#disabilitysos
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carriemcginn.bsky.social
🆘 Save Our Support Systems 👫
🆘 Save Our Science 🔬
🆘 Save Our Society 🌍

I am in solidarity with meactnet.bluesky.social protestors in DC & #pwME at home for #MillionsMissing 2025.

There are #NoTreatmentsNoCures for #MyalgicEncephalomyelitis & #LongCovid.

#DisabilitySOS #MECFS #MECFSAwarenessDay
Illustration of the Statue of Liberty drowning underwater. It's written: "#MEAction #MillionsMissing SOS. I am one of the 2025 #MillionsMissing. Save our Support Systems, Save our Science, Save our Society."
May 13, 2025 at 1:54 AM
phillyphile215.bsky.social
I nominate @zenosfrudakis.bsky.social to join our fight! His Freedom Sculpture epitomizes the experience of ME! Will you look into #GreatestMEdicalScandal and help us bring #MillionsMissing back to safety? 🙏🛟 Learn more at johnvsjon.com @johnvsjonvsme.bsky.social #MyalgicEncephalomyelitis #MEcfs
A lifeguard safety MEme. At the top, “We need a whole team of lifeguards to sound the alarm” in black text. Below the top, “#GreatestMEdicalScandal #MillionsMissing #DisabilitySOS” in red text. On right side, “I nominate Zenos Frudakis for this” in red text. On left side, an image of Zenos Frudakis as a lifeguard holding a red and white safety floatation ring. The background is a photograph of an enormous ocean wave crashing near the shoreline. At the bottom, “#JohnVsJonVsME” in black text.
May 13, 2025 at 3:21 PM
flissaki.bsky.social
There are #MillionsMissing from their lives. WE NEED MORE FUNDING

Today is ME awareness day. Will @wesstreeting.bsky.social
@ashleydaltonmp.bsky.social
#FundThePlan?

@meactionuk.bsky.social
@thereforme.bsky.social
#DisabilitySOS
@alancampbellmp.bsky.social
@nihr.bsky.social

2/3
Photo showing the UK parliament in black and white, with SOS MILLIONS MISSING UK superimposed in large white letters
May 12, 2025 at 8:42 AM
sarahnoia.bsky.social
Today is #MEawarenessday

Please watch, listen, share, donate, and spread the word.
This video made by @ethyricalartist.bsky.social was so powerful and made me cry. 💜
#MEawarenessDay #DisabilitySOS #SaveMedicaid
#MyalgicEncephalomyelitis #DisabilityJustice #mutualaid #disability #chronicillness
May 12, 2025 at 10:52 PM
destinytoro.com
3/ PLEASE pay attention today to the #MillionsMissing and #DisabilitySOS protests happening online and at the US capitol. Please call your reps and tell them to #ProtectMedicaid.

Follow:
@meactnet.bsky.social and @exceedhergrasp1.bsky.social
meactnet.bsky.social #MEAction Network @meactnet.bsky.social · May 12
Join us TODAY for #MillionsMissing! Ben shares that this is an SOS moment for Medicaid.

"Let's fight like hell to save Medicaid."

Join us in DC at Upper Senate Park at noon ET or via livestream & ALL DAY online.

millionsmissing.org.

#ProtectMedicaid #DisabilitySOS #Medicaid #pwME #MECFS
May 12, 2025 at 4:21 PM
dianaleighwaldron.bsky.social
Trigger warning: self-harm

Myalgic Encephalomyelitis Tanka

When I knew its name,
I checked life expectancy
and felt my soul cringe —
lower than my current age
(but skewed low by suicides)

#MEAwarenessDay #MECFS #MyalgicEncephalomyelitis #DisabilitySOS #MillionsMissing @MEActNet
May 12, 2025 at 8:48 PM
dianaleighwaldron.bsky.social
I am one of the #MillionsMissing! We are sending out a #DisabilitySOS 🆘. Save our Support Systems💔. Save our Science 🔬. Save Our Society 🌍. #MillionsMissing #MECFS @meactnet Learn more: www.meactions.org/millionsmiss...
May 11, 2025 at 4:22 PM
ladylonghaul.bsky.social
This is you refusing to do the same level of due diligence you’ve been attacking Kelly over for 5 days, now.

#GreatestMEdicalScandal #pwME #VerySevereME #TeachMETreatME #DisabilitySOS #MillionsMissing
June 16, 2025 at 11:11 PM
ladylonghaul.bsky.social
Feeling emotional today, probably in part because of PEM. 🪫

Big love to everyone using precious spoons to advocate❣️ 🫶

Thank you❣️

#DisabilitySOS #MillionsMissing

@meactnet.bsky.social

@exceedhergrasp1.bsky.social

bsky.app/profile/meac...
meactnet.bsky.social #MEAction Network @meactnet.bsky.social · May 13
We are winding down our day of #MillionsMissing action but just starting a week focused on creating change! WOW! You are blowing us away with the amazing shares on social media and we are beyond grateful to all who showed up in person in DC and at actions around the world.

#DisabilitySOS
3 photos. Top photo: a large group of people in front of Capitol building wearing red shirts and holding signs. Bottom left: person wearing red shirt, hat, and N95 mask. Bottom right: 3 people, one in wheelchair. One holding an SOS sign with statue of liberty. All have on protective face masks. In the middle of three photos is the SOS #MIllionsMissing logo.
May 13, 2025 at 2:06 AM
ladylonghaul.bsky.social
I’m linking to this post because she’s tagged some great accounts if anyone wants to contribute to or support #MECFS research.

I’m in #PEM.

I overexerted. Paying the price.

Losing words & thoughts. In pain.

#WorldMEDay #MillionsMissing #FibromyalgiaDay #DisabilitySOS

bsky.app/profile/lits...
litsadremousis.bsky.social Litsa Dremousis @litsadremousis.bsky.social · May 12
On #MillionsMissing Day:

As an ally to the tens of millions of us on earth w/ #MyalgicEncephalomyelitis and #LongCovid, an easy thing you can do is follow

M.E. Action @meactnet.bsky.social

Open Medicine Foundation @openmedf.bsky.social

The Bateman Center
@batemanhornecenter.bsky.social
May 13, 2025 at 1:55 AM
ladylonghaul.bsky.social
@maxwellfrost.bsky.social @frost.house.gov @sanders.senate.gov @ayannapressley.bsky.social @pressley.house.gov @aoc.bsky.social

As one of the #NotRecovered, I’m sending out a
#DisabilitySOS for the #MillionsMissing who’re #StillSickStillFighting on #WorldMEDay

@meactnet.bsky.social for more info
Image of the globe tilted taken from above the North Pole offset to the right of center in the frame. Globe and background are subtle muted shades of grey representing the muted life of a patient with Myalgic Encephalomyelitis who often can’t tolerate light or color when in more severe states. Title of image reads World ME Day 2025 in black. There’s a circle outline surrounding ME - the logo for the World ME Alliance.
May 13, 2025 at 1:33 AM
ladylonghaul.bsky.social
As one of the #MillionsMissing, I’m sending my love out to everyone with #MECFS, #LongCOVID, #Fibromyalgia and #EhlersDanlosSyndrome on #WorldMEDay

I’m sending out a #DisabilitySOS calling for my representatives in Congress to #SaveOurSupportSystems and #SaveOurScience!
May 12, 2025 at 10:59 PM
ladylonghaul.bsky.social
TODAY IS DEADLINE FOR LATE RENT BEFORE EVICTION PAPERS FILED🚨

Any amount deeply appreciated❣️

Trying to get an extension⏰

Reskeets are #CommunityCare #DisabilityTax #DisabilityJustice #DisabilitySOS

#SignalBoost #FundSky 💕💸💕

bsky.app/profile/lady...
ladylonghaul.bsky.social Alone LL @ladylonghaul.bsky.social · May 8
Received some donations since posting the update❣️

Thank you #NEISVoid #HelpSky #MAVoid❣️

665 OVERDUE RENT DEADLINE 1 Hour ⏰

190 utilities 💡
140 adjusted MCAS meds total 💊

#MutualAidBoost
#HelpFolksLive2025 #KeepPeopleHoused #DisabilitySOS #MEAwarenessMonth #LongCOVIDAwareness #EDSAwarenessMonth
May 8, 2025 at 6:17 PM
ladylonghaul.bsky.social
Received some donations since posting the update❣️

Thank you #NEISVoid #HelpSky #MAVoid❣️

665 OVERDUE RENT DEADLINE 1 Hour ⏰

190 utilities 💡
140 adjusted MCAS meds total 💊

#MutualAidBoost
#HelpFolksLive2025 #KeepPeopleHoused #DisabilitySOS #MEAwarenessMonth #LongCOVIDAwareness #EDSAwarenessMonth
ID: image is banner-sized cropped from flyer design by @neoOdist featuring background that’s a cropped photo of teal-hued sandy beach by Amy Humphries on Unsplash. Banner features drawing of small white coffee cup on a saucer with coffee steaming on the left next to web address to the right. Alt Text: ko dash fi dotcom slash LadyLonghaul
May 8, 2025 at 6:12 PM
somethingchronic.bsky.social
Are you in – or even remotely near –Melbourne?

Please help Anna!
She needs help finding a room or land to rent to escape DV.

Do you know anyone?
Or could you donate to her GoFundMe?

#MutualAidAustralia #HelpSky #DisabilityMA #DisabilitySOS #MADBoost #MutualAid
halcionandon.bsky.social Anna - Please boost pinned tweet.🙏 @halcionandon.bsky.social · Apr 30
Does #MutualAid exist anymore? Crowdfunding stalled. Too sick to stay visible? People too broke? If you’re reading please share pinned post! Help if able. Room or granny flat? Board neg. Land for trailer/ cabin? LMK. Dying, Dr backed!
#DisabilityMA 💕💸
#MADBoost
💸❤️

bsky.app/profile/halc...
halcionandon.bsky.social Anna - Please boost pinned tweet.🙏 @halcionandon.bsky.social · Apr 10
Need to rest & recover from #Covid but bills & problems don’t disappear while sick. Read my story. Help me escape abuse. I don’t know how long I’ve got to live.

chuffed.org/project/61937-help-anna-escape

#MutualAidAustralia #HelpSky #DisabilityMA
💕💸
#MADBoost #MutualAid
💸❤️
June 24, 2026 at 11:26 AM
somethingchronic.bsky.social
… Fluctuating conditions like #LongCovid and #MECFS which the government are aware was – and still is – one of the biggest mass disabling events in history.

And guess who funded the fraudulent #PACEtrial – oh that’s right, the DWP.

#GreatestMedicalScandal #TakingThePIP #DisabilitySOS
July 1, 2025 at 10:39 AM
somethingchronic.bsky.social
#ME #pwME #MECFS #SevereME #VerySevereME #LongCovid #EndMEcfs #MEawareness #DisabilitySOS #MEAction #MillionsMissing #TeachMETreatME #StillTheSaME #StandByMEcfs #StillSickStillFighting #NotRecovered #GreatestMEdicalScandal #JohnVsJonVsME #ThereForME #BerlinBuyers #IACC #MEKills #DontLetMEDie
June 8, 2025 at 3:51 AM
somethingchronic.bsky.social
Is there anyone in the #MECFS community that you think could be honoured? Link to submissions below 👇

#StillSickStillFighting #ME #pwME #LongCovid #SevereME #VerySevereME #MEawareness #DisabilitySOS #MEAction #MillionsMissing #TeachMETreatME #GreatestMEdicalScandal #JohnVsJonVsME #ThereForME
May 28, 2025 at 1:32 PM
somethingchronic.bsky.social
Please sign and share if you’re able!

*Demand NIH allocate $50 million to fund the ME/CFS Research Roadmap!*

You can sign from any country and so you know for your energy, the form involves:

• first name
• surname
• email
• country

bit.ly/MEcfsRoadmap

#MEAction #MECFS #LongCovid #DisabilitySOS
Image of a road with signs that say trials, treatment, cure. Text: Sign the letter to the NIH director asking them to fund the ME/CFS Research Roadmap.
May 23, 2025 at 9:16 PM
somethingchronic.bsky.social
🆘 @meactionuk.bsky.social @MEActNetUK
#DisabilitySOS #MillionsMissing
May 12, 2025 at 8:53 PM
somethingchronic.bsky.social
🆘 @meactionuk.bsky.social @MEActNetUK
#DisabilitySOS #MillionsMissing
May 12, 2025 at 9:13 AM
melovewarrior.bsky.social
Medicaid cuts hurt real people!! #Medicaid #ME #Disability
@meactnet youtube.com/watch?v=xMMw...
Shaina & David at #MillionsMissing 2025- Protect Medicaid! #DisabilitySOS
YouTube video by The ME Action Network
youtube.com
May 17, 2025 at 9:21 PM
gvnett.bsky.social
We are experts at enduring suffering. We should not have to do it without any help, understanding or support from heath care professionals #millionsmissing #mecfs #disabilitysos
Green and gold watercolour leaves decorate the corners with the words, we subsist yet persist we yearn yet withstand we cry yet hope we crumble yet endure
May 12, 2025 at 11:18 PM
gvnett.bsky.social
I exist in one room #millionsmissing #disabilitysos #mecfs #MEAwarenessday
Black background with red and white border. “Smaller life. Smaller life. Smaller life. Missing
May 12, 2025 at 12:49 AM
gvnett.bsky.social
#disabilitySOS
#MillionsMissing
#PwME
M.E. Awareness. Reduced to a whisper from the shadows. Millions Missing
May 11, 2025 at 4:29 AM