everything is #StillTheSaME on this year's ME Awareness Day
So, on Monday 12 May the Canary and Not Recovered UK will be at Westminster protesting over ME/CFS - and we want you to get involved
www.thecanary.co
May 8, 2025 at 8:47 AM
The ME Association joins other organisations to sign a joint statement for World ME Day - The ME Association #WorldMEday #ThereForME #BelieveME #MEawareness #PwME #StillTheSaME #MEawarenessDay #MEawarenessWeek #PwME #MyalgicE
meassociation.org.uk/2025/05/the-...
The ME Association joins other organisations to sign a joint statement for World ME Day - The ME Association
For World ME Day 2025, the ME Association has signed […]
meassociation.org.uk
May 12, 2025 at 3:26 PM
Três anos de 'andamento', média de 10.000 por mês.
Tirando uns 30% de movimento caseiro, ainda são mais 8.200.000 passos! E mais de 5.800 Kms!
#walking #3years #stillthesame
July 26, 2026 at 7:54 PM