#hypermobileEDS
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ehlers-danlos.com
Dysautonomia can occur in people with Ehlers-Danlos syndromes (EDS) & hypermobility spectrum disorders (HSD). Most research on #dysautonomia in #EDS & #HSD has focused on #hypermobileEDS (hEDS) and HSD. Dysautonomia has also been reported in people with other types of EDS, including #cEDS & #vEDS.
October 2, 2026 at 1:03 PM
ehlers-danlos.com
"Receiving my diagnosis didn’t change who I was, but it changed how I understood myself. Suddenly, years of seemingly unrelated symptoms made sense." www.ehlers-danlos.com/story/disa-k/ #HypermobileEDS #hEDS
I don’t want my diagnosis to be the end of my story - The Ehlers Danlos Society
If you had met me years ago, you probably would have seen someone who looked healthy, capable, and full of energy. What you wouldn’t have seen was the constant effort
www.ehlers-danlos.com
September 28, 2026 at 4:40 PM
rowynnellis.bsky.social
Recently I was diagnosed with Hypermobile EDS. I also struggle with acute tendonitis in my drawing hand and muscle pains. Any other artists out there have any tips and tricks on how to make the creative experience more comfortable and less hurty? 😅

#eds #hypermobileeds
May 30, 2026 at 5:40 AM
ehlers-danlos.com
Dr. Clair Francomano explains the clinical examination process and diagnostic criteria for identifying hypermobile Ehlers-Danlos syndrome (hEDS) youtu.be/a9nLUwZNdbY?...

#hypermobility #hypermobileeds #EhlersDanlosSyndrome
How Doctors Diagnose Ehlers-Danlos Without Genetic Testing
YouTube video by Doctor Clair
youtu.be
December 10, 2025 at 5:05 PM
inthedarkofnight.bsky.social
Common symptoms of EDS.
#heds #hypermobileeds #chronicpain #chronicillness #chronicpain
January 21, 2025 at 6:36 PM
occultotter.bsky.social
It's Ehlers Danlos Syndrome Awareness month.
This illness makes me feel like I'm rotting from the inside out sometimes.
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Ignore these:
#art #artist #digitalart #digitalartist #disabledartist #ehlersdanlossyndrome #hypermobileeds #artwork
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May 16, 2025 at 5:32 AM
ehlers-danlos.com
New research into #hypermobileEDS! www.ehlers-danlos.com/exciting-new...
Exciting New Research Sheds Light on hEDS Biology - The Ehlers Danlos Society
We are excited to share a new paper published yesterday: Proteomic discoveries in hypermobile Ehlers–Danlos syndrome reveal insights into disease pathophysiology by Griggs M, Gensemer C, et al. (Immun...
www.ehlers-danlos.com
September 18, 2025 at 1:41 PM
ehlers-danlos.com
This week's Research Roundup features recent studies on #myopathicEDS (mEDS) and #hypermobileEDS (hEDS). ⁠
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These studies explore #genetics, chronic pain, swallowing difficulties, and parenting perspectives in rare conditions. www.ehlers-danlos.com/research-rou...
Research Roundup: New Research in EDS and HSD - The Ehlers Danlos Society
This week’s Research Roundup features recent studies on myopathic EDS (mEDS) and hypermobile EDS (hEDS). These studies explore genetics, chronic pain, swallowing difficulties, and parenting perspectiv...
www.ehlers-danlos.com
May 14, 2026 at 3:35 PM
funfettiheart.bsky.social
I'm uhhhh not made well
#myart #illustration #chronicpain #hypermobileeds #elhersdanlossyndrome
Pink see through slime person with short slime hair facing forwards, looking worried. Their hand is on their thigh and they're stood unstable-y. They're wearing a white T-shirt and pink trousers with cuffed ankles. You can see their knee dislocating in an X-ray view.
February 8, 2025 at 9:10 PM
dravenxivuk.bsky.social
Interesting News in Health article on connective tissue disorders including a note on research into potential treatments

#elhersdanlossyndrome #hypermobileEDS #hEDS #MarfanSyndrome #marfans #chronicillness

newsinhealth.nih.gov/2024/09/conn...
Connective Tissue Disorders
Your body’s connective tissues, like tendons and ligaments, help your joints move. They also give structure and flexibility to skin, blood vessels, and more. But connective tissues disorders can cause...
newsinhealth.nih.gov
November 15, 2024 at 4:01 PM
dravenxivuk.bsky.social
Quick 5 minute read by Dr Cortney Gensemer & Linda Bluestein, M.D. debunking myths around EDS & HSD
#hEDS #hypermobilityspectrumdisorder #EDS #HSD #elhersdanlossyndrome #hypermobileEDS #chronicillness #lindabluestein #CortneyGensemer

www.hypermobilitymd.com/post/dangero...
Dangerous EDS and HSD Myths Debunked by EDS Experts
Are you frustrated by the amount of misinformation spreading like wildfire across the internet about Ehlers-Danlos Syndromes and Hypermobility Spectrum Disorders?  We are too.  This is precisely why D...
www.hypermobilitymd.com
November 15, 2024 at 4:30 PM
ehlers-danlos.com
Dr. Sarah Cohen-Solomon explains how #HSD and #hEDS comorbidities affect day-to-day activities, pacing techniques and approaches, and why it's important for the short and long term, and picking back up after a setback: youtu.be/qOujPfvwplQ?...

#PainMonth #HypermobileEDS
2025 Symposium - How do I Keep Going When Everything Hurts? - Dr. Sarah Cohen-Solomon
YouTube video by The Ehlers-Danlos Society
youtu.be
September 13, 2026 at 5:11 PM
audlyhearing.bsky.social
I know we’re normally “zebras”, but in this case, I may be a giraffe? 🦒🦓😂😭 #hEDS #EDS #EhlersDanlosSyndrome #Hypermobile #HypermobileEDS #RareDisease
Giraffe with a bent/wonky neck. Greenery and blue sky as the background.
September 4, 2025 at 10:34 PM
ehlers-danlos.com
The temporomandibular joint (TMJ) connects the lower jaw to the skull. It plays an important role in speaking and chewing.⁠
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Some people with #classicalEDS, #hypermobileEDS, or #hypermobilityspectrumdisorders may experience problems with this joint or the muscles and ligaments that support it.⁠
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Educational infographic from The Ehlers-Danlos Society about temporomandibular joint dysfunction (TMJ). The title reads "Temporomandibular Joint Dysfunction." The graphic lists common symptoms: clicking, popping, or grinding when moving the jaw; difficulty opening the mouth fully; jaw locking when opening the mouth; and pain around the jaw, ear, or temples. It notes that these symptoms can make speaking more difficult. Below the text is a side-view illustration of a skull with the temporomandibular joint highlighted in red to show the affected area.
August 3, 2026 at 9:12 AM
ehlers-danlos.com
Some people with #periodontalEDS (pEDS), #hypermobileEDS (hEDS), or #hypermobilityspectrumdisorders (HSD) have trouble producing or sustaining their voice, also known as #dysphonia.⁠
Educational infographic from The Ehlers-Danlos Society about dysphonia (difficulty producing or sustaining the voice). It explains that some people with periodontal EDS, hypermobile EDS (hEDS), or hypermobility spectrum disorders (HSD) may have a hoarse, weak, breathy, or strained voice. Possible causes include poor coordination or hypermobility of the vocal cords, reduced vocal cord vibration due to tissue differences, and reduced movement of the cricoarytenoid joint, which controls vocal cord position and movement. An illustration shows a person holding their throat to indicate voice or throat discomfort.
August 3, 2026 at 5:25 PM
nightskynegative.bsky.social
★ ✮ ★ About me☆ ★ ✮ ★
★ Name- Night
✮ Age- 20
★ Gender- Agender
✮ Pronouns- They/them
★ Interests- History (especially Victorian), Vocaloid, anime, art
✮ Hobbies- Making vocaloid cover songs, Drawing, Collecting vocaloid merch
★ Extra- Disabled with autism, hypermobileEDS and POTS.
February 17, 2025 at 4:33 PM
hypermobilityhq.bsky.social
Incurable does not mean untreatable❣️

If anyone in the hypermobile/heds/hsd/other connective tissue disorders involving hypermobile connective tissues club sees this lmk (it feels so lonely on here 🥲). Also if you could teach me how to use this app that would be great😆

#hypermobileeds #hsd
January 21, 2025 at 5:03 PM
mostlymosspoetry.bsky.social
i already knew i could do most of the things on the beighton scale but im once again getting a little freaked out by my symptoms, can i go to my (very open-minded) gp about a diagnosis or a referral? #hypermobility #hypermobileeds #eds #medicaladvice
August 6, 2026 at 6:27 PM
kathleeniscreating.bsky.social
see and in doing so i’ve found what may be the cause of my worst symptoms this past year and other lifelong symptoms! that no doctor has brought up as a possible comorbidity to the main big concern! because there are so fucking many! #ehlersdanlossyndrome #ohmygod #hypermobile #hypermobileeds
June 6, 2025 at 9:07 AM
dravenxivuk.bsky.social
Dr Francomano on the challenges & potential reasons behind the lack of a genetic marker for hEDS
#elhersdanlossyndrome #hEDS #HypermobileEDS #DrClairFrancomano #chronicillness
November 14, 2024 at 3:21 PM
blooming-aloe.bsky.social
Hey, fellow #hEDS and #HSD zebras with unstable wrist, hand, and finger joints: thoughts on those rectangular flappy topped veggie choppers. (I don't have the spoons to hand chop veggies anymore.)
#EhlersDanlosSyndrome #HypermobilitySpectrumDisorder #hypermobileEDS #HypermobilityNeeds
January 13, 2026 at 4:44 PM