#dynamicdisabilities
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neuroticfox5.bsky.social
#stage4endometrosis #audhd #cptsd #endometrialflare #flaring #dynamicdisabilities #Endometriosis #chronicpain #Fibromyalgia #disabledartist #disabledstreamer #twitch
September 21, 2026 at 1:27 PM
todd-m-stein.bsky.social
#ChronicallyIll
#ChronicPain
#Disabled
#DynamicDisabilities
#MyPainMatters
#PainChangesPeople
#ChronicPainChangesEverything
#UntreatedPainIsTorture
#99PrescriptionsButAPainPillAintOne
#OpioidsAreLegitPainMeds
#ButYouDontLookSicm
#InvisibleDisabilities
#HomeboundSince2015
#InPainOver21Years
#HelpMe
September 21, 2026 at 1:55 AM
achronicvoice.com
More participants needed — will you join us and help to raise #awareness on #InvisibleIllness? :)

#advocates #ChronicIllness #DynamicDisabilities
achronicvoice.com A Chronic Voice @achronicvoice.com · May 26
[New] A new little #SideProject I will be working on over the next couple months — contribute your thoughts & experiences about your last #PainFree day in the roundup, to highlight just how rare that is when you live with a #ChronicIllness! buff.ly/DyIF7vG

#ChronicPain #ChronicLife #CPP #advocate
Chronic illness community roundup. #YourVoiceMatters. "When was the last time you had a pain-free day?" Contribute on a chronic voice .com
May 31, 2026 at 9:12 AM
thezebraalliance.bsky.social
Ehlers Danlos Syndrome is more than being bendy. 🩵🦓🩵

#EDS #ehlersdanlossyndrome #HSD #chronicillness #chronicpain #raredisease #invisibleillness #dynamicdisabilities #disability
A list of 35+ things most people do not know about Ehlers Danlos Syndrome
July 23, 2025 at 11:57 PM
achronicvoice.com
"For #patients who are battling invisible #pain ..being able to convey where your pain is located, how often it happens, and the depth of discomfort it causes is key.": buff.ly/dEnHQ40

by @carriekellenberger.bsky.social
#fibromyalgia #ChronicPain #ChronicIllness #DynamicDisabilities
February 10, 2026 at 9:30 AM
thezebraalliance.bsky.social
Every. Darn. Day. 🤪😅
Life with Chronic Illness is no joke, though. 😞🩵🦓🩵

#ChronicIllness
linktr.ee/thezebraalliance

#EDS #ehlersdanlossyndrome #raredisease #invisibleillness #dynamicdisabilities #disability #healthmemes #memes #chronicpain
Very sad looking Rooster: missing a lot of feathers!!! "What did you do today?" Me: Survived, I survived.
July 22, 2025 at 7:40 PM
thezebraalliance.bsky.social
“Ableist ideas & beliefs affect people w disabilities in all aspects of life, including employment, healthcare, education, housing, transportation, etc. These ideas & beliefs create systems that discriminate and oppress people w #disabilities.” - Theo W. Braddy ♿️
#chronicillness #dynamicdisabilities
September 1, 2025 at 2:07 PM
achronicvoice.com
“If you want to be #disability - #inclusive with yr #writing, but you do not have that particular disability, then PLEASE, for the love of all things holy, Do. Your. #Research.": buff.ly/LtLg79q

by @dmcwriter.bsky.social
#WritingTips #writer #WritingCommunity #DisabledPeople #DynamicDisabilities
How to Be Disability-Inclusive Without Being Offensive
Plus, book reviews and calls for submission!
buff.ly
July 10, 2026 at 8:30 AM
achronicvoice.com
“Managing a #ChronicIllness isn’t a problem you solve once. It’s something you negotiate with constantly — and the terms keep changing. Your #body changes. Your #symptoms shift. What worked in Jan stops working in March.”: buff.ly/iafYbNt

#disability #DynamicDisabilities
By @thethrivingspoonie.com
Why Chronic Illness Management Never Stops Being Hard
Still figuring it out after all this time? That's not failure — that's what it actually looks like to manage a chronic illness. You're not behind.
buff.ly
April 10, 2026 at 5:30 PM
achronicvoice.com
"I know that as soon as I get out of a #wheelchair & begin to #walk, many people will, at best, wonder what’s going on–or at worst, #assume I must be faking it. I feel gazes follow me: curious, suspicious.": buff.ly/QlRNsjV

by itsmevox
#disability #DynamicDisabilities
The Truth Disabled People Are Tired of Hiding
On dynamic disability, invisible illness, and learning to stop faking it.
buff.ly
September 7, 2025 at 6:30 AM
onesickvet.bsky.social
Been in a trough for 7-8 weeks now. Back to wondering what caused it and whether this is my new normal. So frustrating!

#DynamicDisabilities
September 8, 2026 at 5:51 PM
achronicvoice.com
"But there’s no way of knowing from looking at a person whether they have a genuine need for the #DisabledToilet ..Many of us, including myself with #ileostomy #StomaBag, are already a nervous wreck having to use the #disabled toilet.": buff.ly/nDOj8RI

by invisiblyme
#DynamicDisabilities
Invisible Disabilities : How Docs, Patients & Public Can Help - Invisibly Me
How patients, doctors & the public can help challenge stigma & make a difference in the lives of those with chronic invisible disabilities.
buff.ly
November 29, 2025 at 4:30 PM
achronicvoice.com
"When people ask how I am, I try not to default to 'fine'. Sometimes I say, “I’m managing.” Sometimes, “Today’s a #crutch kind of day.” Other times, I simply say, “I’m here.” And that is enough.": buff.ly/BSUJD1j

by @serenebutterfly.bsky.social
#disability #DynamicDisabilities #spoonie #ChronicPain
Dynamic Disability: The Truth About Life in an Unpredictable Body –
A personal journey of living with a dynamic disability, navigating mobility aids, imposter syndrome, and finding resilience in daily life.
www.brainlesionandme.com
September 19, 2026 at 1:30 PM
achronicvoice.com
“Instead of debating who “counts” as #disabled, we should be fighting for a world where #accessibility is the default. Because the real problem..is a system that still refuses to accommodate either one.”: buff.ly/nnvsgvz

#inclusion #ChronicIllness #DynamicDisabilities
by @unremarkableme.bsky.social
The Reality of Dynamic Disability: Progress or Just Another Hurdle?
"Oh, so you only use a cane sometimes? Must be nice to be able to turn your disability on and off!"Ah yes, the Olympic sport of explaining your existence to skeptics. If you have a dynamic…
buff.ly
May 6, 2025 at 7:30 PM
achronicvoice.com
"A vast majority of #storylines with #disabled #characters are terrible because they either portray #DisabledPeople as inspirational, make us suicidal or are miraculously cured of an incurable #disability.": buff.ly/LgCMQK4

by sarahlynn358
#films #stigma #ChronicIllness #DynamicDisabilities
How To Improve Movies With Disabled Characters
When there is a movie with a disabled character, non-disabled people often enjoy it because they don’t see the inaccuracies that are harmful to the disabled community that disabled people do.…
myrockindisabledlife.com
February 22, 2026 at 10:30 AM
achronicvoice.com
“We never really know what’s going on in other people’s lives. If you want people to begin #understanding your cues, then start paying attention to theirs. Everyone has stuff.”: buff.ly/oilfXym

via @themightysite.bsky.social
#ChronicPain #InvisibleDisabilities #BeKind #DynamicDisabilities #spoonies
A Recipe for Asking for Help When You Have a Disability
"Humor is the ultimate dipping sauce for everything."
buff.ly
March 1, 2026 at 4:30 AM
achronicvoice.com
"Each [ #MobilityAid ] corresponds to a different version of me. Some days, I use all three within twenty-four hours, an exhausting one-woman show with far too many costume changes.": buff.ly/jsl5uOp

by @serenebutterfly.bsky.social
#NEisVoid #ChronicPain #InvisibleIllness #DynamicDisabilities
Dynamic Disability: The Truth About Life in an Unpredictable Body –
A personal journey of living with a dynamic disability, navigating mobility aids, imposter syndrome, and finding resilience in daily life.
buff.ly
June 7, 2026 at 6:30 AM
achronicvoice.com
“ #Society loves a simple clear-cut #disability narrative: you’re either #disabled or you’re not. You either need #MobilityAids all the time, or you’re faking it..But for millions of people, ability is not a fixed state.”: buff.ly/qwvDthM

#DynamicDisabilities
By @unremarkableme.bsky.social
The Reality of Dynamic Disability: Progress or Just Another Hurdle?
"Oh, so you only use a cane sometimes? Must be nice to be able to turn your disability on and off!"Ah yes, the Olympic sport of explaining your existence to skeptics. If you have a dynamic…
buff.ly
March 7, 2025 at 6:30 PM
achronicvoice.com
" #MS has a way of making you question your own #reality. One day, you’re managing a full to-do list, but the next, fatigue hits so hard it feels like gravity has multiplied.": buff.ly/zjJkvlU

via @bezzycommunity.bsky.social
#awareness #ChronicIllness #DynamicDisabilities #NEisVoid #ChronicPain
Invisible Symptoms Don’t Have to Stay That Way
Over time, I’ve learned how invisible symptoms and silence can distance you from others. I’ve also learned what helps rebuild connection.
www.bezzyms.com
June 4, 2026 at 8:30 AM
achronicvoice.com
Everyone accepts their #disability at different rates & that is okay because it doesn’t matter how long it takes, and the only thing that matters is that u r putting in the work to get there.": buff.ly/FTO1406

by sarahlynn358
#ChronicIllness #disabled #acceptance #spoonie #DynamicDisabilities
How To Accept An Incurable Disability Or Chronic Illness
Disability acceptance can be difficult for disabled and chronically ill people because we live in a world that think there is something wrong with disabled people that needs to be fixed. Many disab…
buff.ly
January 23, 2026 at 9:30 AM
achronicvoice.com
“I don’t like to use the term #DifferentlyAbled ..because it implies that #disability is bad and that I am not #disabled but it doesn’t matter what terms you choose to use it doesn’t change the fact I am still disabled.”: buff.ly/vkWO7cf

by MyRockinDisabledLife
#awareness #DynamicDisabilities
Disability Terminology And What It Means
If You Liked This Post Please Subscribe For Weekly Updates When it comes to disability there are a lot of terms that disabled people can use to identify and there is no term that I can tell you tha…
buff.ly
May 23, 2025 at 4:30 AM
achronicvoice.com
"We may be #disabled and our #ChronicIllnesses may be unpredictable. But one thing is for certain – we all have our #strengths. We need only find a #sustainable way to maximise them.": buff.ly/XwHRpWN

#career #working #spoonie #DynamicDisabilities #ChronicPain #disability #awareness #inclusion
Inclusion At Work Matters — We all have our strengths, including those with chronic illnesses or disabilities. Adaptation lies at the heart of humanity, and builds up a resilient workforce. Read the post on: A Chronic Voice .com
June 10, 2026 at 9:30 PM
achronicvoice.com
"Identifying as #disabled means I stand a chance of getting what I need. Much the way my #pain is not static, being disabled is not a fixed position, necessarily.": buff.ly/BKH71NZ

via @Longreads.com / @christytending.bsky.social
#disability #ChronicPain #ChronicIllness #DynamicDisabilities
Things That Able Me - Longreads
Christy Tending | Longreads | February 2, 2023 | 14 minutes (3,768 words) There are things that able me. A chair. One person speaking to me at a time. Shoes that are not cute, but spare me nerve…
buff.ly
February 5, 2026 at 12:30 PM
thezebraalliance.bsky.social
Do you have a loved one with chronic illness(es)?
Or, can you relate to this? How does this make you feel?

#ehlersdanlossyndrome #eds #chronicillness #raredisease #invisibleillness #dynamicdisabilities #disability #mentalhealth #health
Chronic Illness: If you ask how I am, and I say good, know that my good is your OK. If I say OK, know that my OK is your bad. And if I say bad, know that means I am struggling to survive and make it through the day - physically, and more likely than not, also mentally. And if I say terrible... you will never hear me say bad or terrible as I don't like to burden people with that knowledge, but that doesn't mean it doesn't happen (regularly).
April 22, 2025 at 5:25 PM